I'm finding that Gabapentin helps a little bit with pain in the morning. Is this right ?However my mood is considerably lower. ?
And I still can't sleep meh.
I'm getting over my cold yey.
My poor carer has a painful foot and ankle. Nerve damage from 2 yrs ago and black toes from the weekend.
Id love advice on the ups and downs of Gabapentin and pregabalin ? I'm so unsure as to what to do next.
Hugs to you all 😀Dawn
Hi Dawn, I've been on gabapentin for yrs, and yes it helps with the pain, but the down side are it lowers your mood, not quite depression but it can it's one of its side effects. Over time the amount you need will go up but it dosent begin to make you nuts. Lol but you will feel like your rattling. I'm on noratriptaline which is aimed at specific nerve endings, it helps but both do keep you awake so talk to your Dr as they should be able to give you an anti depression tablets to help send you to sleep. Keep strong and rember your never really alone ppl here will help.Sally
Hi Sally😃,Thank you for your reply 😊.
I already rattle lol.
Being bipolar they won't want to give me a stimulant.
I take venlafaxine as a an antidepressant.
The Nortriptyline might be good for my carer tho. So thanks for that🤗
I'm happy to hear that Gabapentin can work. I've mainly heard bad things.
I'm currently reducing my morphine as instructed by my Gp meh.
How are you sweetie ?
How are you feeling?.
Again thank you for your advice, everything helps.
Have a good day if possible😃😍🤗🤗🤗Dawn
I take 1 in the morning along with other painkillers then 1 at night and straight to bed or I feel funny and I don't like the feeling obviously too many different painkillers together can do that 🙃 Dawn
Hi sweetie 😀,Thanks for your reply 😊🤗.
I'm on 3x 3 a day. No other pain relief but I'm reducing morphine. Tomorrow I'll be on 2 meh.
The Gabapentin make me feel down but I've not been on it long really do best to give it a chance.
I hope you're ok sweetie hugs dawn 🤗🤗
Hard to get through the day can't do much by myself lucky I have a great partner
Hi sweetie 😀.I'm so wobbly on my feet today meh I can't walk far and I need aids. But I try😉
Yes what would we do with our the great people in out lives.
I don't have any partner. But Jon is my unpaid carer.
We stay together as we can live in nicer places and split the rent in half..
He's just mowed the lawn.
sweetie rest up and sleep well hugs 🤗Dawn x
I have taken Gabapentin for a number of years and it has improved my pain but has never made me feel low in mood. It works well for me but your dose may be increased over time. I am now on 1400 mg a day. I could take more but it seems to produce some unwanted side effects, for example low blood pressure.
It a least provides with some quality of life.
If your at all worried about any side effects talk to your GP.
good luck.
Hi smilesalot, I be honest pregab does not help , if anything it slowed me down going for wee it was taking a while to co.e out then it was only a trickle, didn't help with pain so I stopped it after 2 years as soon as I stopped I started urinating properly , I have also seen on the Internet there's been few deaths other this drug and can make you very forgetful, I just stick with papain to take edge off my pain as I have fibro ♥️
I mentioned to put zapain x
I've just been put on zapain and it is pretty good.
Oh really! So my doctor hasn't cottoned on to that! But Pregab allows me to sleep. Without it, I'd be awake forever. I can put up with the urinating problem, but now I'm taking water pills - don't think they're working, as my leg is still swollen. I am becoming very forgetful lately - worryingly so, but you can put things in place for that, like making lists. Death? well, I'd be interested to know the warning signs.
Oh I've died a few times. Heart stopped about four times all when I was younger. Twice in ICU. They were going to turn the machines off. I was very poorly.I didn't feel or think anything in the darkness.
Don't worry about that just yet.
I just fear pain. Dying no.
I better eat my lunch 🤗
I have been on a high dose of pregablin I the evening and am now on a low dose in the morning as well. It does help me get some sleep, but I am still in constant pain. I haven't found anything that helps to be honest. The doctor just puts me on more and more meds. But there is nothing that can stop it completely
Hi Catsandcakes77 I love your name😄
Hi sweetie 😀,I'm so sorry you are suffering so much pain🙁
I've been doing ten minutes Bob and Brad exercises sat down each day and omg it's flared me again.
Spent the morning watching YouTube PIP segments and fibromyalgia and Copd advice. Made me miserable.
How long have you been suffering like this and do you get any respite? I hope you do !!!
I got 4hours sleep last night yey. I've got a stinking headache and chronic fatigue. I can barely move.
I can hear my carer peeling potatoes🤓 hopefully roasties. Or even roast sweet potatoes yum.
My mind isn't saying what I want it to to do so I apologize.
