Head Pains/Headaches

[heartmatters1]

Hi I haven’t been diagnosed with fybro, but get a lot of the symptoms. I was wondering if anyone suffers with shooting pains in their head & general headaches. Also tinnitus?

and itchy ears? TIA.

Happy Christmas & best wishes for 2025.

[Scooterz2]

I wouldn’t say these are specific Fibro symptoms

[Dinkie]

My shooting headpain has been put down to neck arthritis. I have had injections in the back of the head which helped for a while. I also have tinnitus but not fibro related as it's part of my hearing loss. None of the medics have said that either of these problems are due to my fibro. Hope this helps

[heartmatters1 in reply to Dinkie]

Thanks for your reply. Interesting as I do suffer with neck pain too.

[Animalover39 in reply to Dinkie]

Hello do you get sharp pains at all ? I have recently been told I got a trapped nerve in my neck and I got multiskeletal to

[Animalover39]

hello I do yes like sharp pains that come and go I get pain in the back of my head sides also and front it does tend to move around also I got pain in my neck but I just found out I got a trapped nerve in my neck so could be that or I got both I get these headaches all the time happy Christmas to you lovely

[Onceabiker]

I get very bad pulsing headaches and my GP said it was high blood pressure no doubt down to worry. She said I was close to a stroke. I’ve got three months to get it under control or I’m on Statins for the rest of my life. I’ve cut down on coffee and eat a banana for potassium per day..

X

[heartmatters1 in reply to Onceabiker]

Thanks for your reply. I do monitor my BP & also take statins and anticoagulants.

Best wishes.

[bookish in reply to Onceabiker]

Hi, just wondered if you had ever had your homocysteine (hcy) checked? Raised hcy may raise your risk of stroke and heart attack. It is what you might call a sign of dirty burning of your vit B12 and folate (B9) and a few others. If possible, ask for serum B12 and serum folate to be tested and/or get copies of tests already done, plus your full blood count. There are things in that (like MCV, MCH, RDW, Hb) which might help to see if you have a deficiency. B vitamins are tricky to test as tests are geared to blood levels, when the damage is being done if cell levels are low and that isn't so easy to measure. In fact there are no tests which can rule out the possibility of cellular deficiency. You might have to do the hcy privately (such as through Food for the Brain ( foodforthebrain.org/product... ), but you could ask - the NHS did do mine, but it was a hospital consultant. If it is high, omega 3 supplements and the right B vitamins should get it down for you - but please don't just start taking oral B vitamins. This could obscure any chance of getting a diagnosis and without necessarily fixing the problem. With neurological symptoms and after about age 50, you are likely to need B12 injections rather than oral/sublingual. Injections are the only reliable way to treat a deficiency - tablets may raise serum level but still not get into cells adequately (this was my own problem, hence a boring amount of knowledge about B12 and folate, which are very intricately linked!) With you having had physical trauma, especially to nerves, and so many operations (anaesthesia in particular nitrous oxide inactivates a good chunk of your B12), I suspect yours may need some help. Best wishes

[heartmatters1 in reply to bookish]

Thanks for your reply. I have had numerous blood tests (FBC) included. Each time they have come back as within normal range. When I mentioned to a GP that my late mother was B12 deficient, and was regularly given B12 injections, he just said mine result was normal. Might have to have one done privately.

Best wishes for 2025.

[bookish in reply to heartmatters1]

Hi. The fact that your mother needed B12 injections considerably increases your probability of needing them yourself. B12 metabolism is strongly genetic (I am the fifth generation of 6 that we know of). Do you know why she needed them - a diagnosis? As I mentioned, all tests can be 'normal' for this and you still have a deficiency. Many doctors don't know this, although information is getting better and some do. I would suggest that you get a copy of your results so you know where in range you are (although both B12 and folate can actually show as high in range when deficient - this is not easy!). There is a lot of useful info on the Pernicious Anaemia forum on HU (lots of forms of B12D, not just PA), or the PA Society itself. B12 injections can be a useful treatment for fibro as well as CFS pmc.ncbi.nlm.nih.gov/articl...

so you could ask for a therapeutic trial of B12 injections (try a different GP, if you have the chance). One injection is likely to do little and it is better to have the first one under medical supervision in case of very rare reaction. Having said that, many end up self injecting as they can get no help at all. There is one doctor in Cambridge and virtual appointments are possible, if private is an option. Don't give in as you are most likely on the right track and it has made a vast difference to me and many thousands of others. Just from a quick look at your other posts you do seem to have a range of issues which are commonly B12 related (although some of course can also have other causes). Very best wishes

[heartmatters1 in reply to bookish]

Thanks for your interesting & informative reply. I don’t know why my mother had the injections, however I do remember her saying she could tell when she was due another one because of the way she felt. I Will pursue it though.

Best wishes for 2025 🤗

[bookish in reply to heartmatters1]

Thank you, and to you.

[Mickstar2467]

Yes I get buzzing in my ears most of the time pain in middle of my back and pins and needle on my left shoulder blade plus top of my arm and a strange sensation all over my body.I see my doctor on 3rd Of January to see if its fibromyalgia.Ive he'd these symptoms on and off for nearly a year now

[heartmatters1 in reply to Mickstar2467]

Thanks for your reply. Hope you get a diagnosis, it’s horrid when you don’t know why you feel so rough.

Best wishes.

[Sarahvit]

Merry Christmas! Yes I do get a tingling electrical sensation that goes up on my right side of my head, headaches, tinnitus, pain in my right ear, itching when the liquid wax comes running out of my ears. Just recently learned that this is a genetic thing of having the liquid wax vs the hard wax. Yes fibro brings a whole list of different symptoms.

[heartmatters1 in reply to Sarahvit]

Thanks for your reply. We are curious beings 😅.

Happy Christmas & best wishes for 2025.

[Yassytina FMA UK Volunteer]

Hopefully you will get a diagnosis soon , fibro sufferers do complain of headaches I’ve read here including myself , any concerns speak too your GP , Take care Merry xmas x

[heartmatters1 in reply to Yassytina]

Thanks for your reply. Best wishes for 2025 🤗

[Elemis]

I suffer regular headaches some which last more than 2 days. I have to regularly exercise to keep them at bay. Spondylosis and Fibro combined. Skeletal pain across my chest area when it's cold also occurs.Co- codamal helps but only take intermittently as can be addictive.

[heartmatters1 in reply to Elemis]

Thanks for your reply.

Best wishes for a happy healthy 2025

[Moonow103x]

I have all the same symptoms

[Ting62]

I have had Fibro Since 1996. During that time I have had these shooting pains in my head and a congested feeling which feels like I have a really bad head cold, stiff jaw, itchy ears and bouts of tinnitus. Thank goodness these things come and go unlike my other symptoms which are pretty constant. It’s always a worry when things involving your head are not right so please get some medical advice, just in case. I’ve never heard anyone mention itchy ears before. That’s interesting. I thought it was just me! Take care and best wishes for 2025

[heartmatters1 in reply to Ting62]

Thanks for your reply. Best wishes for a happy healthy 2025 🥳