Hi, I'm a new member and I finally discovered I had Fibromyalgia last Friday.
I went to the doctors in August last year after months of suffering with my hands and wrists. It was first thought that I had Carpal Tunnel and I tried Naproxen for the pain. This made me feel awful and the pain did not subside. Eventually I was referred to physiotherapist for my hands. After a few appointments it was clear no progress was being made and we discussed seeing a back specialist after they discovered my neck pain.
This takes us up to January this year. The back physiotherapist is proving pretty pointless by now. She encouraged me to change my posture, which strained more muscles and made me feel even worse. After a few cancelled appointments I was then referred back to my GP.
As you can imagine I was at a complete loss by now. After returning to my GP twice more I broke down in tears and practically begged them to do something. I was then referred to another hand specialist.
A nerve test came back negative for Carpal Tunnel. The specialist referred me back to my GP but advised me to see a Neurologist.
In between waiting for communications to be passed on I return to my GP and ask for blood tests. ( Have previously been denied these by another doctor). This shows no anaemia which it was suggested I might have.
Return to my GP to find him most unhelpful. He suggests that it would doesn't see the point in seeing a Neurologist it might not help at all. I ask if he can test me for anything else? Not really is his response. Can't be bothered more like it.
There is currently a 3 month wait to see a Neurologist in my area.
In the meantime I start do some research myself. I came across an article my friend shared. Fibromyalgia? What is this? I have all the symptoms of it.
I returned to my GP making sure to make the appointment with the most helpful Dr. there. I take in the print out of the symptoms of Fibromyalgia off the NHS website with near enough the whole sheet highlighted. He smiles and nods.
Says that this wouldn't have shown up on the blood tests. He is agreeing with me! Starts to talk me through the condition and offers me a real life prescription!
After months of feeling like I was going insane and becoming more and more exhausted and depressed I finally have my answer. I was prescribed Dopselum and have noticed a real difference already. I now understand why I feel like I do.
Sorry for the long post! But felt like I needed to give you the full facts. I was wondering if you thought I should still see the Neurologist? I still don't have an appointment so it's something I would need to chase and know it will be a long wait. How helpful would it be to see one?
Just happy to finally have acknowledgement from my Doctor.
Thank you for your time.