I hurt so much everywhere. My Carer is coming tomorrow and I have tidying with her to do. I don't want to let Jon down. He's been my best friend for years and started caring for me when he realised how bad off I was. I'm so darned lucky.
The council want me to pay £119 for my care plan a week😮😮😮😒 I can't afford that. I'm already paying over £200 a month for Gemma my carer.
Sorry I'm going over all my problems.
I hope you have a better time today sweetie😌hugs xxx
I need help but I don't really know what kind of help would be best for me. My partner makes messes and it's not good for me to be cleaning up at odd times all through the day. I used to have a cleaner but we got mice and she had a phobia. The mice have gone now and so I will have to look for a new cleaner. Trouble is, I'm out in the sticks and some won't come this far. I don't want, but feel I would benefit from, a cook in the evenings. Maybe just once a week would give me some respite.
Hi sweetie,I also live in the sticks in front of a fishing lake.
Gemma who I pay twice a week for to give me a good body bath as I'm too fatigued and weak to do it myself yet.
No it's not good for you to do the tidying😐.
Only you know when you can or if. I sure can't by myself and it's putting my few clothes on shelves.
It takes 15 minutes to wash me and I pay for an hour. Jon isn't happy about that as she's been sitting gabbing away lol. Jon works full time and needs quiet..
If you can afford a cleaner get one. It's important that you have respite sweetie.
I found Gemma on the internet at trust on ? Oxford. Their staff drive to you😀
I'm freezing brew n meds time.
I hope you find a solution.
Jon and I are both messy and he is taking a week off for major tidying including throwing away stuff for recycling lol.
You look after yourself 1st hugs🤗🤗🤗
Yep, my John gets a bath 3 times a week while i use the shower in the bath as i can't get out of it either. I can pay for a cleaner but I'm not sure I can pay for much else. I am ignoring messes for now. Wednesday is my cleaning day, though I can't do it all in one day. We have to look after ourselves; there's really no-one else. So you too 🤗🤗🤗
Oh sweetie can't ur partner help more? I'm similar disability wise and can't do much. I'm terrified I'll let Jon down tmoro. At least I can sit on my bed for a while. The tea time alarm has gone off. Jon does all the cleaning washing etc so I'm so lucky.
I hope you can work out something. Maybe have one over once a fortnight and the other every 3 weeks ?
I know Jon will understand but he's worried I'll vegetate? Or die too young.I
He's a worrier bless him.
He's just walked by and farted 😂.
I'm sorry I'm wandering mentally as it's nearly bedtime 🌙.
Hugs sweetie Dawn
Hi Dawn, He's over eighty and blind. His blindness is his excuse for not helping. I'm realising that I'm going to have to do more and more as time goes on, i.e. more washing up, more thinking about medication - more his than mine. I've ordered his Libre2s but I can't collect them until tomorrow. Apparently, he had to put another one in sooner than he was expecting, and he didn't inform his doctor and he didn't tell me. The prescription service doesn't allow us to tick the box to order our medications until we are deemed ready for a new supply. We've constantly asked them to consider that this might be necessary with no result. I'm 80 next Christmas and I don't think I'm about to die just yet, so I need a future that is kinder to me.
Farts are part of life now (especially in the evening), along with (oh what's the word?) long belches and loud sneezes! and memory lapses, which for a "wordy" person, are a desperate pain.
Have a good night🤗 Sweetie
Hehehe. I'm 56 and Jon and my days are full of the same lol but it amuses us lol.Not the incontinence tho.
Why on earth are you not getting help?
This worried me.
Don't you get help if ur pension age?
Please tell me that's not true !!!
I'm applying for PIP soon. Should have a long time ago. I didn't cos of the stress.
Crop Gemma is here.
Catch you later sweetie hugs Dawn 🤗🤗🤗
Yes Dawn, I get Attendance Allowanceand I used to have a cleaner up until about a year ago, when a mouse scampered out of a box of cleaning cloths and my cleaner ran out of the house screaming. She has a mouse phobia. As she was the only one prepared to come to our village, once she left there was no-one else. Other companies said they wouldn't have anybody to come where there were mice. As I am a live and let live person, there was a lot of experimenting going on - pest spray, garlic, dryer sheets and finally, a replacement of the electonic thingy. I had made the house ucomfortable enough, that little by lttle, they left. Finally the last one or two were encouraged to go by the screaming in their ears and, I suppose, the lack of company, so that now, I believe I am mouse free. I just need the time to find someone who will do more than just make the bed, wash floors and do a bit of cobwebbing. Unfortunately, my needs come last. After this cup of tea, I'm off to the next village to get a prescription. I get all my meds delivered to the door but my partner insists on supporting local businesses. Good luck getting PIP. I tried to get blue badges but they said I could walk. Ha ha, these women don't consider that carrying something in or out of a building might add weight to your struggle, and who ever goes in or out of a place without something in their hands/arms?
