Well im new to this site been on it for a week or so and i have replied to some of the blogs on here but never actually posted a blog so here goes...............
After starting pregabalin last thursday i feel like i have been steam rolled (if thats a good enough way to describe it) i am even more exhausted than normal in constant pain mainly in my chest neck head shoulder hands fingers and back but just when they subside slightly the pain moves to the lower half hips legs knees feet n toes the itching its driving me mad and all i wanna do is curl up and not come back for a long time! but i do come back as i have a daughter that needs me and i work but with my work im an advisor for tax credits and due to confusion slurring words forgetfullness etc its becoming unmanageable :O( my work is being supportive but trying to work with this is taking its toll but i dont want to give in either as im only 36 although i feel like a 90 year old. please tell me thisis normal these feelings im having? i cant talk to my mum (she has fibro) but she has other health issues and i dont want to dump my moans n troubles on her too im on pregabalin cocodamol citalopram ibprofen and they just seem to take the edge off the pain and thats it......is there anything else anyone can recommend? right thats enough moaning and groaning for my first blog but i know you guys will hopefully understand where im comming from rather than me getting "och your not that bad" from people who look at me and think because i look ok that im ok inside coz they dont understand........
gentle hugs xx
Have you told you doctor about the side effects you're having? Always feed back to your doctor what's happening with new medications. The side effects may be normal, but some may be worth checking out and others may be possibly alleviated without stopping the medication (e.g. lowering your dose, taking it at a different time or even adding in another medication temporarily).
Finding the medications that will work for you can be a long process. However, we really stress the importance of getting not just an accurate diagnosis, but a comprehensive one. Many people with Fibro also have other things going on, even if these could be considered related symptoms, e.g. Myofascial Pain, or common comorbid conditions (conditions occurring alongside the main condition), such as hypermobility or Positional Cervical Cord Compression. But until you know exactly what is causing your symptoms, you can't target treatments.
Hope that makes sense. It's not easy to work out.
it kind of makes sense! i only started taking the prgabalin 5 days ago so going to give it some time to settle if you know what i mean? i didnt realise that you can have other conditions along with fibro, do these make the pain worse and how do i go about getting an accurate comprehensive diagnosis? it was hard enough trying to get diagnosed with fibro :O( i suppose my mums right that i jsut need to live with it or learn to live with it as it doesnt go away i will give it a few days more and see how i feel and if im not any better then i will contact the doctors aand just ask for some advise
thanks for the reply x
It's really tricky as many things that can get missed are not often checked for. But it's mostly down to have the basic all been done and what symptoms do you have that are not typical of central Fibro (widespread unpredictable pain not related to localised joint or muscular issues, with hypersensitivity to pain and autonomic symptoms - e.g. poor temperature control, problems with low blood pressure or palpitations, etc) or what symptoms do you have that could indicate something else.
You can make sure you've had all the basic extras ruled out, so have had inflammatory, autoimmune and thyroid blood tests, etc. Vitamin and mineral deficiencies are often not checked for and should be, especially anaemia, B12 anaemia and vit D deficiency. If you have IBS symptoms, you should have seen a gastroenterologist to rule out other conditions like Crohns and Coeliac disease.
You will also be the best person to know if you have something that isn't typical of Fibro, such as swelling (which may indicate an inflammatory condition), photosensitivity (which can be a side effect of medications but is also a possible sign of Lupus), recurrent miscarriage or stroke (both possible consequences of Hughes Syndrome), etc.
Hypermobility is something you can check for yourself. See hypermobility.org/diagnosis...
Myofascial Pain is a common symptom with Fibro, but is a condition in its own right and needs its own treatments. It causes tight or knotty muscles with burning or shooting pains, muscular weakness, muscular restrictions (e.g can't stretch legs out properly when walking), headaches & migraines (especially frequent, chronic or intractable headache or migraine), etc.
Positional cervical cord compression is something that has come out of research in the last 10 years. See positionalcordcompression.c... for basic info. Symptoms and signs can include a positive Romberg test (see link below), pain in the dentists chair or when trying to get your hair washed at the hairdressers, etc.
It's not easy and it usually takes time to work this all out, but it's worth it.