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hi soma here does anyone suffer with being so hot all the time like a fever, but body feels cold to touch?

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paula1967 profile image
paula1967

Hi Soma, yes i do but its always my upper body that does this my face and hair is allways dripping wet and gets me really down its part of the fibro xx paula

soma1 profile image
soma1 in reply topaula1967

hi paula thankyou, how long have you had fm ? tc soma xx

paula1967 profile image
paula1967 in reply tosoma1

hi some i was told i had fm and cf in january but i believe ive had it for a few years, some one did mention sage herbel tablets but ive tried these and they havent worked, id give anything not to drip lol all of the time xx

saluki25 profile image
saluki25

Hi

I literally have water running down my back at times and I m forever throwing open the windows when everyone else has jumpers on. I go out with out anything on my arms now as I can not stand sleeves on me!!!

soma1 profile image
soma1 in reply tosaluki25

thankyou for the info tc soma x

Cleaner profile image
Cleaner

Hi

yes i am the same, my upper body dripping wet, it gets embarasing when im in shops. my body also feels cold to touch x

soma1 profile image
soma1 in reply toCleaner

hi cleaner, sorry your the same, yes it does get embarrasing,. at least i know i am not alone. tc and thankyou soma x

Goodienuff profile image
Goodienuff in reply toCleaner

ME TOO!!! It IS so embarrassing being like this in public, especiaally in ASDA when I am dripping all over the sodding conveyore belt! I get the strangest looks in winter, out in a vest top, when everyone else is dressed like an eskimo!!

I read a book once about human spontaneous combustion, and am sure that one of these days it will happen to ME :-)

Just wondering if you had ever had your thyroid checked out? I have low thyroid function and used to sweat like that but when I had my thyroid meds adjusted, this went away!

Christiine

soma1 profile image
soma1 in reply to

glad you asked my thyroid showed abnormal last year so the doc wanted to check it every 3 mths and when he did so it showed normal ????? then it was borderline i was told, still no further on, and still same frustrating daily symptoms, and the doc says its your fibro arrrgggg lol tc soma x

in reply tosoma1

Ask if you can start on a low dose 25 say of thyroxine. It's cheap and I can't see any reason why you couldn't have a trial. My sister did! Christine x

renrobin profile image
renrobin

Hello Soma,

It wasn't long ago that I was asking the same question and I felt as though I was melting.

I'd come off my HRT a few months previously after taking it for a number of years.

I didn't particularly want to get back on it because of the risks and my GP agreed so I went onto a safer drug which helped for a couple of months then hot flushes came back!

Every 10 minutes I was suffering from severe hot flushes which exhausted me and I couldn't cope. I am now back on Premarin HRT and so far after 6 months so good....

I think that fibro plays havoc with our hormones and so my comfort in being back on HRT outweighs the risks.

If you treat this problem similar to the menopause you will find help how to manage the flushes on the internet as not everyone agrees with HRT.

Try the natural remedies like soy milk and herbal remedies.

Hope you feel better soon and get to the bottom of this...it's bad enough having fibro without the meltdown

Hugs Ren Robin...xxx

soma1 profile image
soma1 in reply torenrobin

hi renrobin, thankyou for your input, i am on hrt, mine isn't flushes its a permanent hot burning up which makes me more tired, i am dairy/ lactose free. it doesn't help as i have a kidney with reoccuring infections, had i removed age 21, also have a rare type of lyphoma [blood cancer] which was caused by infection. will give anything a try thankyou once again for your comments tc soma x

soma1 profile image
soma1 in reply torenrobin

hi again, soz it should say lymphoma my comments below x

66Amanda66 profile image
66Amanda66

Hi, i have had the same thing for years, i wake up in the night wet through and my pillow is always wet, it drives me insane, i dont put any make up on anymore because my face sweats so much, its really embarrasing. Even when i feel hot my skin feels cold and clammy.

I totally empathise with you all, but i cant find anything that helps, have tried sage but no difference, i have ceiling fans in lounge and bedroom etc, my doc just says its the fibro. Im also 45 so may be having hormonal changes which wont help.

Apparently the fibro interferes with our bodys ability to control temperature,

It also causes me a sore groin and sore under my breasts where i sweat and i have to use steroid and anti fungal creams, does anyone else have the same thing ?

I even wear t shirts and vests in winter im soooo Hot lol, got to laugh about it or id be a misery all the time!

Hugs to you all x Amanda

Goodienuff profile image
Goodienuff in reply to66Amanda66

OMG this is just ME I have replied to a post further up. I get some weird looks in winter when out in vest tops. :-(

Devonlady profile image
Devonlady

I have the complete oposite, I am burning hot but have goose pimples and shivery usually when I get into bed. I get hot flushes but that is the menopause but hate the shivering when I am not cold.

SootyB profile image
SootyB

I'm definitely the same - I've taken to carrying a desk fan with me from place to place at work, as I'm always sweating and overheating, although my skin temperature generally feels fairly normal. I rarely wear a jacket or anything, even in the rain, as it just makes me sweat more, and when I'm away from the fan at work, I can feel the sweat dripping down my forehead! YUCK! :(

I've also stopped wearing foundation etc., as it was just smudging and forming tide-marks, no matter how little I put on. But at least my makeup routine is faster in the mornings now! A good thing, as it takes me even longer to get going than it used to! ;)

Sara xx

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