Visited my local library yesterday with my daughter and whilst there found 2 books about fibro so i took them out. in my head im imagining im going to find some miracle cure that will help everyone. i know this isnt going to happen but it makes me feel more positive thinking it at the moment so i am going into my own little 'save the world from fibro' bubble for now! no doubt once i find these books dont have the answer everyone is looking for i will go back to feeling sorry for myself but even if i just get a couple of positive days then its a bonus!
isnt it mad the things we have to do just to make ourselves feel better (unless its just me and im a bit strange lol)
xx
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hjones
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Hope that you find the books useful --- but I think deep down we all realise that the solution is to find our own individual "coping and pacing" skills, and then have the strength of mind to "stick to" these activities on a day-to-day basis. (learn to say NO to others - in a nice way!- when they are asking too much of you) Have a positive attitude and adapt the ideas in the books to what works best for you -- good luck -- and if reading the books "make you feel better" then go for it!!! x
hello glad you found to books my libery had 00000 non not one so i ordered some lol
The fact that there were actually books about Fibro is encouraging! It means more people must be treating it as a real condition. Don't think you are going to find any magic answers julieevh, but it might give some insite as to how it effects different people and what triggers it in the first place.I read an American article once and it sited head trauma as the most likely trigger. I shall be very interested to hear what your books have to say. Can you pass on the titles? Take care. XX
Head trauma - I guess repeated strokes and mini-strokes would qualify there! Still 30+% of people who have a stroke meet their maker so I'm just happy to be cheating the odds!
Ditto to the others as I have books but have not found anything good in any. My husband did read a leaflet once that I brought home from the local mineral water hospital and it said that fibro could go as quickly as it came - still can't find that leaflet! Maybe he was having me on in a good way to encourage me to think positively. Before it was called fibro it was 'muscular rheumatism' which is the same as both attacked the fibres, muscles & ligaments around the joints, etc. x
A friend with fibro lent me a book a few months ago (she doesn't use this forum) but it was just after my BC diagnosis so I wasn't able to read it. I did scan through the list of symptoms and was astonished how many of them apply to me and I had never connected them to fibro. I can't remember the name or author so would be really grateful if you could PM me the details of these two books. I must try my local library too as it has just had a massive facelift and might very well have something now!
the book i have are - Chronic Fatigue syndrome, ME and Fibromyalgia - The long Awaited cure - by Dr David Mickel (the front cover is quite plain, just purple with white writing)
Chronic Fatigue Syndrome (CFS/ME) - Second addition - By Frankie Campling and Michael Sharpe (again a plain cover, orange and white with 'The Facts@ written down the side.
Up to now I have only flicked through them and the bits I have seen say most of what i know already but there is plenty more in them aswell i would imagine.
i have also just had a look on Amazon and there are many books about fibromyalgia and with most of them you can look at some of the pages online before you buy them.
I know im not going to find the answers i want to hear but it gives me something to focus on which is helping me pick myself up and feel more positive which is just what i need right now as i am so aware that i am slowly slipping into what could turn into depression as i am just so fed up at the moment!
Hi I have read the first book by Dr Mickel -- because of my poor concentration levels I found it difficult to understand at first, but after several attempts I found that what he was saying made a lot of sense and I could really relate to it --- basically what he is saying is that when you start to feel any FM symptoms that your " body" is "not happy " with what you are doing or the situation you are in and it is time to "move on" to something else. (hope this makes sense!) I now use this approach on a day-to-day basis and as soon as I feel any symptoms rearing-up their "ugly heads" I leave what I am doing and move onto something else (eg doing ironing - start to get shoulder ache, then stop and make a cup of tea!) - it means that it might take a long time to get things done, but at least they get done in the end!!! It is very difficult to stick to this "plan" but it seems to involve "balancing" everyday mundane chores with some "fun" things! So the "cure" seems to be striking a "happy balance". Since I have been using this "plan" I have improved immensely and have now returned to work part-time, and go swimming, walk the dog, go to yoga classes, do gardening and even sleep soundly at night! (AND TAKE The hardest part of this "plan" to surviving FM is actually being "strong enough" to stick to it and not letting others around you talk you into doing something you are not "happy with" (being able to say NO!)
