Having a FLARE UP..: ..restless legs at... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Having a FLARE UP..

loopyloo1 profile image
2 Replies

..restless legs at night, spaced out, stiff in the morning and jelly legs afterwards and so damn tired all the time at the mo, very stressed at work but have reached a trigger point so cant be sick...does anyone else feel that stress plays an important part?

Also a week before my period i can flare up, does anyone else have this?

had my bloods done last week...guess what? all normal. was diagnosed with fibro in 2009 in belgium but the GPs here just keep giving me Cipramil...going to see the professor next week, and will start yoga in july.

its weird because it comes and goes, sometimes im full of beans and can walk the dogs, go shopping etc then i wake up and i can hardly walk and look longingly at wheelchairs!

I am good at pacing myself, but if i do happen to overdo it im done for! and today im done for :-(

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loopyloo1 profile image
loopyloo1
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shell27 profile image
shell27

hi yeah iv found stress makes the condition so much worse which unfortunatly comes in day 2 day life if they find a cure 4 that we myt b so much better lol

i haven't found the ryt balance yet im still overdoin it or underdoin it,

could u let me know how u get on w yoga, im waitin 4 specialist physio if that doesn't work id lyk a back up.

hope u get beta soon x

Sarah-Jane profile image
Sarah-Jane

You sound like the classic FM sufferer to me! Have you seen a Rheumatologist? They are supposed to know about us - though not all do! Surprise! They can refer you to hospital pain management team - not always good though - physio - same - hydro therapy - great if you do not overdo it and you really do have an understanding physio therapist. Mine said she knew, but I had so many problems, nealy lost my job!

You do have to pace yourself, you won't always get it right, stress often makes things worse, sometimes not immediately. I managed several years of semi-nursing my step father, through his final illness and death to be struck down with a flare whilst standing in my mums lounge - my right hand side flared pain foot to shoulder! But eased as I left - that was a one off.

I have had PMT migraines for a couple of years before diagnosis which have changed but depression just as bad.

I have restless legs if off Amitriptyline, have to adjust dosage from time to time, also sensitive skin like a burned area on thighs.

I am on Lyrica which helps a lot. Can knock some out but once I got used to it I was fine, although heavier. Weight going up too. :(

If you exercise, don't do anything repetitive is my advice, listen to your body. Stretching exercises can be ok, but I was having back spasms linked to PMT and stretching so take slowly - some say TAI CHI is good.

Hoovering and ironing - be careful - you are tightening muscles to hold the handle and then asking them to push and pull!

Apart from that welcome to a club you would rather not be a member of!

Soft hugs and sympathy.

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