I have had FMS for many years now and had come to terms with the changes this had made to my life...recently after having a cardiac arrest I was diagnosed having cardiomyopathy DCM (Dilated). I had an ICD fitted whilst I was in hospital because of the high risk of me having sudden death attacks. I have had numerous problems since my discharge from th John radcliffe hospital at Oxford in May...what with the hospital losing my patient notes etc..and having to wait for a 6 week check up which now is taking place in Oct... at Swindon in Wiltshire ..I hasten to add I live in Cirencester...Gloucestershire.....anyway to my calculation I will have waited five months from having the ICD fitted...It is bad enough having to come to terms with whats happend...and I have had to make some further lifestyle changes...! At present I am unable to drive for 6 months but the DVLA have not processed my information as of yet..and it could mean I will have to go for regular medical assessments. Everything impinges at the moment what the cardiologist tells them...but here comes the sticky wicket...I havent seen one yet...and my medical notes are lord knows where!!! My stress levels are at an all time high as well as the frustration of it all..I was told that I am supposedly to try and lead a stress free life...Hmm...enough said!!! My FMS has flared up something terrible...and my sleeping pattern is all over the place!! All of this may not be of any consequence to a lot of people...but for me this only impounds my health problems even more...not only that I am virtually isolated at home..luckily my daughter does come over...when she can...she has to take me shopping ...which was a chore at the best of times..before my cardiac arrest..Now its even worse....but I rather go to the supermarket than shop online for that is the only way of me getting out of the house! I get very depressed a lot and just feel is this all there is ...is this how my life is going to be...??? I have not been offered any help whatsoever..no cardiac rehabilitation, as get this I dont fit the criteria..I was sent home with a booklet and my added medications... I must admit I get angry when I see programs that were broadcast on BBC2 about disabled claiming benefits should be working...! I do receive DLA and I am on Incapacity Benefit I have been for some time now...I am a 58 yr old woman who once over could tackle and cope with most things...but since I was diagnosed with FMS things changed for me...now, I have this other medical problem...which, I hasten to add the amitriptyline I was prescribed did not help my heart condition... in fact it made it worse, as this medication can cause arrythmias apparently! I now have to come to terms with whats happened...but, when I think about my future it looks bleak!!! I am also worried if I have to go back in for reassessment...that will only add to my stress levels ...which is not good for my heart condition or my FMS...
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