symptoms: Im very interested in what... - Fibromyalgia Acti...

Fibromyalgia Action UK

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symptoms

10 Replies

Im very interested in what symptoms you all have here a list of mine

INTENSE PAIN EVERYWHERE

CHRONIC ITCHING

MUSCLE CONTRACTION

DOUBLE VISION

PHOTOPHOBIA

IBS

IRRITABLE BLADDER

SEIZURE

MUSCLE TWITCHES

TREMORS

FINGERS AND TOES MOVE INVOLUNTARY

INTOLLERENCE TO WATER[HAVING A BATH CAUSES INTENSE ITCHING]

PROBLEMS WITH ORGASM

BALANCE

NEURALGIA

COGNITIVE FOG[ EVEN TYPING THIS IS SO HARD

WORD FISHING

MEMORY

PINS AND NEEDLES

AND iM SURE IVE FORGOTTEN SOME

10 Replies
Butterfly54 profile image
Butterfly54

Restless legs

reynouds syndrome(where your hands and feet are so cold)

Arthritis

Just a few extra hun it`s a real bummer and so hard to exsplain half the time.You want to scream when asked how you feel,but we all smile sweetly and say "I`m fine thanks how are you".

All we can do is hope tomorrow is better for all of us.

Love and Hugs to you.xxx

melissaVonD profile image
melissaVonD

i have all of your symptomes, pluss strange sensations on skin, like hot or cold patches, feeling likr icy water is running down my legs. sometimes my legs or arms will fall asleep for days, eye twitches, facial numbness. urrinary incontenance, all my nails and hair fall out. i could go on and on but typing is soo hard, my hands are soo cold i cant get my fingers to move xx

Hi yes all of the symptons at one time or another i have and its awful but i just get up every day and then see how i feel and what i can do and cant do its awful but i tell myself some people are worse off sometimes it works sometimes not you take care anfd love and hugs diddle x

moneybags profile image
moneybags

Hi ! I too have all the symptoms you experience plus others of which i would like to know if anyone suffers with cramp in toes and legs almost everyday day

at sometime plus a really stiff nek and sore shoulder blades................

x keep on going its the only way.....hugs x

Hi i have the following, at different times and to varying degrees, like us all i have good days, so so day, bad days and unbearable days :

Fatigue - however restless nights

IBS

Headaches - very intense

Exstreamly sensitive scalp, brushing hair is very painful

Intense pain in right hip

Restless Legs and lately arms

Twitching in legs and arms

Cramp in legs (like you monybags), sometimes they are so intense

Fibro Fog - Forget things, muddle words, cant express my self, poor concentration

All over muscle pain

Weak ankles / sore feet - painful to walk after resting for a while

neck pain

pins and needles in hands and feet

Feeling of being tearful ( sure is in response to being tired and constant pain)

Thats the main ones, is so hard isn't it , but i agree keep going is the only way. x

Melissa - I hope you don't mined me asking - you say your nails fall out, my toe nails always fall off ( like they are shedding a skin - new nail underneath) and have done for couple of years. Use to treat for fungal infection but not that GP said no infection, just weird they fall out. So wonder why, do you know if it is a symptom of fibro?

lou x

anjie profile image
anjie

Tiredness

tolerable pain everywhere

intense pain in random places

Raynauds

IBS

Irritable bladder

slight incontinence

headaches

problems with vision

bruxism

possibly TMJ

intense itching

RLS in legs and abdomen

muscle twitching

forgetfullness

word fishing (as you put it)

cramp

pins and needles

legs and forearms go dead easily.

tinnitus

I also get this thing where my skin hurts...can't stand even the slightest touch.

insomnia

Interesting to see the intolerance to water....I'm the same, I can't do baths, cant stand the heat, can't stand the cold getting out, can't sit for long because RLS kicks off and it always makes me itch.

I think that's it....

anjie profile image
anjie in reply to anjie

oh I forgot the depression...tearfulness.

Rachellouise profile image
Rachellouise

What is word fishing? I am a laughing stock lately as I can't say my words right. My vision is frightening me too.

tettridge profile image
tettridge

Hi All

What Lou said about good days, so so days, bad days, and intolerable days is so true.

I can have a good day with the pain but I sometimes have such shakes in my hands I can't hold a cup of tea (now that is really intolerable)

Arthritis is bad in al my joints but it does not show as rheumy does, mine is just painful but everything looks ok so I get the feeling that people do not realise how painful osteoarthritis is just because my fingers are not swollen or out of shape.

I always have a weird sensation on my face, I can touch it heavily and it is fine but if I just touch it lightly then it really hurts, it is like when I had sinusitis and the sensation started but has not stopped, the sinusitis has gone year or two ago. I have tried cleaning them out (where you bend over and fill you mouth with water and it comes out your nose) but that does not help, it makes no difference to it.

Yes to the Fatigue, I am always exhausted, not sleepy tired but where everything is a major effort tired.

The restless leg symptoms ant with Quinine, I am no sure if it was the quinine or it just stopped but when ``i had the restless legs it was unbearable, I would sit on them and wait until they went to sleep and then got in bed and tried to go to sleep but the pins and needles would come and wake me before I could get to sleep, but it did work once or twice.

Headaches. I used to get migraine a long time ago and these are not to that level but close.

tolerable pain everywhere

intense pain in random places

Cramp in hands and legs twice daily at least.

Typing this has taken over an hour because I have had to stop so often, partly because of the pain in my hans and partly because if i do not move every ten minutes or so then it really starts to hurt all over.

But apart from that and having to have a bronchoscopy in a couple of weeks I am fine.

I will not let this beat me I have so much to live for and I really do not want to miss out on anything.

Take care and kindest regards

Terry

Pain all over

Itchy skin

Muscle contractions

IBS

(PROBLEMS WITH ORGASM !) lol not had one of these for years so cannot comment.

Pins & needles

Swelling legs and ankles

nerve damage

Urge incontinence

Arthtitis

short memory/ confusion.loss

Balance

loss of grip

prolapsed discs x 3

Sciatica

Cervical Stenosis

cervical radiculopathy ( arm pain due to neck )

nerve damage

Depression days!

My motto however is there is always someone worse off so I try to live each day as best I can however I do have depression bouts when I cannot do what my mind is telling me to do.

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