DLA

[tofty]

been refused dla today peeps they said im not bad enough to get it ,how do they know how i feel ? only hope the person who refused me never gets FM .XX

[FionaP]

Appeal Tofty. Ask them to reconsider first. Look through the many posts here on DLA and get armed for the fight. Hard but worth it. Good luck

[kellydavies9]

it took me 6yrs to get dla and i still only get ower rate care. it takes the piss,

[Hidden]

I also say appeal to hun, you need to fight for what your entitled to.

I am fortunate to be capable of working and my symptoms are to the degree that i can manage to work but there many people who are unable to due to no fault of their own.

I fully support those people in need, who are applying for or already get DLA and i am honestly am shocked that so many of these people are refused.

Also the great difficulty people have, getting something that is suppose to be there to support people who need it.

I wonder if this is to do with lack of awareness, knowledge and understanding of

Fibro ? As we all know it effects people in many different ways, do they just assess physical capability ?

What about Fatigue, Fibro fog, Pain, just to name a few.

Sorry for all the questions, just am baffled by the many people who seem to not be getting the support they need. I know it is down to individual circumstance, but it seems it is happening frequently to people whom really seem to have needs that would entitle them.

Lets hope that this can change in future and their is more awareness of a condition that can be very debilitating to individuals.

Sorry for the ramble, but something i have been mulling over the last couple of weeks when reading blogs and I am very passionate about standing up for what you are entitled to.

I hope you do appeal and get the support you need.

Lou x

[Hidden]

oh dear tghis is all i seem to hear i am applying on 21 st may i am going to dial fro meeting that day and they help me fill in the forms but not holding out much hope for it but will try and if i am refused i will prob appeal and you should appeal if you think it is wrong you are entitled to so you do it love to you didddle x

[jazher]

Hi tofty,

So sorry you got turned down.

I got turned down last year and i asked why and they said it was due to my doc so i asked for a coppy of what they wrote, and they didnt even have my own doc fill it out. I was raging.

I asked them to look at it again and still got turned down. I had got worse since putting my claim in and i was due to see an immunologist so i decided to give up and wait until i had more doctors behind me. I am still not sure if i would get it next time but i will be doing again.

Good luck with appealing.

Sending you a big hug and plenty of positive thoughts on getting it.

kel xxxx

[Hidden]

lost at dla tribunal told there was nothing wrong with me

1 cfs

2fibro

3syringomyelia

4ank spodilitis

5 doubly incontant due irritable bladdrer and ibs

6 rapid deteriating eye sight

7 oesteo arthritis

having a carer twice a day

social worker getting me blue badge

being provided with equipment by re ablement

awaiting finance to put new wet room in

I reALLY DONT KNOW HOW ILL YOU HAVE TO BE TO GET IT

[Ebony]

Unfortunately its not really on how you feel, its decided on what you are able to do or rather not do. So how far can you walk with out discomfort, can you make a meal for yourself, can you have a shower or a bath.

If you decide to appeal look at the benefits and work site which you can access from this site. that site is there ti assist you in claiming ESA and DLA.

Good luck

[Sarah-Jane]

I was refused but told they would revisit a few months later. I could not believe they were making me wait. I wrote a long letter and emailed them telling them of the pain, of my problems doing things like walking, not being able to shower without someone in the house in case I slipped, needing a stool to reach the inside of the bath to have a shower, being trapped inside my own home and unable to go anywhere without support etc. They reconsidered without an appeal and I have DLA until 2014, the higher amount thankfully. Even then its not much, but it has allowed me to get a mobility scooter which I have found to be a life saver. If I feel down I go out on it with my little dog and feel a bit better or a lot better.

To anyone with FM please make sure you tell them of how your life is at its worst. They cannot see you and have to judge you on what you tell them. They are only human too and you need to give them a chance to show it. If that does not work, appeal. Get someone else in that department to look at your case and good luck.

Bug soft hugs to you

[sueuk]

I too have been refused most days my fibro is so bad i can hardly get out of bed , I also have arthiritis in my wrists and my right knee cap is crumbling causing severe pain i move around on my bottom most days but still no dla and my esa has just been stopped too

[Sassi]

Hi,

sorry you are having such problems. I have found that honestly writing down the difficulties of my life with fibro very depressing. I had to make my mind up that I would find it distressing, and also got help. It is the best thing I have done.

