Kidneys failing???: Hi everyone I went... - Fibromyalgia Acti...

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Kidneys failing???

NLBC profile image
NLBC
10 Replies

Hi everyone

I went to the doctors because I was feeling pain in my right side and the abdomen. They sent me to do some blood tests and 2 days after the doctor call me in say something in blood abnormal. You can imagine how scared I was. They told me my kidneys only working 51% based on the tests. I said what could have caused that to happen as I don’t drink or smoke? He looked at my ANA results and they say I have connective tissue disease. I know I have Fibro. Does anyone knows what this diagnosis means or have this problem ?

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Rose54 profile image
Rose54

Hi

Try not to worry I was told I had Aki stage 1 some years ago I think thier are 4 stages but it has never been mentioned again .

Best to speak to your GP instead of speculating .

Connective tissue Disease is anything to do with tissue and muscles and I know some GP include Fibro in this

in reply toRose54

I had surgery in June and a test run in July appeared to show the same thing - level 2. But it was caused by the surgery.. Good now, so Great advice Rose

ANA test is used to diagnose lupus, scleroderma, Sjogrens syndrome, rheumatoid arthritis. I think you need to go back to your GP and discuss this. Try not to worry too much, kidneys can stay stable for many years but if what the doctor is saying is correct and you do have a connective tissue disease you should be receiving treatment as they can affect your kidvey function.

NLBC profile image
NLBC

Thank you guys for replying. I definitely will go back to the GP because the connective tissue disease may be affecting my kidneys. Also my blood pressure keep on fluctuating with the bottom number reaching 105! Also itchy skin and sleeplessness. I forgot to mention that the doctor asked me how much naproxen I was taking daily as naproxen is known to cause kidney disease. I was surprised to hear this as I take naproxen for my trapped nerves in my neck and for fibromyalgia pain.

mattjoachim profile image
mattjoachim in reply toNLBC

I have CKD stage 3, went to stage 4 ,now back at stage 3 again. You are correct about naproxen. Napronen comes under a NSAID and doctor told me anyone with kidney problems should not take NSAID. Did doctor do a GFR request as this is how they calculate kidney function I would not worry too much as your kidney function may be down to medicine you are on or other conditions can cause kidneys to not function properly .

NLBC profile image
NLBC in reply tomattjoachim

Yes the doctors did a GFR test and read the results to me.

can understand your worry but could be a lot of things.

About 14 years ago I had weird symptoms after being abroad. I was mostly concerned about my eye which was very painful , sent for a raft of tests, phlebotomist said she'd never been asked to take so many different blood samples.

Nothing found wrong with my eye but blood tests and then urine tests showed possible early stage of kidney failure.

Weeks of tests followed and all the signs in blood and urine simply disappeared. Dr didn't really understand it.

Only thing they could think was I had nephritis 20 years earlier and some stress on my body had made this temporarily flair up again. The odd thing to me was it didn't feel like the nephritis again--- my pain was in my right eye and head!

Take it slowly, it may well all come to nothing, I hope it does.

I can only think of things like Sjorgrens or SICCA syndrome, they show an elevated ANA reading, maybe google the 2 and see if anything sounds like you. Maybe fibro comes into that category, but I have never been told that.

nadine111 profile image
nadine111

the symptoms you are having with pain on right side can be your gallbladder acting up. you might want to ask your doctor to do an ultrasound to see if you have gallstones. blood tests are interesting. can say one thing and a month be totally gone. i've had blood in my urine for almost 20 years now. no one can figure out the cause. it's not a ton of blood but it always shows up. i have so many other issues that this is one i'm ignoring until something like white blood cell count gets nasty. our bodies are unique yet have many issues that are the same or similar when dealing with fibro along with all the other issues that come along for the ride. take a deep breath, then another. i've found if i try to do some deep breathing i will calm down ...somewhat. just enough to cope through whatever new issues has shown up. i hate to hear when anyone is told it might be this or that or nothing. would be nice if someone would hold our hand when being told it's something and would be nice even if being told it's nothing. i can't imagine what you are going through but know that there are a bunch of people out there that care. best of luck.

NLBC profile image
NLBC

I really appreciate all the comments. Sometimes I have swollen feet so I should have realised something was not right

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