i just wrote this on someone elses blog but had to share it aswell
thought it might give you a laugh lol
i just had to go up the high school for my daughter it was options evening ,had to take my stick which i hate ,and i saw this lady that i havnt seen in a long time
i got the " oh what have you done "
my usual reply "nothing ,i have fibromyalgia "
then she says "whats that "
i then exsplane in a quik reply the best i can
she then says "well you look good on it "
OMG ! its not somthing ive taken you numpty !
well ofcourse i didnt say that i just smiled sweetly and walked away lol
Written by
lynz
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I did laugh Lynz, the woman thinking it was a pill or something. It made me wonder if she was on something because it's such a strange thing to say.
I get the 'you look well' response all the time. I go out only to my Dad's, the doctor and the hospital but when I bump into people with my stick, I get the same annoying things said. I say 'well I hope so, I was up at 6 am this morning to try to make myself look normal'.
I like traylou's answer about the 'disguise' and will try the 'don't judge a book.........' too.
It's great that we can still have a sense of humour - sometimes it saves my life!
Christine xxx
Doh ! Some people eh ?
Reminds me of when my autistic son was little and prone to having melt downs in public. I got tired of trying to explain to disapproving people ( normally little old ladies ) that he was autistic and not just naughty , he looked so " normal " you see.
I felt like getting him a t-shirt with " I'm autistic " printed on the front !
I have the issue when the person I am talking to tries to write it down the millions of ways they have tried to spell the words, fibromyalgia, polymyalgia, fibrous dysplasia. Good luck I say, I've had to learn the spelling too and keep them in my memory bank, as well as the understanding what the words mean. I have people look at me and say 'Oh!, well you look good, why are you not in a wheelchair?'... ARGGGGGGHHHHHH Goes through my mind but my words are 'I get by the best I can and yes the crutches help, and the wrist splints yes they help they are not necessarily to keep my hands warm!' x
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