1st flare up!!

[maddonna]

had a horrible weekend.... couldnt even put the toothpaste on my brush!!!! my son had 2 help me into bed and he's only 16.... i feel so guilty for him having to help me.... it should be the other way round.... pain is still hanging around my hips and fingers.....

[nadine1974]

my 8 year old used to be my carer, now i have an agency who come in twice week, i used to feel guilty too!

gentle hugs to you xx

[ember]

With the job of mum there will always be some form of guilt, it's hard not to feel guilty.

very gentle hugs.

[roxyroo]

Hugs and love to you xxx

[Lindz]

*hugs*

[jazher]

Hi maddonna,

I am sorry you feel this way, its not fair is it.

I too have my 12 year old doing things for me, i feel so guilty but its the looking after my other two is what i feel guiltiest for. She is always taking them to the park etc....

sending you hugs, kel xxx

[lyn-elliott]

my youngest son cared for me and he is disabled but we helped each other we would each do what we could and if i couldnt do things he would try and if neither 1 of us could do it his girlfriend did it we still laugh about it but i felt guilty my son now tells me if i hadnt have asked for his help he would have felt so much worse and i think the experience we had it brought us closer but i moved away so he could have his own life and a few other reasons but i still feel the guilt now i have to look after myself now and if i cant do it then it isnt done but i still feel so close to my son and him looking after me was the catalyst to our relationship he saw me at my worse and now appreciates that im not infallible and i am sometimes very vulnerable and he talks to his brother and sister who are both older than him and explains about my illness and everything else to do with fibro and he tells me he wouldnt have had our relationship any different except of cause that neither 1 of us have our different illnesses

love and gentle hugs

lyn

[sue247]

Hi maddona

Sorry to hear you are having a flare, but rest assured you will feel better than you do now hon soft hugs sue xx

[maddonna]

thank you everyone that answered me... the pain is hanging around my hips now so not walking very good... im taking my 6yr old daughter to Disneyland Paris tomorrow lol... hope i can walk properly there!!

[Hidden]

Hope you have a good time in Disneyland Maddonna, you are brave, it's hard isin't it? One day we will be rewarded for all our pain, hope so! xxx