Toilet needs

[Pastafox]

Hi Any 1 else find there toilet needs have increased or even mess your self I struggle every day with leg pain due to PAD fibro has made it much worse constantly have the urge to pee And as for #2 I can go upto 4x a day no warning it just happens stay safe all ...

[Blue-52]

hi, yep, #2 mornings 6am right through to 7:30, then let’s up a bit, then , 9am start again after cup of tea, through to lunch time, then try eats, hey presto, it says goodbye, I take Colpamin, but it takes up 2 -8 tablets too slow it down, I do have accidents, due to mobility, but when I know I’m in a flare, I have to wear the dreaded knickers , just to save on accidents, getting to the toilet,I’m lucky to have such an understanding husband, still embarrassing though, sometimes my bladder will just let go, it’s amazing how you feel it do it.

[Princess61]

Yes I'm the same, most times I can't get up quick enough due to pain, to go to the toilet,so have leaked and have to change frequently 🙄x

[Wobblygirl]

I have had continence issues with lots of accidents, so spoke2Doctor who transferred my care to a continence team...It was great to just talk abt it openly!!!

Advice+physio support was given and it did help!

It's another set of muscles that fibromyalgia affects, isn't it?

Recently it's become bad again, w a lot more accidents and IBS causes accidents too!

It's definitely not an easy burden2bear!!!

It's heartbreaking to cope with this alone. Check if you can be seen by a continence team in the community...

Good luck

Wx

[skit]

Hi

I like Wobblygirl have been referred to the incontinence team. Regular delivery of pads is a boon. I still have accidents but not always needing change of underwear. There is a drug that can help with urge incontinence for urine.-Mirabegron

As we all know Fibro waxes and wanes so it does make toilet habits harder. Thank you Pastafox for sharing this sensitive topic. Gentle hugs all round.

[Hyacinth64]

Hi Pastafox, my husband has a different condition which causes autonomic neuropathy. It leaves him with little to no control over his bowel and frequently has to make a dash for the nearest loo which is awful when you're out. He has serious mobility issues as well which doesn't help. He is prescribed Loperamide to stop the resulting diarrhoea which does help a lot. Maybe it would be worth asking your doctor about it or something like it. Duloxetine is good for stress incontinence so you don't leak pee all the time. I hope you can get something that helps you.

[Pastafox in reply to Hyacinth64]

I also have PAD my left leg is blocked the only thing that keeps it alive is my vains and walking was told by the Pad clinic and pip to walk through the pain the Pad clinic also suggested I get a mobility scooter at it mildest it feels like am walking on a hard crumpled sock with shooting pain up my leg and into my hip and groin and it tears through my lower back I would do my best pushing through the pain now with fibro if I try and push against it it kicks back very hard it feels like it punishes me for pushing through

[Sarahvit]

Hi Pastafox,

Yes I have the interstitial cystitis (IC) which makes me need to us the restroom quite frequently especially when I am active such at work. When I am resting on my days off sitting it isn’t as bad. I just realized Friday that standing up wakes up the bladder. As far as #2 goes I have the opposite problem. Chronic constipation has been an issue for decades. I had IBS earlier on in life where I went from diarrhea to constapation during my menstrual cycle. I went through menopause early in life so I am thinking that was when it switched over to just constipation. That was 22yrs ago. Apparently stress effects when you go through menopause because my identical twin sister went through menopause 10yrs later. I guess I can answer that question “what is it like to have a twin sister?” It gives me and researchers the opportunity to observe how stress and other factors affect our DNA resulting in the development of fibromyalgia, CFS/ME and other diseases. I have over the years picked up a packages of incontinence pads to catch urinary leaks. The only time I had the other problems were with colonoscopy preps plus the use of laxative. That is embarrassing. I know that IC is common with fibromyalgia. I was diagnosed with ulcerative colitis back in 07 but it has been in deep remission for the last 10yrs or more.

[saxcat]

Hi yeah, and yeah,

I got a toilet in a seat thing from the OT for when I can't get to the toilet (sorry forgot what their name is, a bidet?)

But I am in a different property now have a powerchair so have phoned OT on Friday to come take it back, but hoping I don't regret it,

But I'm thinking/hoping because the toilet is right by my bedroom now and I have the powerchair I will be able make it to the toilet.

I also use them uncomfortable kniockers too.

In winter the constant needing to pee is worse, I hate if I have to go to appointments in the car it is so bad on journeys.

My doctor said my bladder isn't emptying fully when I go even though it feels like it is each time I go.

Hope this makes sense.

[Bantamdyno in reply to saxcat]

What do you have to drink 🤔

[saxcat in reply to Bantamdyno]

I have 3 coffees in the morning then water if I remember to drink it, I don't drink enough water lol.

then in evening I have either milk or chocolate milk, or sometimes a smoothie

[Bantamdyno]

It was the coffee that caused my problems I still crave it but never drink it, milk drinks are fine but fizzy drinks aren't.