Dont know what to do ! wonder what yo... - Fibromyalgia Acti...

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Dont know what to do ! wonder what you think.

BlueBunny profile image
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I'm not well enough to work even part time but not poorly enough for ESA (proberbly) I had a part time job (9 hours a week) 2 years ago, thing is its the fatigue for me that really leaves me floored, I was in a lot of pain just doing the 9hrs, I loved the job but I was useless for the rest of the week, not a mother or a wife or even me and my legs didn't so much swell but I couldn't bend by the end of the day (4+5hrs sat and sun) found I couldn't do some of the mental work properly as I was just so vague. However with the last 2 months of near constant sleeping and depression which means I'm not pushing myself very much at all means the pain is less, but as soon as I become active bang fatigue and pain is back.

Whilst I'm wating for result of medical I'm wondering if I should plan 2 days of work type equivalent activities and see how I respond, wouldn't it be nice to find I could (although I seriously doubt it) I need to know if I could, I need to know my claim IS genuine, its difficult because I am lucky that although my pain is constant (I explain it as been taken out back and beaten with a 2x4 !!! or when you have a bad cold for others to understand) but not as bad as some people on this website. The addtional pains in my muscles that are very painful is activated by doing things but its very confusing and difficult to expain to the DWP. I just feel lost and confused and I do wonder if its all in my mind. I suppose I dont like the thought of been lazy and there are times when maybe I could do more but I dont, this has a lot to do with DWP IB/ESA, if I do have a small achievement then I'm not allowed benefits and that has had a big impact on my self worth.

I just dont know where I stand.

xx

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BlueBunny
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fairytails profile image
fairytails

im in exactly the same position i work 16hrs if that a week and as you say by the end of it it floors me completely, i have a good boss whos mother actually has fibro so she understands me completely which is very lucky for me, i have put in my claim for dla and shes going to write a letter to back me up and also my doc is too but im really worried as my job isnt enough pay to cover living costs and dont know what else i would be intitled to for help! p.s never think its all in your mind its not the pain is real and the exaustion ! just try and read your own body and go with it ! itl warn you if somethings going to hit! hugs xx

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