Is this possible? Fibro reason found in brain?????

[Sue15197]

anapsid.org/cnd/diagnosis/b...

[Ermintrude75]

This sounds good. Do you think they will give you a copy of the report after the test to show those non believers in our lifes

[KatiMaiTay]

I had a Eureka moment when I heard about this!!!! I printed out the article and as I had an appointment to see my GP I thought I would take it along to show him. I thought he would be interested in reading it but he just laughed and then said they have been doing theses so called scans for years and the majority of the Medical Profession here in the UK thought the findings to be nonsensical, he went on to say that there was no cure for FM and he could not for see the day when one would be found as there were so many different symptoms attributed with it and surely if a possible cure had been the man/woman who produced it would be very very wealthy and we all would be taking it. I was quite deflated and that's putting it mildly. I have been on a really bad flare up for over three weeks and I am totally exhausted and to top that I have just got my Limited Capability for Work Form which I have to submitt

by the 24th April my GP has told me to get someone from the CAB or a Welfare Rights Advisor to fill in the form for me he said that ATOS will write to him with regards to my FM and other illnesses and he will give them all the info that they require so It was not worth my time or money asking for a letter explaining my symptoms the cost of the letter should I insist would be between £15-£20 but it will cost nothing if I let ATOS ask them for the information. Has any of you had your GP react to this info in the same dismissive nature please let me know.

[LindseyMid in reply to KatiMaiTay]

This information may help:

fibroaction.org/Pages/Benef...

Unfortunately dismissive GPs are commonplace where Fibro is concerned.

Make sure that you get a copy of the report your GP says so you can check what he says. I once had a GP who said I was fine when the DWP contacted her! This should be in with your notes. Your surgery can charge you a small admin fee for photocopying, etc but you have the right to see your notes at any time. So if your GP will not let you see his report for free, I would ask to get a full copy of all your notes (both paper and those that are kept electronically) while you're at it.

[LindseyMid]

This is now accepted knowledge amongst doctors who know what they're talking about with Fibro.

What fMRI has proved is that the hyperalgesia (hypersensitivity to pain) with Fibro is real. Unfortunately, this doesn't mean they show the cause (the research with dopamine PET scans and flex MRI has helped more with that) or a cure.

We are tending more and more to the belief that comprehensive diagnosis is the key to symptoms control for people with Fibro. Some top specialists think that Fibro is eminently manageable, but the issues are that:

1, most people struggle to access good treatment options or can't use them and

2, almost more importantly, people do not have all other possible causes of their symptoms properly identified. It's unusual (maybe even impossible???) to have Fibro and only Fibro. Even if "all" you have is Hypermobility Syndrome (HMS) and Fibro, then you need to have the HMS diagnosed and properly treated, or your symptoms will not be controlled no matter how many Fibro treatments you take!

Some research in the US being done by Dr Holman has suggested that another complication that needs to be addressed is Positional Cervical Cord Compression as a cause or perpetuating factor in Fibro. This can be managed through physical therapy and doing this may mean that medications become more effective.

Comprehensive diagnosis is assumed in both the 1990 and 2010 diagnostic criteria for Fibro (everything else has to be ruled in or out before a Fibro diagnosis can be made under both of those criteria), but it is rare in real-life in the UK.