Fibromyalgia Action UK
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ESA medical

Hello everyone I'm new today.

3rd year out of work due to fibro and myofascial syndrome.

I Just wanted to add that I had my 2nd atos medical yesterday(2years) and although very slow and stiff I did the medical. I supported myself when I bent down albeit very slowly.

The nurse wrote a lot of notes.

I told her about my autistic child whom I am her sole carer as im divorced and we live alone. She goes to mainstream school only couple hours per day and is paranoid, anxious and needs constant reminding and pushing, and will not let others intervene. it is Very very stressful to say the least. We both see mental health specialists and 2 years ago I was under the crisis team as I was at my lowest.

My Dr is very happy at dishing out more tramadol, anti-depressants and sleeping tablets. I used to be laid up daily as you know these pills make you NOT IN FULL CONTROL AND UNABLE TO DRIVE OR THINK FOR YOURSELF.

So I made the choice to only rely on ibuprofen and my Dr is rubbish as everything I go with is "fibro" so I don't go anymore as fibro is not a disease that can be seen.

I told the nurse I started an online course but due to my elbows arms and fingers could not complete(I write this on tablet with stylus which helps).

My question is "will all this be taken into account as I think because I was very slowly able to bend n move with little force against her hands(pushing and pulling away) I think I will score 0 points" after reading many comments on here?

Thank you for taking time to read this

3 Replies

Hello DM, and welcome,

The ATOS system is a bit of a mystery, and their judgements seem random to say the least!

I hope you are successful, but if not, your best course of action would be to go to Citizens Advice Bureau. They are experts, and will do their best to help you.

Hopefully they will see how many problems you have, and things will be straightforward.

Best of luck with this, and I hope your daughter improves soon.

It's nice that you've found this forum, so please let us know how you are getting on. We're not just about illness - we have a laugh and a joke as well, so stay and join in when you can.

Love Moffy x


If you do get scored too low, you can appeal. This info may help:


Thanks for the link LindseyMid it was very interesting.

The person who carried out my ESA assessment was a nurse as she said before she started I may need a Dr but then said she would be ok yet she didn't know what fibromyalgia was!

She asked when I felt better! I said I never feel better i just don't ache as much on some days, then asked me what hobbies I did! She really didnt have a clue about fibromyalgia at all. I said its like having flu with hanger most days n the others days like fallen off a bike at high speed.

This was an interesting read thanks :)


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