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Fibromyalgia Action UK

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hi everyone, ive just signed up to this and need some help! ive been prescribed nefopam as reacted badly to tramadol but this is just as bad

steen29 profile image
13 Replies

i previously had 30mg codiene+1000mg paracetamol every 4 hrs which was great at first but not working well anymore, can i increase the does of codiene?

thanks

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steen29
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13 Replies
sleepy2 profile image
sleepy2

i personally wouldnt increase it without checking with your g.p first i am on a higher dose but codiene can cause problems with your stomache and also dependance so best to check as we are all different and what may work for one doesn't agree with another. hope you get a combo that works for you but its mainly trial and error until you find what works for you

virtual healing hugs

sleepy xxx

steen29 profile image
steen29 in reply to sleepy2

thanks for your reply, can i ask what dose of codiene you take as i only take it about 3 times a week when the painis really bad so he may increase it?

steen xx

sleepy2 profile image
sleepy2 in reply to steen29

i take 2 x30mg 4 times aday but iwould advise you to talk to your gp as ladymoth said this is the most would be prescribed for long term use and there are many more thing your doc could try but you need to be monitored whilst this is happening as fm/me/cfs sufferers have quite alot of intolerances (well thats quite common)

best of luck and healing hugs

sleepy xx

ladymoth profile image
ladymoth

30mgm of codeine is about the maximum that you should take on a regular basis.

Ask your GP for something else if Nefopam doesn't suit you. It's not an opiate drug, but it does cause nausea, dizziness and sweating in some patients.

There are quite a few other analgesics out there which you can try, but you will need your GP's advice.

I hope you manage to find a solution soon!

Moffy x

steen29 profile image
steen29 in reply to ladymoth

thank u for your reply, my doctor seems to look blankly at me when trying to disc meds, can you advise on other analgesics to talk to him about?

steen x

Aliborange profile image
Aliborange

I take cocodamol 30/500 2 tablets up to 4 times a day. Tried nefapam, gabapentin, pregabalin, tramadol and others. All disagreed with me either making me feel sick, or like I was goin to pass out or gave me urticaria and blisters. Now just on cocodamol and voltarol gel and starting on sertraline which is an antidepressant. Will let you know how I get on xx

steen29 profile image
steen29 in reply to Aliborange

than u for the reply, nicve to hear someone is having trouble with meds aswell, ive been on sertraline for 6 months now and has helped alittle but need a stronger analgesic for when the pain is really bad, not sure what else to try,

steen xx

jom277 profile image
jom277

A lot of the time you get reactions with many medications. The first time I took tramadol, I was away with the fairies for 12 hours and Pregabalin left me feeling drunk, so I had to go to bed for my own safety.

After the first fiasco with tramadol, I too changed to co-codamol and had similar effects. My GP then a couple of years later put me back on tramadol but told me to only take 1 tablet instead of 2 for the first few days and this way it worked well, without the feeling of fairies. This may be worth thinking about for the future.

Hope you get your medication sorted out.

LindseyMid profile image
LindseyMid

Here is information on the treatment of Fibro:

fibroaction.org/Pages/How-I...

How long have you been on Nefopam? It's an interesting, and often useful, drug for Fibro as not only is it an atypical analgesic but it apparently also has an effect on boosting dopamine, so may treat some of the changes in the brain that actually cause Fibro symptoms. Side effects may ease after a few weeks regular use, so your doctor may want you to stick with it to see if it is beneficial after this initial few weeks.

patient.co.uk/medicine/Nefo...

The maximum dose of codeine is 60mg 4x a day (btw, the maximum dose of paracetamol is 4000mg/day so I hope you were only taking co-codamol 4 times a day, not every 4 hours?) but your doctor may not be happy having you on that dose long-term. Codeine will also not treat the causes of the Fibro symptoms, so whilst it is a recommended treatment for Fibro and can be very useful for breakthrough pain, it isn't a good primary treatment.

patient.co.uk/medicine/Code...

snowbell profile image
snowbell

Its horses for courses! Like everyone else, I have run the gauntlet with pain meds. Thing is some willwork for a while and then u build up a resistance. Had tramadol and cocodamol but at mo its paracetomol and morphine. So as u can

see from ppls responses, there are a range of options. But, I would say, if u arent convinced that your doc is on board with finding u a suitable pain relief, change your doc. U are alowed to these days with any fuss(alledgedly!)xx

snowbell profile image
snowbell

Its horses for courses! Like everyone else, I have run the gauntlet with pain meds. Thing is some willwork for a while and then u build up a resistance. Had tramadol and cocodamol but at mo its paracetomol and morphine. So as u can

see from ppls responses, there are a range of options. But, I would say, if u arent convinced that your doc is on board with finding u a suitable pain relief, change your doc. U are alowed to these days with any fuss(alledgedly!)xx

snowbell profile image
snowbell in reply to snowbell

Woops I obviously mean without any fuss!xx

Fibroman profile image
Fibroman

Taken 30mg / 500mg Codeine Phosphate / Paracetamol 2 capsule's 4 times a day for 9 year's. Some days it takes the edge off the pain but nothing and i mean nothing works. You just have to deal with the pain any way you can. I find very hot bath's are the only way to ease my muscular pain. The headaches and neck pain only amitriptyline seems to work but will knock you out.

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