new!!

my name is nikita im 17 years old and have not long been diagnoesd with fibro it has been suspected i have had it since i was 13 but once again doctores dont listen and say it was all in my head my mum also has fibro sleep2 it nice being able to talk to someone about it knowing she fully understands i feel like i right hypocondreact a lot of the time and feel like poeple just think im putting it on for attention i some times find myself douting wether it is all just in my head then i get a bad day im currently in college working towards my level 1 child care but i found im strugaling with getting up in the morning or offten being sent home because of being in pain its nice to know that there is support out there and im not the only one suffering any way guys this was just a quick intro to say hello

16 Replies

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  • Welcome Nikita, sorry to hear of your diagnoses it sucks. We are all friendly and are always here to offer a cyber shoulder. I can't imagine being 17 and having Fibro it must be hell as you should be out enjoying life. Take care xxxx

  • it does stop me doing a lot of things a lot of my friends are doing but i gess iv just got to adjust to it untill i get it under controll and thank you

  • No worries honey and if they are good friends they will understand xx

  • Hello and welcome to our lovely forum Nikita, (what a lovely name!) you are most welcome here!

    Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

    If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

    I hope you enjoy your time at FibroAction! :)

  • Hello and welcome

    You will find we are a friendly bunch here and you are so lucky to have your mum for support, though sad that you both have fibro to start with.

    Check out out website where a lot of your questions will be answered along with some interesting reading.

    fibroaction.org/

    We are also here if you feel like a rant, tell a joke or even share a recipe!!

    Piggie hugs xxxxx

  • Nikita, just a thought, have you tried speaking to your tutor at college about your Fibromyalgia and how difficult you are finding things? It might be worth a try, most colleges have Student Support and offer extra help and support for students with Dyslexia and health conditions too.

    Try making an appointment to discuss your need for support, take your Mum too, it's always good to have personal support too. She understands, which is lovely.

    Take care Nikita, please let us know how you get on, we are here for you and will support you here too where we can.

    (((hug))) xxx

    Libs

  • thank you everyone for your support and being so welcoming nice to know that people realy understand and yes my mum is a big support for me through it all and hopfuly i am to her aswell n i have tryed explainig to my tutor at college but like most people they havent got fibro so dont understand i have a meeting with support group at college next week and i will keep all updated gentle hugs all :D

  • Well done for fixing up the meeting next week Nikita, that's good news! Take Mum with you and she will be able to explain how hard it is for you, how hard you work in spite of it all being a struggle because of your Fibromyalgia.

    We look forward to hearing how it goes for you! Wishing you all the best! :)

    It's our pleasure to welcome and support you! :D

    xxx

  • Hey I was diagnosed when I was 19 I am still a very very keen showjumper ... Yes I get very tired but I can work 40plus hours a week and my consultant said my form is very servere. Talk to your doctor about pregablin it works for me fight to get pain managemnet and a specialist physio ! If you ever have a bad day we are all here x

  • i love horse riding n i am hoping to get back into it soon hopefuly it will help with my back pain i have a appointment with my doc on monday to find out what meds they can put me on i will mention it to her thank you

  • When you see your GP on Monday Nikita, it would be a good idea to mention horse riding so they can advise you as to whether this would be a good idea bearing in mind your back pain. It's always advisable to check first, otherwise we could do something that may be detrimental to our existing pain and Fibromyalgia.

    Wishing you all the best for Monday! :)

    (((hug))) xxx

    Libs

  • yes i will do and if i did it would only be simple riding dont think im up to jumping and that yet lol n i will keep all up dated

    ((hugs)) xx

  • Bless you Nikita, be careful! :)

    (((hug)))

    xxx

  • Hi Nikita,

    As everyone has said welcome.

    It is really good to hear your college is being really supportive, as I am at college doing a similar course and my tutors aren't as understanding.

    I was diagnosed with FMA in June of this yeah, I have some really understand friends which is great to have. The one thing I have learned is know your limits if you are out walking (for example) here is an example this is what I tell doctors etc. I was out with my aunty taking her dogs to get washed etc..

    We walked there and walked back on the way back I started to get severe pain in my hip there was nothing I could do but to keep walking my aunty could see I was in pain so she took fifi off me. Later that day went I was at home I went to bed and when I the next day I was ill I was house bound for the rest of the week.

    So what I have started to do is walk a little bit more.

    Have you been put on medication yet?

    I have been offered hydrotherapy pool sessions and iv started going to physio.

    It's good you have support from your mam to, I have a small amount of family that understands, unfortunately for me my dad knows I have this conditions as I showed the the leaflet I got when I was diagnosed but to him I'm just a hypocondreact. So I was unwell last week and went home when my dad asked why I was off I told him that we were off.

    Welcome :D

    Hugs

    Susan xx

  • well my tutor still dusant fully understand but i told her to look it up because she was saying it cant be that bad to let ur attendance get this bad blah blah blah but now she's a little bit better and no i havent been put on meds yet going to the docs tomoro fingers crossed they get there ass into gear and helps me and hydrotherapy i was trying to remeber that last night but i fibro fog claimed my brain once again and yes my dad and step mum dont beleave me the only support i have from family is my mum but i feel guilty because she has fibro too but uses all her energy to help me because i live on my own and my partner is a nob and just thinks im lying has anyone got a good way to describe fibro and thanks for people help x

  • And let's hope both you and your mum have been PROPERLY checked for thyroid conditions and other things like vitamin D and vitamin B12.

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