worried

[tofty]

ive only been diagnosd a year n had FM i wud say abouy 5 yrs i know im worse than i was a year ago but do u think we will keep on deteriating with this ,iam only 56 n wonder were i will b in 10 yrs time its very worrying coz i realize from all yr blogs n things that im no were near as bad as some of u .soft hugs to u all today Tofty xxxx

[Hidden]

Hello Tofty, Gentle hugs.

I was diagnosed 6-7 years ago but the Fibro had been building up from a very young age - 12 - For me it worsens with each passing year. I'm 50 now and dread what my future will be like when I'm 60. It doesn't bear thinking about. Especially as I'm now a Gramma to a fantastic 8 month old boy. If I'm having problems with anything to do with him now - which I am - then even a year down the line and any further grandchildren that may come along makes me so sad.

Carol x

[tofty in reply to Hidden]

hi cadee thanku for reply i know how u feel about the grandchildren i have 2 grandsons one 15 and one 2 the 15yr old is fab with me and is always saying ru ok today nanna bless him but my little owen bless him i can only sit wen i hold him coz he is to heavy for me and there is nothing i wud love more than to play rough with him but i cant so we read, play trains ,bake ,jigsaws things like that we have to make the most of things dont we hunni just give him lots of soft gentle hugs n kisses thats as good as anything xxxx

[Hidden]

Hi Tofty,

The thing about Fibro is it's such an unknown . It can get worse, it can improve, it can stay the same. No two people are the same . Some treatments control it in some people, and different treatments work for others . It's a question of finding what works for you ( not easy I know ) .

So if you look at it like that there really isn't any point in looking to or worrying about the future , enjoy the good days , rest during the bad days and never give up hope.

Gentle hugs

xx

[Hidden]

hi its funny you say that i was having a chat with my family at easter about this as i was diagnosed in july and i am worse than i wasthen i said the same i hope i dont get as bad as i have every year ?

but i try not to worry about it as you will end up making yourself ill over it

love to you diddle x

[butterflygirl]

Hello, tofty, don't think too far ahead, all of us Fibro Folk, have different,

health issues,luv and just remember you are very, special, don't think

about the negative, I know when we have frequent, bad days we have a hard

time thinking, it is ever going to get better, It does; we can have periods of

LONG remissions, where we feel really good and healthy,My arms are giving

you a very gentle hug, right now, take care, special lady,

Butterflygirl ********

[Hidden]

hi please dont stressfms will not kill you ( my consultent told me so ) we dont keep on deteriating with this we are up and down sometimes we get better and sometimes it goes away so ive been told .

I know stress makes it worse so try not to try and think if you have a good day or even a hour .. possitive thinking sounds a bit crazy but it does work ... also medication needs to be right and you need to find how you can cope ... mindfulness (meditation ) or any form of relaxation works really well ...

please be kind to yourself and have gentle dyslexic hugs x

[Ang01]

Hi Tofty, have read the answers to your blog and I;m sure you will agree they all make sense. I think the main thing in life in general is not to look too far ahead as none of us can predict the future, just live for today and enjoy as much of life as you can. Take care, love Angela xx

[tofty]

thanx for replys peeps i am a positive person so i wont stress n i will take each day as it comes its so nice to know ur all here for me and me for u soft hugs Tofty xxx

[Hidden]

I was only dx a few moths ago, I have cfs and syringomyelia, arthistis, spondilitis,Ive been ill for over 3 yrs, but havent been really well for nearly 14, its thought ive had fm for 30yrs approx, Im only 54 but feel like 100, over the last 3 yrs I know Ive got worse, every time I have a really bad few days I never recover what Ive lost,I am afraid I hate all this