Anyone live near harrogate? - Fibromyalgia Acti...

Fibromyalgia Action UK

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Anyone live near harrogate?

chilli50 profile image
8 Replies

hi.

Im just wondering if anyone lives in harrogate?

Gentle huggles

Chilli xx

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chilli50 profile image
chilli50
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8 Replies
chilli50 profile image
chilli50

Hi againn

I just asked this question because, although ive looked, there doesnt seem to be a support group in or around harrogate and i wondered if there was anyone living around here, woukd they be interested in helping to set one up? Ive no idea where to start!

If anyone does and is interested, let me know. My mum and i both have it and i have a sister who is moving back from scotland in august who also has it. I suspect my 2 daughters both have it too. Ie got 4 more sisters, one of who as diagnosed with cancer that has spread a couple of months ago and i suspect that at least one of them has fm too as they are saying all the things i said before i was diagnosed

Gentle huggles

Chilli xx

harvey12 profile image
harvey12

sorry im in lowestoft

chilli50 profile image
chilli50

Hi harvey

Thanks for answering

Gentle hugs

Chilli x

hayley13 profile image
hayley13

i live near pudsey west yorkshire but im not sure how u go about starting up a group or what it entails although i have leaflets from a fibromyalgia course i did at chapel allerton hosp if u require any copies i could get u some best wishes hayley xx

Gazza-666 profile image
Gazza-666 in reply tohayley13

Hi Hayley

It's been a while since you wrote this but I've just found it, my wife is a chronic sufferer of this illness and just wondering where you go i.e doctors in Pudsey to get any treatment and are they any good? have you started a group up?

Regards

Garry

hayley13 profile image
hayley13 in reply toGazza-666

no i go to drs in stanningley not had time to start a group up been very poorly health wise ive been in very bad flare ups for months now plus my spine has gone worse and i have now got more degenrative disc diseasde in my uper and middle and lower back aswell as 5 protruding discs and oesteo arthuritis everywhere so im hurting like really bad and trying to carry on but its hard to when u are in so much pain im sorry to hear about ur wife i can sympathise with her as i am chronic sufferer too i dont know of any groups round here for fibro i get treatment from my dr and rhumatology consultant does ur wife go to rhumatology if so which hosp does she attend ??

SonnyBear profile image
SonnyBear

I'm from Harrogate... and new to the site. I've had fibro since I was about 12yrs old, I'm now 23. I also have other health problems too though.

Get in touch, would be good to talk

x

chilli50 profile image
chilli50

Hi hayley,

Thanks for your reply. I would really aapreciate the information. Would you like me to message you with my email?

Hi sonnybear. Its good to hear from somebody in harrogate. Ive looked in the directory and theres a few people around here, which is why i wondered how you go about getting a group started. There doesnt seem to be that much support in harrogate and i cant drive so cant really get further afield.

I think ive had fibro for around 25 years, although it wasnt acknowledged until 4 years ago and only officially diagnosed in february this year. Through trial and error of medication ive found that not much works for me so far. At the moment i take 800mg tramadol and paracetamol a day. Its nowhere near enough. I was on pregabalin but they recently took me off them with a view to starting duloxetine. I was also on 20mg amytriptylline but i had quite a bad reaction to it and spent a weekend swinging between wanting to end my life or somebody elses! I certainly dont take them anymore.

Can i ask which school you went to, if thats ok? Ive got a daughter your age and you look familiar. I can message you my daughters name if you like. See if you know her?

Love and huggles to both you and hayley. I appreciate your replies

I hope you have a calm, restful and relatively pain free day

Chilli xx

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