Dynamic MRI Scanner now in the UK!!! DO you suspect you have PC3?

Here is the link guys and gals!

uprightmri.co.uk/london.html

[LindseyMid]

Thanks!

[julieevh]

The normal ones bring on claustrophobia for me ... I had a real panic attack last time I had one in March. This is much better, hopefully they will be installed across the country.

Julie xx

[tinkerfae]

i couldnt believe how loud the mri was scared me senseless wen it started!!!

what is pc3?

[LindseyMid]

PC3 is Positional Cervical Cord Compression. It has been linked in research with Fibro.

There is some info here on this website provided by Dr Holman, an American Fibro specialist who is on the FibroAction PAB, and who was instrumental in the research into PC3 and Fibro:

positionalcordcompression.com/

FWIW I have contacted Dr Holman asking if he has any comments on the suitability of this kind of scanner to check for PC3. Will let you all know when I get an answer.

[Hidden]

That would certain cost a fortune to have it done, privately.

Or..are we talking about having it done on NHS?

Certainly, it looks very useful.

With Regards,

xxx

[LindseyMid]

Theoretically, this could be done and paid for by the NHS - if a consultant says their patients needs a test and the NHS cannot provide it, it can be arranged that the NHS fund for the patient to get it done privately.

Good news from Dr Holman and the clinic - this looks like a real possibility! I'm going to get more information and get Dr Holman's protocol to this clinic, see what they say, and then put more information out.

Thanks Peachy! I can't believe this clinic hasn't come up before when we and others have been looking for somewhere to do flex-MRI.

[Hidden in reply to LindseyMid]

Hi Lindsay,

Yesterday I used a little charm and got to speak to one of the radiologists at the UPright MRI Centre (Beverley) and she agreed to liaise with Dr Holman to ensure that we are getting the right scans! Obviously I was very sensitive not to offend her skils or abilities but the reasons for checking are purely a "measure twice, cut once" exercise.

PS They re in line with Bupa rates too.

If you'd like to give me a call for more detail then please do on 07921 92292

I was leaving contacting Dr Holman until later this week as I have a few important/urgent things to get done first - and of course I won't be heading there for a scan THAT quickly

[LindseyMid in reply to Hidden]

Hi Peachy, I'll be in touch so we can liaise. Linz

[LEWIT in reply to LindseyMid]

Hi LindseyMid,

I know that you were discussing this a while ago but I have recently found the info about PC3. Have you had the scan? I would love to know the outcome and if you were able to get diagnosis.

It seems like I'm hitting my head against a brick wall because everything is about diagnosis so it would be really good to hear back.

[LEWIT in reply to LindseyMid]

Forgot to mention.

I saw a chiropractor last year and she told me about OSMIA - I think that is used mainly for research though. It's a similar thing I believe.

The link is below:

aecc.ac.uk/research/imrci/o...

[LEWIT in reply to Hidden]

Hi Peachy,

I know that you posted this a while ago but I have been new to fibro. I have read about Holman, wow your so lucky to have met him because he really seems to have answers. Did you have scan and did it confirm PC3?

I think that I may have PC3, in fact I am dying to find out if I have and I came across your post and thought, it's old but I will try to contact you anyway.

[Hidden]

Hi LEWIT,

I haven't had a fMRI scan as yet, no. It might've saved an awful lot of trouble if I had though, judging by a second opinion I recently had.

Through my employers I was able to access the Best Doctors service (a global network of leading specialists) and they gathered my medical history inc scans etc, going back nearly 9yrs, sent it to the chief of spinal surgery at the hospital attached to Harvard Medical School, who came back with a report asking why no one has picked up on the Syrinx in my spinal cord which is being slowly worsened by what he termed as "constant micro-trauma" and that it is almost certain I have cervical myelopathy. I now have to see a Neurologist to rule out things like MS and then he recommends fusing my whole cervical spine from C2-T2.... Scary stuff.

After Neurology I intend to go to the National Hospital for Neurology and Neurosurgery in London and insist on an fMRI (which I have just learned they have also) before we confirm the exact surgery needed.

I'm not sure if this helps but I wish you the very best of luck. Please feel free to message me if you need to bounce things around a bit more...

Best regards

Gary

[Hidden]

IMPORTANT PS!

If you suspect you have spinal problems that have not been clearly identified on an MRI already, then my advise is to please stay away from Chiropractors! You can't truly see everything that is going on without an MRI And subsequent radiologists report, and no Chiro gets those and as such, are working blind.

Good luck once again...

Gary

[Ladymarmalade]

Hi there, has anyone had success getting an NHS referral to check for PC3? I am not claustrophobic and have had many regular MRIs done. I was diagnosed with fibromyalgia years ago and have never been happy with the diagnosis. I can't look up without pain and I'm convinced that it is compression which is causing my CNS work up and widespread pain. I'm feeling pretty desperate.