Has anyone seen a neurologist for the headaches they suffer from?

[Rach1977]

[Twiglet]

I have but as far as I know didnt find anything awfull, its as they say "just the fibro" but if you feel your are something else ask to see one anyway. xx

[isobell]

i suffer constant headaches,however, I also have the crunching sensation in my head and neck at night, dont know if this is in any way related to f/m...

[Rach1977]

I have whiplash in my neck and suffer from occipital neuralgia, which is basically where the occipital nerve becomes effected by inflamation or anything else that may be pressing on it. It's really effecting my eye so badly and having researched medical practise in the USA they seem to have better treatment ( which i think we all know anyway), however I am just a bit miffed that my GP has not suggested anything more. Oh....yeah maybe it's something to do with money and its not prescribing me drugs.....!!!

[Fibro-hater]

Hi there Rach, I too suffer from terrible occipital pain, which only co-dyramol seems to touch, but can only take at night because of the sedative effects. What do you take for yours please? What really sends me crazy is the most oppressive feeling of pressure in my ears, does it effect you that way.....plus continual whooshing noise, which varies in volume. It's getting worse, makes me want to scream. I have never seen a neurologist.

Very best wishes Annette -x-

[Frotbanana in reply to Fibro-hater]

Gosh that whooshing noise is terrible hey? I have forgotten what it is like to hear silence because beside the tinitus I, like you, have a horrible whooshing noise but also a vibration sensation in my brain. x

[Rach1977]

Hi Fibro Hater, I love that name!!!!

I have taken so many drugs it's un real, however nothing works and gets rid of the pain. When it is at its worst like last week I raided my drugs box, took about 10mg diazepam to relax my muscles and dihdrocodeine 60mg. I was off my face!!! My 10 year old son had to get me up the stairs. i just had enough of the pain which had been on going for 3 days with no breaks inbetween!!!

I don't get the noise in my ear, that does sound horrible for you. I know that ear pain and the headaches are a common symptom of FMS. A lot of people call them migranes, however having experienced migranes where you get an aura and then the pain, my headaches are not the same at all.

I have seen and read about operations they undertake in the USA to release the nerve.

Have you ever had an occipital nerve block? I have, it was horrendous. I lost all my senses and couldn't speak after. the nurses were telling me to sit on the bed however I was unable to tell them that i couldn't move!!!! I just think I reacted badly to it.!!!!!!! If you have a nerve block and it reduces the pain by atleast 60% you can then have nerve denervation, which basically deactivates the nerve. however as i had no pain relief from my block they would not do it!!!

I really want to see a neurologist to ask for futher advise as I can't carry on with the pain.

Let me know what treatment you have had , if any xxxx

[Rach1977]

Thanks Lynn I have PM'd you xx

[Rach1977]

Oh no sorry to hear you are having nasty headaches and soreness. How pants!!!!! Lets hope they stop soon! You don't need more on top of everything else!!

I see what you say about the aura, I have had migranes with the tinyest of auras and massive pain and vice versa. The best was when i was on nights at work, needed to go and see a Arab restaurant owner who had a problem...i got there and could only see half of him. He must have thought I was a right idiot and i kept turning my head to enable me to see him!!!!

The pain in my head now is not like the migrane pain suffered before. It is pressure, sensitivity and when I think about it it is actually hard to describe. All I know is that it flipping hurts !!!

I had my nerve block at poole hospital. Done by Dr Ahmed , a pain consultant who is lovely. i think i just had a bad reaction as it was sooooo painful.

if the pain stimulator is the same sort of thing as a friend of mine had i don't want to. Is it placed under the skin? xx

[Hidden]

I went to see a Neurologist years ago because at that time I was having migraines weekly. After each attack it took about three days to recover only to get another one! I had scans etc., but nothing was found. I still have migraines but thankfully every few months, I take medication to help prevent attacks, and it's certainly reduced the amount I get. I hope you get the help you need soon for your pain Rach, it sounds horrendous for you. x

[dawny]

lately i have been very sensitive to loud noises, dont know it its the meds causing it but its the most wierd feeling