Having fibro is.....

[charlii]

Having fibro and surviving day to day is like trying to thread beads on a necklace with no knot in the end.....thank goodness i have you , my lovely fibro family to help.....love you all...feeling poorly tonight and not myself at all xx

[Hidden]

Sorry to hear you're feeling poorly.

Take care of yourself.

I hope you have a better day tomorrow.

xx

[charlii]

Thank you kaz, it means a lot, take care xx

[wallflower_fairy]

That's a great analogy - the threads of the bead. I feel like that every day. I'm sorry you're not yourself though charlii. You're a great friend and I wish you to feel a lot better very soon. I also want to thank you for helping me out so much in these pasts months. I'm sorry I can be a little slow sometimes. My Fibro is particularly impacting on things at the moment like replies etc. I'm feeling a little sad tonight so I'm going to get some sleep now. I have a busy busy day tommorow. (Oh boy). You take care now,

wanderingwallflower (sending you some much needed sunshine) xxxx

[Hidden]

Know exactly how you feel Charlii. Hope tomorrow is better for,you

VG x

[ladymoth]

I've just dropped all my beads on the floor!

We'll all have a better day tomorrow - I've done my 'better day' spell!

Moffy x

[charlii]

Oh Fay, that comment has touched me so much. Thank you for your kind words and its lovely to think that even if ive helped one person its all worth it I love reading your blogs and i take a special interest in yours as i have a daughter the same age as you who has an invisible illness and she is at university away from home and i watched how she copes and i know you will do the same as long as you have the right support. You seem to apologise a lot when you post a blog..why do you do this? You must improve your sense of self worth. You are obviously very gifted with words and a fighter...a winning combination!

I am always here for you and anyone else who needs help and i will do whatever i can to help and you can always pm me if you feel you cant post something on the forum. Please rest well now as you have a busy day tomorrow and right back at you baby! xx

[charlii]

VG and Moffy, huge hugs and thanks as always, no wonder you are volunteers, always there for everyone else no matter how you feel or how much you have on your plate. Hats off to you xx

[Fibrofoggiest]

Sending gentle hugs charlii, sounds like you need a bit of TLC . Hope you manage to get some restorative sleep and wake to a much better day tomorrow . Muchly foggy x

[charlii]

Thank you so much fibrofoggiest although i think i should contest your name....i too am totally fibofoggy. May i take this oppertunity to say how much i am enjoying your input on the forum. You are so funny, i love your posts and comments...please keep it up and i really hope i feel better tomorrow...huge hugs xx

[jom277]

Charlii

Like the others said, that's a great way to put it. I have kept dropping my beads over the last few weeks, trying to cope with pain, major fatigue, an 11 year old young carer. Plus waiting for test results that seem to be taking forever.

I have been taking solice in this site and getting involved on advice and support. You could say it's my escape mechanism. Like you said if I only help one person, that's great.

You along with moffy, vg and Shelley have kept me going too with your blogs, advice, etc.

Thank you.

I hope you can pick up your beads tomorrow and have a good day

Jo x

[rainbowdancer]

What a good saying that is ....I have all my beads all over the floor so gonna magic them away " A new day tomorrow " Hope we all have full necklaces with a knot to hold them even if just for a while

Hope you soon feel better ((((((((((((((((((((Gentle Hugs )))))))))))))))))))))))))))) Nigh night x x x

Rainbow

[charlii]

while you are on the sire rainbowdancer, there is always someone to hold the other end up so the beads dont fall off...thanks for your comment xx

[Hidden in reply to charlii]

SOOOO need a like button!

[charlii]

sorry, that was meant to say site* xx

[Mdaisy]

Can FibroAction provide up-to-date information for everyone and spread awareness of Fibro within the UK, then we can tie a large knot in one end !!!

Hope that helps !

Keep Strong Charlii

[hamble99b]

hope you feel better tomorrow charlii, love the beads idea. I need one with lots of "just in case" knots and interlaced with beads and spoons

sandra.

[Kugagirl1]

Hope today is a better day for you xx

Kugagirl xxx

[hamble99b]

charlii hope you don't mind me using your beautiful analogy.

you inspired a poem. I'm adding it here, but posted it in a blog.

sandra.

I'm tying a knot for charlii

and all my fibro friends.

I want to keep their beads on safe,

by joining up the ends.

I'd add the beads of sleeping well,

of rest and comfort too.

I'd leave spaces for those you want to add,

I'll leave it up to you.

sunshine beads for rainy days,

& ones to make you smile,

fluffy beads & flowers too,

[this could take a while!]

if they fall, we'll all help pick them up,

with support, understanding, care

know if you ask for it, you're not alone

help is always there.

[Saskia in reply to hamble99b]

Sandra, that is so beautiful. You could write a book of poems and make some money I am sure! Thanks for sharing it with us.

Charlii, Hope you feel much better soon. Love the analogy.

Love to all my Fibro friends.

Hugs (lopsided ones because wrist?forearm still in plaster!)

XX

[hamble99b in reply to Saskia]

thankyou,

sandra.

[Saskia]

You're welcome Sandra...you have a great gift. I couldn't write a poem if my life depended on it.....lol...

Love Saskia XX

[sweetiepie]

I don't post very often, but am sat here with a lump in my throat, reading about the beads. Why has this analogy pierced our hearts as it has? I don't know.

[hamble99b in reply to sweetiepie]

I think charlii summed our lives up so beautifully.

[chilli50]

That was such a lovely poem and sums our lives up beautifully!

Just a thought but how about putting a book of poems together and selling it? Not only would it raise awareness of fibro but any money made from it could go towards the upkeep of the site or to a fibro charity? What does everyone think? We could use some of the poems from this site to start off with....

Love and gentle huggles

Chilli xxx

[hamble99b in reply to chilli50]

thanks chilli, maybe we could.

we've got some great ones in poetry corner.

if you go to the top right hand corner of this page to the "search" bar and type in poetry corner it will take you to them.

sandra.

[louisemay]

Oh so true. Great analogy there Charlii - So hard to summon up the strength to keep on every day. I rely heavily on a small bucket of meds every morning and wonderful husband who brings me the strongest cofffee ever...and then I can start the day.

Thanks for your great post.!

L

[Hidden]

Charlii that really sums up what fibro is, hope you are good today x

Sandra..what a lovely poem...

I had to spend a few days off here (deleted myself accidently!) and missed you all..Mary xx

[charlii]

Oh Mary, you did make me smile when i read this! Deleting yourself accidentally is something i would do lol, but thanks for the compliment and its good to have you back xx