sorry about the malfunction with my previous post -- my computer skills are not the best!!! What I was saying is that I now "survive" with no medication simply by "listening" to what my body is " telling " me (hope this does not sound too mad!!) Basically there is no miracle cure but a way of learning to deal with it and learning to find a way of living with it, Hope that you find the books useful - let us all know how you get on good luck xx
Hi, i have found im struggling to understand what the book is talking about, i didnt realise how poor my concentration skills had gone! i seem to be finding out new things that i am struggling with everyday lately with this daft illness!
i thing a couple of reads and hopefully i will understand better.
it does all sound very complecated what you have said (again properly my concentration!) its great that you have made this work for you - my next question was going to be has anyone had success with mickel therapy but you have already answered that for me so thank you!
hopefully once i manage to get my head around everything i will make it work for me aswell. i am so fed up of so many tablets each day and still having pain so i want to try every little thing i can
Do try and persevere with the book by Dr Mickel -- I also undertook 6 sessions of the Mickel Therapy and the therapist was lovely and she helped me to understand what the book is trying to explain (the sessions were quite expensive and I know that everyone cannot afford it!) -- and since then (I had the sessions in 2006) I have managed to keep my symptoms "at bay" by "listening" to the "emotions " that my body is experiencing and acting in the appropriate way to deal with them. Don't get me wrong -- it is by no means as simple as it sounds -- it is probably the hardest "thing" I have done in my life and you have to have the determination to continue with it on a day-to-day basis I guess for the rest of your life -- but at least it means that you actually have a life that is worth living! Hope this is clear enough for you to understand and if you would like to ask me anymore questions about it then just send me a message - I will be happy to help you if I can. xx
when you say about listening to the emotions in your body and acting in the appropriate way - how do you mean? say you had pain in your back or hips (or wherever you have pain) how do you overcome it?
I told you it's not as easy as it sounds! You are basically "listening" to what your body is telling you to do rather than paying attention to what your brain is telling you (it takes practice to pay attention to your body and ignore what your mind is telling you to do -- it's a bit like following your "gut-instinct" ) Maybe I should give an example -- I find when I wake up first thing in the morning I maybe have stomach cramps starting (IBS) or a pain in my hip -- I then instinctively think "body does not want to be lying here in bed" so get up and "do" something else -- maybe let the dog out in the garden, wake up my daughter for school, put on the kettle to make cup of tea, empty dish-washer and once my body is "happy" with what I've achieved I find the symptoms subside. So, it's like my "mind" is saying you don't feel well so stay in bed a bit longer (which will only make my symptoms worsen) but if I listen to my body's emotions and get-up and "get-on" with "things" then my body is "happy" and my symptoms go away! I know it might sound crazy but it works. With the Mickel therapy you have to make lists of when you experience any kind of FM symptoms (and as you are well aware there are lots of those!) - record where, when and whom you are with and then you are given "ways" to deal with them (basically you learn how to handle situations in the least stressful and tactful way possible, as you know that stressful situations make FM symptoms worse) eg - you may get involved in an argument, stress rises - say to the other person "I need time to think" take time out to clear your head and go for a walk and return with a clear solution to give to the other person - you may have to come up with compromises but you have to learn to have the courage and strength to do this. It is not only about "changing" yourself but encouraging the people around you to change as well. I expect this is about as "clear as mud" to you - but maybe if you keep a diary of when, where and what you are doing when you get symptoms things might fall into some sort of pattern for you. It is very hard to achieve a perfect balance because we are constantly being given "new challenges" to overcome, but with practice it is possible. I guess it's like learning to live your life in a whole new way. Maybe this might help you to understand the book -- I hope so xx
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