Please don't forget that however well you may be coping you are probably depressed as well as all the physical stuff. This is something you must put down. Latest research shows that Cognitive Behavioural Therapy (CBT) is as good as, if not better than any pills. Don't know if you are like me but any pills for anything now, bring me out in a rash, make me feel sick and give me a constant 'hangover'.

My CBT does seem to help if only with adjusting to the problems I have. My Practioner is good too as he has MS and uses self-hypnosis to manage his times of pain. I am not glad that he is ill but it does help me to see that he has a self-management system that is working for him.

You have to explain all the different types of pain you have. I have three, bad 'sunburn' pain in my shoulders, neck, back; the skin pain that means even wearing clothes can be problematic - like when you have flu'; and the sharp, sudden, burning/stabbing pains. You have to explain how each type of pain affects your life. Are you confident enough to hold kettles, pots full of water, hot or cold? I am not because of the sharp, sudden pain that can affect any part of my body at any time.

My head hurts too but I haven't worked out which type of pain that is, as it changes often, and as for the Tinnitis ....

The information out there is that anyone applying for DLA do far better when they have help from a Welfare Worker or CAB etc.

I have an award, but I had to go and see my GP and I asked for help with the depression which I have. DWP refused me, I asked for a reconsideration, they still refused me. I asked for a Welfare Worker to file an appeal. DWP decided they would reconsider again and sent out a Doctor. Less than a week later I got an award, indefinately. It is not good enough and does not take account of the pain I am in for mobility, so I am still going for an appeal. There is some

danger because the whole case is reviewed and it is possible to lose the award already given, but I am willing to fight on.

Two sites I have found very helpful are the Benefits and Work site and guides and the Disability Alliance, disabilityalliance.org/f23.htm. They both explain that you have to show you reasonably need help, not that you are getting it or even want it. The Benefits and Work site you need to pay for, if you are anything like me even a small amount of money is difficult to find so I am willing to send a copy of the guides if you PM me.

Sorry to go on, but I know how disheartening all of this fight can be and I hope someone will find it helpful.

Love light n serenity

[66Amanda66 in reply to Sassi]

Hi this link doesnt work

[Sassi in reply to 66Amanda66]

sorry I've just checked again, disabilityalliance.org/f23 If that doesn't work go to the main site and click on 'claiming benefits', and on the next page click on 'fact sheets', on next page scroll down to disability living allowance. There are a lot of other useful links on there too.

[fairycazzie]

hiii everyone, i so feel for all those refused. I do not claim anything as still waiting diagnosis but i tell you i have had hell on earth and back ! worst days are 'unable' to even make a cuppa (sad but true) lay up all day but the 'so called decent' days are managing and driving and chauffering the girls i have to help keep my work going as its income that pays the mortgage, but you have to persist and never give up!!! if you have to give your very worst days do so!! put aside the decent days. I am still in limbo of MS and fibro but doctors will not confirm anything until i see Neurologist! which is so flaming annoying but just tell me to think 'positive' errrm that is all i do do cos i think of those terminally ill and those who are paralegic (not spelt correctly) and those with other stuff, so i consider myself a little more able not matter what suffering goes on, but desperately know things are not rite!! They all tell me in docs nothing we can do for you unless you got any other illnesses we can help you with.. what do you mean i ask??? a COLD, flue, water infection chest infection etc etc.. I am suffering!! and i sob like a fairy too when i see them cos i end up caving in because i dont want my children to see me that way! all i say is i know i will never come out of what this is and beyond the end of my tether to say the least! if you have simple problems like i do ie taking washing out of machine, doing your hair, walking more htan 10 mins without having to hold on to something, doing any house work etc..you obviously have disabling issues!!!!! keep at them!! xxxxx sorry to bring myself in to that but i really have a lot of sympathy for everyone on here and what you all have to contend with xx

[sore_and_sad]

I got DLA for my fibro without even appealing. I thought this was unheard of and that they turned everyone down! I had a support worker help me fill in the application. I would strongly recomend you visit the CAB regarding an appeal.