What benefits am I eligible for - Fibromyalgia Acti...

Fibromyalgia Action UK

60,238 members67,461 posts

What benefits am I eligible for

Magpie68 profile image
22 Replies

Hi, 1st post. Can someone please advise me on what benefits i could be eligible for. I was diagnosed with fibromyalgia some time ago as well as being type 2 diabetic. I have no idea how this all works. Thankyou

Written by
Magpie68 profile image
Magpie68
To view profiles and participate in discussions please or .
22 Replies

not everyone is entitled. Depends on savings, some benefits depend on income and savings (PIP) and not all conditions even diabetes and / or fibro will get benefits. Many people have these conditions and don’t / aren’t entitled to benefits.

Are you working?

Dizzytwo profile image
Dizzytwo in reply to

Hi there, just to let you know PIP is not a means tested benefit xx

Momo

in reply toDizzytwo

Ah yes I was thinking of UC

Magpie68 profile image
Magpie68 in reply to

No not working at the moment.

in reply toMagpie68

Do you have savings, because if you claim UC that is means tested. Try looking on the GOV website.,they will want you to keep you to commitments to look for work

Janettewhitelaw profile image
Janettewhitelaw in reply to

Pip is a non means tested benefit could apply for that. And esa is for people who are sick you can get both at same time bettter to apply for esa first in case pip takes to long

Dizzytwo profile image
Dizzytwo

Hi, it all depends if you fit the criteria for claiming benefits. It makes no difference what illness you may have. It depends on how that illness effects you on a day to day basis.

Having diabetes and fibromyalgia does not automatically entitled people to receive benefits.

I f you think you are entitled to claim some sort of benifit you could speak with the benefits advisor at FMAUK . You can find the information on the link below.

healthunlocked.com/fibromya...

Momo

in reply toDizzytwo

Best explanation I have ever read about benefits.

MaggieSylvie profile image
MaggieSylvie in reply toDizzytwo

The irony is that without a diagnosis, you wouldn't be eligible for a benefit based on symptoms alone. Or am I wrong?

Dizzytwo profile image
Dizzytwo in reply toMaggieSylvie

Hi, Maggie you don't need a diagnosis to claim PIP.Unless its changed you may need to provide evidence that shows how your condition affects you on a day-to-day basis xx

MaggieSylvie profile image
MaggieSylvie in reply toDizzytwo

That's surprising. I can't see the jobsworth people accepting that someone is in debilitating pain, without a diagnosis, but just - can't get out of bed, walk, open kitchen cupboards, etc.

Dizzytwo profile image
Dizzytwo in reply toMaggieSylvie

They need to send in evidence of their health issues. Any paper work from specialists or GPs etc they may have seen. That enables them to check it out if they wish to.

So rather than a diagnosis they do need to provide evidence.

MaggieSylvie profile image
MaggieSylvie in reply toDizzytwo

So it's unlikely that they would be undiagnosed by the time they have gone through all of that.

Dizzytwo profile image
Dizzytwo in reply toMaggieSylvie

It could be. Not everyone gets diagnosed with a specific illness. But pain is pain and it effects everyone differently. Some don't have evidence they just have the testimony of their GP. That's why all claimants go through a Face to face .

What you need to do

Apply for PIP

Provide evidence that shows how your condition affects you

Attend an assessment if you don't have a terminal illness

What you can provide as evidence

Letters or reports from a medical professional

A diary you've been keeping updated

Evidence from health professionals like your doctor, physiotherapist, or occupational therapist

What PIP is based on

The level of help you need because of your condition

How your condition affects your day-to-day life

MaggieSylvie profile image
MaggieSylvie in reply toDizzytwo

I'm thanking you for others, not for me. I'm beyond PIP, all aged and diagnosed, suffering from other conditions. It was just an interesting discussion.😊

Dinkie profile image
Dinkie

If you are referring to PIP then it is not the diagnosis that will decide whether or not you are eligible it is how mobility and/or your ability to carry out daily tasks is affected by your health conditions. PIP is not a means tested benefit so it does not matter how much or how little you earn/receive in payments it will not affect the outcome of the application. There are plenty of sites where you can attempt the PIP claim form and it will calculate whether or not you would gain sufficient points to get the award. Or contact our benefits advisors here for further information. Fibro affects people differently and is individual, some have pain 24/7 at a very high level and some do not. Some have severe mobility issues and some do not.

Concerning other benefits without knowledge of income etc it's hard to say. A visit to CAB or Turn2Us or Scope or the HU benefits advice will be able to help.

Giraffegreen profile image
Giraffegreen

Hi, there is a website called turn2us which I've used before which can sometimes help with benefits. Your doctors practice may also have something called a social prescriber which can help you

Fibroguy66 profile image
Fibroguy66

HiYou maybe able to get pip but they will need a doctors letter or even better a hospital 🏥 consultants letter stating all your medical issues & how it affects your quality of life etc.

Don't know if the rules have changed but they used to ask you if you can walk 20 metres with or without a walking aid and without stopping to sit down for a break.

20 metres is the length of 2 coaches parked end to end in a line.

Lillylilac profile image
Lillylilac

Hi Magpie68PIP is personal independence payment. It is supposed to be there to help you live an independent life. You can get it even if you are working or have savings. You don't need GP letters or hospital letters but they do help.

The form is long and can be hard to fill in. If you do decide to apply then get help as it does depend on what you say and how you say it.

I did mine with the help of benefits&work.

I found them so very helpful. However there are others who are just as good.

Good luck and big hugs

Lilly x

Magpie68 profile image
Magpie68 in reply toLillylilac

Thankyou lillylilac. I'm making an appointment with CAB x

Dizzytwo profile image
Dizzytwo in reply toLillylilac

Hi there, from what I've read The chance of been turned down for PIP without any kind of medical evidence is very high.

you usually need to provide medical evidence to support your Personal Independence Payment (PIP) claim. This evidence shows how your condition affects your daily life and mobility.

What evidence can you provide?

Copies of clinic letters

Reports from specialists

Copies of prescriptions

Occupational health assessments

Social care needs assessments

Education records

Care plans

Best wishes

Momo

releasethemagic profile image
releasethemagic

You should use a benefits calculator. It will tell you what you can claim. benefits-calculator.turn2us...

Not what you're looking for?

You may also like...

Benefits......what am I to claim

Hi all, can anyone shed some light on what I am able to claim as getting quite confused with the...
vikki profile image

What help, support and benefits am I entitled to?

I was diagnosed with Fibromyalgia in February 2012, but have probably had it as long as 20 years,...
LovelyLiz profile image

Applying for benefits

Hello all, I would really appreciate some help. I have applied for pip before but did not get...
Dendarling profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.