hi everyone !!!: just wondered what... - Fibromyalgia Acti...

Fibromyalgia Action UK

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hi everyone !!!

elsiegirl profile image
7 Replies

just wondered what tests youve all had to clarify fm

as ive had most scans ect, and havent been diagnosed yet

got a hosp appointment on monday with rumatoligist, is it a blood test?

or another test? thanks all

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elsiegirl
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7 Replies
rosehip profile image
rosehip

i had blood tests , my gp suffers fibro so it only took 2 weeks to diagnose , she is amazing xx

elsiegirl profile image
elsiegirl

thanks rosehip

so a blood test diagnoses fibro then?

its not just symtoms? xx

wish i could say my doctor is amazing :(

elsiegirl profile image
elsiegirl

so its not just a blood test then?

i so confused lol

thanks

rafiki profile image
rafiki

no as yet there is no blood test that confirms fm. its still only the trigger points and pain for more than 3mnths! we have a long way to go!

elsiegirl profile image
elsiegirl

thanks rafiki

im still none the wiser then lol

zebbi profile image
zebbi

Hi elsiegirl,

I have been to see no one other than my doctor who has constantly been doing blood tests to rule out everything. Like yourself I am mind baffled as was diagnosed first with ME and a few years later I attended the other doc in clinic and was inform I have Fibro when I mentioned to her, which is it, she just said , 'oh they are similar' and I was left not knowing.

elsiegirl profile image
elsiegirl

hi zebbi,

well i was sent to see my rumetoligist about feeling ill, tired, very painful is skin even has the lightest squeeze, painful arms & legs,

back & shoulder pain ect ect, he then spotted that i have clubbed fingers & toes, which is a sign of lung cancer, so he sent me for every scan you can have bacsicaly , which showed no lung cancer, but that i have copds & emphesema in my lungs, 2 collapsed discs in my back, slight artheritis in my wrists, shoulder & knees, so i am currently under heart & chest clinic & ruemetoligy clinics, take steroid pumps daily, plus around 20 tabs a day for pain ect, but they dont really seem to work! im getting worse, feel so drained & tired all day long as have no energy, shooting pains up & down my legs, searing burning pains in my neck & back, and cant sleep!!! wake up a few times in the night, even though it takes me up to 2 hours to get to sleep! how does that work when you are so tired? also get really bad cramp in my legs every night!

so to be honest i think ive had this for years, but i think the doctor panicked when he noticed my fingers

what a life hey? still, im going to see him on monday, so will take a list of all my symtoms and show him, as you forget half of them when you get in there dont you? plus i cant consentrate on anything? bit brain dead i think lol

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