My FM has been very high of late ;0)......

[Tess63]

Every step is so heavy and the pain from my head to my toes is heartless and unforgiving.....The tiredness has been so bad I cant keep my eyes open and I struggle with the stupidest of tasks... it seems mad and unreal and every day I kinda treat it as a first!

My way of coping i guess.... I just don't believe it will never go away!!

I have suffered at the hand of this cruel master for over 20 years! ;0(... I feel others find it impossible to digest that pain is never going away...EVER! its just there and there and there! I also have scoliosis of the spine and degenerative discs!!

[diane63]

oh tess...hugs... ur life sounds like mine... everyday of my life is this horrible illness, have a list of things that i suffer from due to this, and every month or so i get some more to add.. the one just now is constant urine infections, sweats and like u said, cant put one foot in front of the other without feeling so fatigued that u could just lay down and die... i was in bed for 10 days, just out yesterday for the first time, i still feel awful but as i lay in bed i worried about having another pulmonory embolism that nearly killed me 2 half years ago, ketp thinking, keep moving,, try, but i was in so much pain with the infection, which then flared the fibro...

I dont know about u, but i feel i am living a life of a 80 90 year old would prob feel with illness.....

maybe i should not have answered u tess lol... anyway.. gentle hugs to u xx

[beth2]

hi tess I have 2 rods in my back as I have scoliosis and other thing sadly my op was not successful dont know bout you but most of the time it take my breath with the pressure of it hope you feel better soon love beth

[Tess63]

Thank you for reply's x ;0)Diane,..... yes the list of ad on with FM is a nightmare! from food intolerance to migraine fibo fog sensitive to noise, oh the list is endless that's why its the irritable everything syndrome!

I am sorry you have been so ill and how scary to suffer an embolism ;0(...... I do feel as you say that I am trapped in the body of a ill 90 year old! that about caps it... the guilt and frustration that brings .. I like to be about it! busy and helpful.....................but I am pulled down as if I am living in a old lead diving suit! its far from good and a very real burden for us to carry.............................

Beth...........I have had Harrington rods for my scoliosis...............sadly it was terrible from the start and I know that the operation for scoliosis triggered my FM, yet I feel I was always prone to problems from a child...............My rods became infected, and so came out 5 years after going in! I have now an increase in rib hump, stenosis and I need a decompression and fusion, I am so trying to delay it! I am sorry you have had so many problems........and i empathize x Tess

[kilts]

Oooh it's so sad wen doc told me there's something wrong I don't think the pain will leave u now was her words . I cried after I left . I cried and cried how can I live with this constant unrelentless pain every second of every day til I die only on death will I finallybe freel from pain . The pain is always there but at times now It blends into my day most days I can laugh in enjoy time with my family in friends the pain is always there I just keep it on the back ground as much as I can .