How do you cope with the constant tie... - Fibromyalgia Acti...

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How do you cope with the constant tierdness and being so lathargic?

moaningmurtal profile image
10 Replies

i drink about 15 mugs of strong tea and eat chocolate for a slight boost

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moaningmurtal profile image
moaningmurtal
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10 Replies
Ozzygirl64 profile image
Ozzygirl64

I get out my MP3 player and give the ears a good ole blast of Ozzy Osbourne, that soon gives me a boost xxxxx

deelightful profile image
deelightful

I am going through the same big time at present. Its that heady feeling behind the eyes I hate. I have tried concentrating on something else, but it does not always work. Oh just to get some sleep, and wake up a little less tired would be nice. Thinking of you out there going through the same makes me feel less alone in the dark. I am sure there are thousands with sleep disorders and I feel for every one.

Hope you get some good rest soon. Your friend.

I find a hot shower first thing in the morning helps immensely. also regular meals, remembering to take my supplements (i have to set an alarm to tell me, or i forget) and trying to not over-do things.

I try to schedule just one "major" activity per day. and if I have a day where i find i have nothing epecial to do, i take it easy and try to please myself.

sometimes that means listening to great music and spending the day baking, and other days that means having a cup of tea in front of the telly...all day!

accepting that "good enough" is in fact good enough, as opposed to requiring perfection in my tasks.

and on days where i've got to stay active for longer, then yes, caffeine is great!

in reply to

*special, not epecial

Caffine can be to blame ironicaly. I find a routine helps and believe me that was a long hard battle with my partner as i was so unbeleivably lax.I used to drink upwards of 15 cups of coffee i'm now down to 1 to 3 a day sometimes none and going onto decafe, i wont lie it was really difficult for a month or so but did it and feel so much better for it.

Hope it helps, take care xxx

Pacing, it's the only way! It means being more organised and planning, but it really worked for me and actually gave me more energy. If you plan activities (depending on how you feel, it may be one, two, three or more) and then ensure you have a period of rest afterwards, then start another activity depending on how you are feeling and so on, I have found this is the best way to manage my Fibro and to avoid feeling permanently exhausted.

I learnt Pacing Therapy at a local CFS Clinic (Chronic Fatigue Syndrome). I was assigned an OT (Occupational Therapist) and had one to one sessions with her when she taught me how to pace. Gradually I could see improvements. By the time I had completed the course I was completely different to the wreck who started at the beginning. When I have bad spells now, I wait until I start to feel better again and then I resume pacing and it has become a way of life for me. Pacing can only be achieved during good spells, it cannot be done during a bad spell or flare-up.

If you think this might suit you, have a word with your GP to see if there is this facility near you.

jolow profile image
jolow

Hi,Just to add to all above have you had your vitamin levels checked lately as low/lack of can cause excessive tiredness and you may not recognise this as being anything more than f.m symptoms but i had same feelings years before f.m was diagnosed and it was lack of vitamins which showed up in blood test.I am the same at the moment had another b.t two weeks ago and red blood cells are again enlarged so another test has been done which i can be 99.9% positive that it will show that i need vitamin injections again so it may be worth just having it checked. X jjo

Caffiene gives you an immediate high but then drops you lower than low. It adds to the problem. Pacing and listening to your body's needs really helps. Learning about mitochondrial dysfunction has helped me. If you use up all your energy you will crash or have an energy crisis. Athletes call it hitting the wall. It's a balancing act. If you want energy to last longer you have to conserve it. We don't have an endless supply like normal people. That's why we're ill. Our energy is blocked by toxic build ups on our body. Toxins include stress, caffiene, artificial sweetners.....chemicals, but also our own sensitivities. Maybe dairy, wheat, nightshades, nuts, pulses etc . It's worth finding out what your triggers are

fibro profile image
fibro

it's a known fact that obstructive sleep apnoea also causes those symptoms during the day. you may not realise it but you might not be getting a good deep sleep each night, it's worth getting a referral to a sleep clinic to have a sleep study done. it seems that fibro's symptom's can cross over with so many over conditions xx

moaningmurtal profile image
moaningmurtal

Thanks all i will try anything as i never sleep through the nite i wake several times for nothing and lay there staring into space tossing and turning. I also cannot get to sleep iv tried allsorts but now i find i stay downstairs until im hanging then hopefully i get an hr or 2 b4 the first wake up. Ontop of that i have a 10mth old baby who has problems feeding so im also on nite feeds every 2hrs which doesnt help and my partner of 8yrs dumped me for my best friend bk in july so the nite feeds cant even be shared :( it takes me a good hr or 2 to come round in the mornings too and if i wake before 10am my fibro is worse, maybe coz i dont get to bed b4 1am everynite xx

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