is anyone else housebound through fibro

hi, i have fibro, cfs, ibs, depression, aniexty and suffer paniac attacks as well as other troubles, i take medcation, list so long would be here forever to list and different vits, but my pain can get so bad am unable to get out of bed, also suffer with sickness, dizzness, list goes on and on. i hardly go out anywere, when i do take walks with my children i have to use a motabilty scooter as long distances are a big no, does anyone else suffer this bad, my hubby has given up work to care for me and help around house and with our children, we have 6 and 2 of them suffer with autusim and other problems. i just want to know is there anyone who suffers with it this bad,

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  • im similar hun, only im a single parent as well, my oldest has adhd and aspergers, my youngest has bad hypermobility syndrome. i have fibro, cfs, ibs, depression, overactive bladder, sight problems and anxiety!!

    i use scooter as cannot walk and find i spend most days at home :-(

  • Hi there i am too housebound have two children but my daughter is 18 now and along with my fiance they are my carers my son is 10 and he too is a big help my daughter has cared for me since she was 14, it is very difficult i cant go and watch my son play football on sundays or walk round town shopping with my daughter i miss things like that, im only 38 and also have depression, panick attacks, vertigo, ibs and 2 prolapse discs in my spine, degenarative desease in my spine and oestioarthritis in my spine and also awaiting a op on my foot as i fell over 18 mths ago and broke it so i have got to have a fusion and cant wait bear for 6 to 8 weeks after so that gonna be fun!!!! and like you along with the fibro it makes it very difficult to get out of bed.

    ok moaning over sorry guys soft hugs to you xxxx

  • hi everyone...

    I am to becoming housebound... only going out very occassionally... but sometimes i think i have a bit of agrophobia since having fibro.. i was wondering... is there anyway.. we can all talk on more of a regular basis.. i am looking for new friends.. as the ones i thought loved me, have now all disappeared because of my illness.. they think because i look ok..( not that ithink i look ok to what i would like to look).. i am married to my husband for 28 yrs and he works full time to support me.. i have 3 children 25,20 and 18 and to be honest really dont get my illness..i push myself away beyond what i can do.. only cause i dont want to stress my husband out anymore than he needs.. then i pay for it later.. so if anyone knows of a way to talk more.. or would like to become a friend... please let me know xx dianex

  • Hello Diane. I would love to become your friend. I too have lost a number of what I thought were true friends and it's affected me more than I thought it would.

    My husband has given up work to care for me full time and I only really leave the house to attend medical appointments. I totally get what you're saying about feeling agrophobic - I sometimes feel quite panicky when I'm out.

    I think you should sit your family down and tell it like it is - they need to know the facts and how your illness is affecting you and they should be helping you - you should never have to feel lonely if you have a good, supportive family.

    Gentle hugs xxx

  • THANKS , I DONT FEEL ALONE NOW, ANY ONE WANTING TO ADD ME AS A FRIEND UR WELCOME TOO, I ONLY GO OUT MYSELF TO DOCTORS OR HOPSITAL OTHER WISE IN DOORS , DO SUFFER BAD NERVES, CANT TAKE CROWDS OR CONFRONTATION BY RUDE PEOPLE WHEN OUT DOORS, I HAVE EVEN HAD PEOPLE APPROACH SAYING U SHOULDNT HAVE CHILDREN IF YOUR IN A SCOOTER OR DISABLED, HOW RUDE IS THAT, EVEN BITCH ABOUT MY CHILDREN WHO HAVE AUTUISM AND THEY CANT DEAL WITH BUSY PLACES ,SO AS A FAMILY WE AVOID BUSY AREAS, TOWNS ETC BUT WE FIND THINGS TO DO IN THE HOUSE AS A FAMILY, LOVE BOARDGAMES OR MOVIE NIGHT EVERY FRIDAY,

  • My symtpoms are exactly the same as yours including the agrophobia. Am in so much pain. Have been out twice since Christmas and that has been for doctors appointment. Have got used to staing in now and the telly is my best friend. Husband is handy for doing tthe shopping and cooking, but draws the line at decorating the house! Musn' grumble as he does bring me m breakfas ever morning wih which I take m useless painkillers. How you manage with all those kids I dontt know, But cherish them,even though the can be noisey. My agrophobia goes back to when my 2 were litttle and when I tried to take them out the panic would really set in and I can remember one time leaving them at bus sttop when I saw the bus coming because I was in such a state and had to get home quickly to go the toilet, Eventuallly, under my own steam managed to get myself on the sttraight and narrow and went to work but it never lettt me 100%. In myy early 50s developed FM/CFS and the rest is history. Had to give work up permanttl. Am 75 next month and sttill suffering. Things dont get any better as you get older,but if people leave you alone to live life the way you want to, then its half the battle. Only found this sitte a few weeks ago but itt helps to get things of your chest. After all no one else wants to know and on here we are all in the same boat. Only wish those without this illness would just give a few minutes to read this site, it would really open their eyes.

    Take care, your not alone.

    God bless.

    Avril.

    P.S. PC seems to have developed a stutter as well - dont think our illness is catching do ou. lol.

  • Aww bless you so muc i am not housebound BUT i dont go out like i used to even to see my besy friends i have text them on many occasions and put them off as i just want to br alone i hjust want to lay on my bed and sleep ha ha and just be quiet i dont want to be with alot of people or be in town wobbling about so can see whwre you coming from sorry bout all the mistakes in this i am tired now going up to bed and cold and so just wanted you to know your not alone love to you diddle xx

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