Hi my name is Jen
How do I cope with the pain - Fibromyalgia Acti...
How do I cope with the pain
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Jen1112
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16 Replies
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Hi jen and welcome to our gang we are all in the same boat here and we really do know what each other is going through . So there is usually some ome here who can help with advice or point you in the right direction .And you will find us here day and night all night because a lot of us suffer with lack of sleep so open all hours . So tell us what pains you have and im sure you will be inundated with helpful posts xx wecome and wishing you less pain . 
xx
Have only recently been told I have this by my doc pain in shoulders knees feet wrists it's getting me so down any advice would be welcome
Has your gp given you any medications to help or are you trying to cope medfree
Hi Jen welcome to the forum. Have you had a chance to look at our mother site Fibromyalgia Action UK as it has a wealth of information on symptoms of fibro and a great section on all the different meds. and alternative treatments like acupuncture.
Have you just had help from your GP or have you been to see any specialists? Has a Pain Clinic or similar been suggested as they can often help with advising on medication and treatments.
Are you on any meds. or treatment at the moment. It is a case of pacing yourself as well as if you overdo things on one day you can find that you suffer increased pain for quite some time afterwards. Take care.x
Waiting for a appointment to see rheumatologist seein pain clinic in 2 weeks for my back pain so will ask them about this I've had 2 blood test to rule out rheumold arthritis as my feet and knees are swollen and hot to touch feel like I'm losing the plot x
Yes there can be selling with fibro but as you say more usual with RA. Many of us get that very hot feeling in our hands and feet I am one of them. Some people find that soaking in a warm Epsom Salt bath can help with some of this, just soaking your feet in a solution of it might help if you only ahve a shower. When my feet and hands are aching and hot I put a combination of a pain gel and a freeze gel in a thin layer and gently massage in and that can help. There were some good suggestions last night and several had tried some peppermint oil in a carrier oil as that is quite cooling and soothing and also lavender oil used the same way can be calming.
Do mention your other pains when you go to the Pain clinic and hopefully they may be able to make some good suggestions.
Many have found taking a low dose antidepressant for the pain can help dampen the pain, it seems especially good for lower back pain and can also help with sleep.
Quite a few of us have osteo (I do) plus the fibro so you can unfortunately get a multitude of symptoms and sometimes it is very difficult to work out what is causing what. Do let us know what happens when you see the pain clinic specialists, good luck.x
Aloe Vera gel is also good, as long as it's a 100%. Especially when it's been in the fridge, it's heaven, especially on the feet and when you leave your feet out of the bed for a while after putting it on, the air seems to give you even more of a cooling effect. Silly me just ran out of it and feet on fire right at this moment x
Thank u will try soaking feet I'm on s low dosage of antidepressant at moment all I seem to do at moment is having Melt downs x
it takes some time to come to terms with this illness.it helps talking to others ,also I find learning as much as I can and trying different methods to cope I have had to change so much in my life, have also had to stop working, I try my best to keep cheerful but not always easy. good luck hope you find the help and answers you need.
Hi Jen I'm so sorry you are having such a bad time, without exception everyone on this wonderful forum have felt and will again feel like you do now. This is a really horrible disease and causes so many awful symptoms, but the people here are here for you day and night, as we are often up in the wee small hours due to our pain. I have only recently joined the site and already feel I have so many friends that understand when you are having a bad time, but also can bring smiles to our faces too. Good luck with your appointments I hope you find some relief from your symptoms soon. I am sending you kind thoughts and love. Be kind to yourself. Dianne 😀X
I try and pace myself - activity , rest, - I take turns in everything - sitting, walking, or doing something I love (aqua, or swim) I do also have a lay down in the day (I try not to sleep) I do more on my good days and I have learnt not to be too hard on myself - and do what I can - I take pain killers when I have to - I know its hard but when I get low the pain feels so much worse - hope you find your own way of dealing with this to make it more bearable - hope you sleep well - Neese. x
Hi
Welcome to a very supportive site.
Sorry you're suffering.
I can see you've had some good suggestions, so I won't repeat them.
I do hope that you get the meds that help you.
Good luck and best wishes.
Hi Jen1112
I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:
I am so gneuinely sorry to read that you are suffering and struggling with your pain, and I sincerely hope that you can find some relief to this issue. I was wondering if you have ever tried a TENS Machine? I have pasted you below an excerpt and link to an *NHS / Arthritis Care pdf about TENS Machines:
*How can I try a TENS machine?
*You can ask your doctor to refer you to a physiotherapist to try a TENS machine. If
TENS helps to relieve your pain, your physiotherapist is likely to give you between
20 minutes and a couple of hours with the machine. It may take a few sessions to get
used to. TENS can be used for one hour on, one hour off, throughout day.
nhs.uk/conditions/physiothe...
I want to sincerely wish you all the best of luck and please take care of yourself.
All my hopes and dreams for you
Ken
I'm glad you have joined our wonderful group and am sorry you are suffering with all the symptoms that come with it. Learning to cope and pace ourselves is usually the hardest part. I find my heating pas, a long moist one, is my best tool, and also enjoy my tens unit. You are in good hands here and will enjoy the friendship. I'm hoping you are having a good day, talk to you soon.
Only diagnosed last November but it took me until recently to accept it and it's here for good. Pacing myself also only came for me recently, I didn't have a clue how to pace myself. Have always worked up until 3 yr ago and found it difficult to accept I won't work and certainly not in the job I did for yrs, in the future. Now with the help of all of these friendly and understanding people on here, I have learnt so much. About myself as well as this horrible illness. Still get frustrated and always learning xx
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