Fibromyalgia

[Fabricia]

Hi,I'm 54 been complaining from 2019 about diary pain,so they discovered gout, after artrose, and month a go I had enough with pains,insomnia, always tired, and all sintomas what I was reading about fibromialgia, so just now the doctor from my GP told me I got fibromyalgia, He gave me Amitriptyline 25 mg what help me sleep little be better, but didn't work with my pains. I'm working on nights,5 nights 10 ,12 hs and for years I just go to work and back to home and stay in bed ,no social life,I'm struggling to cleaning my house,driving ,my daughter gave me a little help,I should asking to go to specialist or just go back to GP and explain the medication just doesn't work? Thanks a lot

[Loobielu]

Hiya, like me your super young (!) and it's unfair and frustrating isn't it. I was also put on amitriptyline and found they helped the sleep but not the pain. After taking for a few months I decided to come off them as I was getting side affects too (can't remember which ones, brain fog is a real beast). I do remember getting the withdrawal though! Perhaps I should have weaned off them but GP didn't suggest this! I used to be a carer and those 12 hr shifts are an absolute killer. Without pacing you are always going to be on the back foot no matter what medication you take. I hope you find something to help. Take care x

[Fabricia in reply to Loobielu]

Thank you so much for your reply, it is really frustrating, when I said Im in pain,people just don't realise how much painful it is and never understand that bad we feeling, just who in the same situation can really understand, it's nice on here we can share everything about fibromyalgia, take care as well😊😉

[Seascapes31]

Hiya, I'm just wondering if you have thought of applying for PIP if you haven't already?Sending hugs and best wishes xx

[Fabricia in reply to Seascapes31]

Hi, no I haven't applied, I'm full time worker,more then 50 hs weekly, I don't think I'm entitled , but thank you for your reply 😊

[Purple_Badgers in reply to Fabricia]

Hi Fabricia, PIP is not a means tested benefit, which means that anyone can apply, no matter if you work and what you earn. It is awarded based on how your illness or disability affects your daily life. You are asked to describe how much you can and cannot do, what aids you rely on, whether you require assistance, medication or special adjustments in order to live, travel, work and socialise. (It is best to use your worst days as an example, so the assessor can understand all the problems you face.)

If you apply and you are successful, perhaps you would feel able to reduce your working hours? 50 hours or more is a lot- even for someone who is “healthy”!

Take care x

[Fabricia in reply to Purple_Badgers]

Oh,thank you so much for all informations you gave me,for long time I'm struggling to do all that hours,with a lot of pain killers for all this years,English is not my first language, but I will be asking my daughter to help me understand how can apply for a PIP,thanks a lot😊

[Seascapes31 in reply to Purple_Badgers]

Yes, I suggested pip as a way to reduce your hours, worth considering x

[Fabricia in reply to Seascapes31]

Thank you 😊, definitely I will apply

[Seascapes31 in reply to Fabricia]

Get as much help and advice to enable you to. Complete the forms as they require, that helps you get the award you're entitled to

On Facebook there's a PIP and Universal Credit support group plus a group called Fightback4Justice who have examples of Completed forms you just pay a small fee , also this support group we are chatting on now also has its own benefits help, best of luck 🤞

[Fabricia in reply to Seascapes31]

Thank you soooo much 🥰

[Seascapes31 in reply to Purple_Badgers]

👍

[PinkMarshmallow]

Hi Fabricia

I'm afraid I too didn't continue with Amitriptyline.

The side effects of brain fog etc were too much & they weren't helping me with the pain.

I'm sorry to be so negative & I have yet to find something that helps me other than taking co codamol as I don't like taking too many of these either.

I have now been diagnosed with a leaky mitral heart valve & am waiting to see a cardiologist.

All best wishes to you x

[Fabricia]

Oh,sorry to hear that,hope you have your consultation soon and everything goes well for you 🥰

[Health8472]

Hi all, I've been told by a friend who knows 2 people with fibro (plus me) all went on Amitriptyline, about 30mg at night. Wasn't working or side affects of heart palpitations. The next medication to ask the GP about may be Gabapentin. Nerve relaxing. Not tried myself...yet. Yes the brain fog didn't help finding that!😅All the best, Health.

[Fabricia in reply to Health8472]

Thank you,yes I got a heart palpitations aswell, I have to return to GP on 15,so I will be asking about Gabapentin