Fibromyalgia Action UK


yesterday I had a call from my daughters school she d hurt her hand ice skating, so I had to walk and pick her up, its only a few minutes away but it took me 1/2 hr to walk there. I knew my mobilty was getting bad but I didnt know how bad. Im I going to end up not being able to walk at all. Walking was my life. Im know Im going to find it so hard to deal with

5 Replies

oh lally ,i can sort of understand where your coming from ,i used to walk atleast 8 miles a day ,on thursday i had to walk to the bus stop after dropping my car off at the garage ,its not too far and thought i could do it ,the end result was me being crippled and not being able to get my little boy to school :( ,

ive never felt so guilty ,this illness robs us of so many things dosnt it ,

sending you lots of love and gentle hugs :) xxxxxxxxxxxxxxxxxxxxxx


its so hard to deel with I felt like screaming last night 1 with frustration and 2 with the pain, my legs felt like someone had thrown acid on them


i went to bed at 8pm and layed there and like you my legs were so painful

at one point i felt like someone was sitting on them ,obviously no one was lol ,i just leyed there feeling like you frustrated and so fed up ,

its horrible isnt it i feel very down today :(


Hi lally

Me too, walking was the one thing i did so often, i dont drive, cant afford taxis and have panic attacks on buses so i loved the walk, whether it be rain or shine.

But i have to realise i cant anymore. Yesterday with the aid of painkillers i felt well enough to walk to our little town usually a 20 min walk but took me an hour there and same back. Was in agony last night but enjoyed being able to make it.

Today i just went to the local shop, did some shopping and now i think it was way too much as my legs are on fire and so weak, and my back pain is horrendous.

Its not just losing out on a social life its losing out on the things that helped me even when i was down.

I think thats why i have put so much weight on and so unfit now but this just makes my depression worse.

Im sorry it is happening to you as well..

Gentle hugs xx


Hi Lally I am so sorry for you that walking is getting more difficult for you-these things take alot of coming to terms with.

I am struggling with accepting my life at the moment-until may last year I worked fulltime as a nursery nurse in a childrens centre in inner city Hull I have done the job for over 20 years and I loved it so much. I miss the children dreadfully and also my friends and workmates. Now I am in constant pain have very limited mobility and suffer from fatigue.

I suppose in time we will move on but the journey is rough.

Take good care of yourself

Sue xx


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