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I hope by sharing and reading what we enjoy from others the most, we can all learn to ask nicely for the help we need during the next flare!
I go first, when I don't feel well I really want extra space and all housework being done (under supervision)😂 by my SO!
Hubby massaging my painful muscles or giving me a reiki treatment
Living alone its not so easy to get immediate support and sadly they dont seem able to understand, even the one with MS. So I simply dont talk about it anymore
I am sad that you feel the support is lacking! It can be difficult for others to appreciate invisible illnesses that we have. I wish the public is educated better on invisible disabilities.
Do you have any close friends you can talk with? Sometimes venting is the most helpful therapy for me!
At the moment, not really. Zoom, skype etc dont work too well where I live. But there are a couple of friends I value because they take me as I am.
I find a lot of comfort from my cats. Do you have fur babies?
That's yummy! My husband isn't that good at massage but maybe he is trainable?
Helping me watch out for my sweet spots / overdoing it. But not too much pity.
I just want to see smiles from my hubby and children and grandson that gets me through most of the time xx
I like your reasoning! But Hell would freeze before my son got that involved in Care. Personal care, yes, Housework, no! Actually, I'm my own worst enemy that way; I like stuff done My way!
hi Lisai had the same problem with family not understanding what the pain is like
So i found a letter on fmuk which a member wrote to show family members it points out how lonely life can be when you cannot participate in meeting people on a bad day.
Sorry you cannot get their support and hope they realise its a real disease I cannot remember the title of the letter, but it made my family feel guilty now is different good luck and stay safe
My daughters do all my shopping and run errands for me, all the time. I’m very lucky but it did take a year or so for them to understand FB
Can't blame them because even I don't understand it after having it almost all my life! I still have no idea what triggers a flare, it seems so random!
Do you find your family and friends don't under stand?
So What do you do with your day ???
What do you do for fun?
What medication do you find effective?
Do your worse.....I dare you
