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Fibromyalgia Action UK

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anneliza profile image
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Hi everyone,

I have been reading lots of the blogs of which has been helping me understand that I am not alone with this god awful illness. I was diagnosed in 1998 with fibro. Nobody had heard of it and nobody took me serious because I did not look ill. My family still do not understand it fully. Over the years I have been to lots of specialists all saying that they are sorry but meds and a life change is the only way to cope. Up until 2009 I worked I was made redundant 6 times which didn't help. My esa benefits are also stopping in April. So what do we do, stress makes the fibro worse so I am now on Fluoxitine.(antidepressant). My condition has never gone away and it is hard giving up the thinks I used to love doing, Gym, walking, dancing and going to the cinema. One thing I have learned is to do thinks in small spurts. If I'm tired stop and don't feel guilty when I need help. I've also lost a lot of friends but the ones I have left are true friends

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anneliza
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Well welcome to the club!!! yes you are right it is an awful thing especially when you look ok. But like you i just get up and do what i can when i can it is an awful thing when you have to give things up i too loved going for 4/5 hour walks and that now is 5 min up road with my little dog, good job he is little and does not need much of a walk . i too have got fantastic family and friends although i dont think they fully understand this fibro they do support me and help me so i am lucky ther , but if friends drop off and get fed up with you they are not true friends are no good to you, oh well i hope read alot of the blogs and you will see we all have quite a laugh on here at times at ourselves and each other and also we get lots of tips and advice on different things although ultimately you must always seek your GP s advice . well welcome and hope to speak to you again love and soft hugs Diddle x

welcome anneliza,

welcome nice to meet you. oh how i connect with your sentiment. my family try but its up and down all the time. its been hard adapting from a career mum to one so disabled. anyway i don;t want to go on about me just wanted to say hi and look forward to conversing. lindsey and her team have done a great job with this site. check out the meds charts, especially as we all have to educate our doctors sadly. hoping as things like this progress life becomes more sympathic and understanding to our sufferings.

big hug

happe

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