I have recently been diagnosed with FMS after 10 years of symptoms and constantly been ignored or messed about by GPs or NHS professionals. It took a private consultation at spire hospital for the NHS doctors to sit down and listen to me again after he said 'hang on its not gastroenterology based, you've pain in all areas of the body...... it sounds more nerve based.' Then within weeks fibro was diagnosed. I am still awaiting full assistance on the pain front as what i am on now oramorph, citalopram are not working. I also have to juggle hypermobility, ibs and coeliac disease so my life is a jumble. Depression is swamping me and even the 'emergency' self referral number my gp gave me reckoned i was a risk but said i should go to the samaritans as they have a year waiting list! I wish i'm dreaming and wake up soon as i cant take much more nonsense. I've tried crying and shouting at doctors and verged on begging them to help me cope. If i can be in less pain i can cope with picking myself back up. I dont know what else to do. I cant sleep as of the nightmares i get with depression even when my pain lets me sleep so the fibro fog i keep getting is driving me around the bend. My family dont understand fms (and dont seem to be trying) and keep thinking i can just pull myself out of it or that i'm acting forgetful to annoy them. I am trying to work (am a beauty and relaxation therapist...how ironic) but i have not the energy or strength for half of what i was capable of. I am angry and sad all of the time, feeling abandoned by everyone who in an ideal world would stand by me. Is there anything I havent done or said that might make a difference?
Thanks for listening to my rant