Self Belief is one thing..Getting others to believe is another....

[kizzi]

The thing about being you is u know when something is wrong. No matter what anyone else says you just Know.

For about 4 yrs ive Known this very fact and have done all i can to prove it. Here's my Story:

My first incling that something was wrong was about 4yrs ago when i noticed my fingertips felt funny, i cant describe it, not numb exactly just odd. So i went to the Doctors. I was told that basically is was due to smoking. Un happy with this i changed Doctors. My new Doctor took me alittle more seriously and after a chat referred me to a Neurologist. He agreed there was something wrong and at that time thought i had PPMS. I was put through some tests ( MRI,Electro tests,lumbar puncher) and all came up clear. He was a baffled as i was. In the end the best he could diagnose me as was Functioning Neurological Problem and i was told if it got worse to get re-referred.

Well i was gutted, back to square one, i didnt know what else i could do.

Last year i applied for DLA and today, after taking it to tribunal ive found out ive lost the battle.

So, at this point you might be asking why am i on this site?

In the time between then and now i have done some research to see if i can find out for myself what is wrong with me and Fybromyalgia kept coming up, but it wasnt til i spoke to someone who has it and we compared notes as it were that i really felt positive that yes this is me!!

My next thought was now what? do i sit back and just carry on or do i see my Doctor and ask for help? so think of me Wednesday as im off to see my Doctor....I Know me.....

[iandavid]

good luck but to be honest all the meds they give you for fybro dont work . I have had fybro for 4 years now and have gone though most meds I am on at the moment Butrans Patches, co-codamol, Cabapentin. And they do not help much but I do hope you find something that helps you kinds regards pauline xx

[Ginsing]

Ask to be referred to a specialist a Rheumatologist who sho identify if you have Fibro. Take heart some meds suit some people depending on which areas are particularly bad, so dont give up keep trying you will always find support here xgins

[getactive]

I have functional neurological disorder and it is very frustrating-my symptoms fit fybro perfectly but I feel that I have now been written off. There is an interesting website neurosymptoms.com and when you look at that it covers all things and you may find like me you fit into both thingd good luck sue xx

[charlii]

I am so lucky in the fact i have possibly the most cring, understanding gp's who totally believe fibro is as disabling as we all know it is and they identified it straight away but then sent me to a rheummy to have their diagnosis confirmed. I contracted meningitis in 2007 and was extremely poorly and ive never got better since and this is where both them and me believe it startred. I know take a cocktail of meds which help most days but not on bad days too much im afraid. From what i read on here i am in the minority however as most gp's tend to be less than helpful, but hey, you may have a good one! Dont ever doubt yourself is good advice i think and always come on here for support, advice or just a goo blooming moan! IT REALLY WORKS WONDERS! Gentle hugs...|Charlii xx

[Sandy64]

U & Me both. I've had 3 GP's in the past 8 years 2 due to moving location, and 1 because I was told repeatedly I was suffering from nothing more than depression, despite being given Morphine for the pain!!! I changed GP's again recently & have found a Nurse Practitioner who has taken me seriously, she is amazing, I find them better than GP's tbh they have more time to listen to you. I wish you all the very, very best XXX

[kizzi]

Thank you all for your kind words and advice. You have given me hope.

Nice to meet u all too

[Evalee]

I have little patients to plea my case to anyone; surviving takes everything....I will defend myself to no one......as I am sick to death and suffer to no end.....