Over the last 3 or 4 weeks if I've done anything that's needed me to use a lot of energy I've spent 90% of the next day sleeping. Even activity's I usually do have exhausted me and last week I only took part in 1 of the usual things I do. I totally missed my carer coming to take me shopping so my parents took me shopping on Thursday. A big mistake as we went to Tesco compared to using Sainburys normally. I know its cheaper but I only got part of what I wanted as the pain hit me and I just felt exhausted so I'm now making sure I'm awake to go with her.
Today the carer woke me up when she'd knocked the door and got on with the hygine clean as well as doing my bed while I went to the loo and she even brought me a nice cup of tea. Now all of my regular carers have seen me on a bad day so at least they now know why I have help. Though I know they don't say anything but I have had an odd look as if to say why am I here in the past.
Hope everyone isn't having a bad day or week as I am