this is not for sympathy..

[diane63]

This is all i have been told i have got wrong with me. saying it like that because all my friends, think i look ok so stop complaining.. so i never see them anymore.

fibromyalgia.... well u all know where all the chronic pains are.

ME

sleep apnoa

irritable bowel

arthritis in both knees

arthritis in left shoulder

clinical depression

back problems

frozen shoulder

also agrophobia

there is prob something else but my fibro fog has hit home lol

i am on fentanyl patches 75mg

oral morphine. when required

paracetomol

amitryptline

diclofenic

diazapam

just came off other meds

dont they see this is how we all live, everyday with so many things wrong with us...

hope one day everyone will understand. docs. dla..ect

[Hidden]

I think a few doctors seem to understand it more nowadays but the DLA people, I don't think they can have it or know anyone who has it and how much we suffer. The stories I've read about people applying for DLA and ESA on here have been almost unbelieveable.

It's a great shame when it's friends though and you don't feel you can see them anymore. So many people have no idea about it have they, I didn't understand ME until recently and I know a few people who have it.

We can only try and explain but if they don't want to listen or think we're not as bad as we say, what can we do.

Hugs

Sue x

[Hidden]

u rote that 4 all of us lv not just 4 ur sen...ppl dnt bleve cos they cant c like u say.my sisters who i dnt talk t fort i was a scrounger on benefits,until they saw how i was at my poor dads hosp bed...i had t cum ome they bleve now but 4 me its 2 late.it not that they dint bleve me that botherd me its how they felt bout me...ur rite i feel it will b a while b4 ppl bleve that Mr fibro n ME duz exist....i feel loads better now iv joind this site.<3 t all xx

[Hidden]

hi we all cam sympathise with you this is areal hardone for people to understand i often try to twist it how would i be if it was one of my loved ones and it is difficult to get but i am with you we all are on here love to you diddle x