Wth? Having meds delivered is supporting local businesses. Wish my chemist delivered !Poor Jon has to collect meds during his lunch hour. When they don't have everything in stock it's a few trips. And when meds are not available it's a pain to get substitutions.
My ex husband was like that grrr lol.
Rats and mice hate peppermint or chilli flakes so I read in a garden mag.
Why would anyone be scared of mice? So cute.
My daughter had rat 🐀 pets lol.
You will deserve ur next brew🤗😇hugs Dawn
I get my meds from Pharmacy2U. There are other firms who deliver as well. There's no need for getting in the car to collect prescriptions.
You don't get rats at the same time as mice as they don't generally live beside each other very well. Some people are scared of their tails, their movement, and they are not hygienic at all. Cute, but we don't want them living with us.
I'm having my cappuccino reward now. John has gone back to bed and we're supposed to be on a zoom call! It's past the time for it now and I don't think we need to listen to this company AGAIN! I can't be pushed into doing wills and POAs right now. It's important but I just can't do everythingn all at once.
Trouble is that we have a call blocker phone, which means calls that are from people we don't know are screened and they have to announce themselves. Sometimes we are curious, and John likes to engage in conversation with anyone who comes on the phone. I heard him chit chatting with someone at his bank the other day, and I'm sure they have plenty to do without being held on the phone for twenty minutes by some old man moaning about passwords. Anyway, he likes to say yes to people to give their presentations and sometimes he thinks it's a good idea to go ahead with them. We are (or at least, I am) in court mid April because we didn't pay for something a company said they would do for us, but when I looked into it, we could have done it ourselves for nothing.. We missed the 14-day cooling off period because there were lots of other things going on. It seems it's all down to me, but I don't get given the paperwork - if it was ever left in the house. I hate the chaos here.
Hi sweetie Maggie Sylvie,Jon drives because there's always a shortage of something he needs to sort out.
My head meds I can't go without even for a day.
I tried and boy was I I'll and that was just a few hours late. They're always on shortage meh.
I've cut my morphine to 5 ml today. I'm a few days I'll be off it. And in incredible pain.
I'll ask my Gp tomorrow if I can swap. Fingers crossed.
I know this is rude but hubby isn't thinking about you at all.
You really should make John go with you. Point out your illnesses. You should get off. Whoever they are are taking advantage of you. I hate that for you. John needs to take responsibility for the situation. Actually ur elderly you shouldn't be taken to court at all.
Do you have a Solicitor? Or spoken with CAB?
Cab have helped me a lot in the past.
You can have them visit you !!!
Well they used to.
I'm wobbling on lol
Hugs sweetie Dawn 🤗
Tidying? I can do bit by bit, but it's the sweeping and scrubbing of floors is what I'm talking about.
Hi sweetie 😀. Have you thought of meals on wheels? That's what I am doing when I goes on holiday. There's many types and qualities and portion sizes and meals for diabetics.Get online!
Lol I need a brew 🤗Dawn🤗🤗🤗🤗🤗🤗🤗🤗😇😇😇😇😆
That Catsandcakes77 is awful and I'm sorry to hear that even with all those meds ur still in pain.I'm in the same position.
I only just realised it properly hmm.
Crap I'm feeling sick.
💊pill time.
😂😂😂
I don't know you're routine but do you have a better time of day?
I'm ok for lunch time sometimes it maybe it's afternoon meds and chocolate😂😂😂😋.lol
I'm in incredible pain and so stressed and tired.
But it's brew time😋😋😋😃.
Do you do anything that eases the pain?
I'm finding being on here is relaxing and informative.
So many great people😊😊😊
Hugs sweetie Dawn 🤗🤗🤗
I am now able to sleep like a baby because of Pregabalin. It doesn't help enough with pain so I have to take other painkillers, and water tablets in the morning. I only take 150 mg of Pregabalin and I feel quite good during the day, but I will sleep in if I don't get to bed at a decent time. Side effects: dry mouth, shaking arms and hands in the first half of the day, typing is not very efficient. Getting out of bed is difficult but once I'm up and about and have taken painkillers, I am managing.
Hi MaggieSylvie😊,It's sounds like Pregabalin would be good for me. Sleep wise.
If it were good enough I could reduce all the other sleep meds I take that barely work. They're good at relaxing me but minimal sleep.
That's very helpful thank you 😁 Dawn 🤗🤗
It doesn't work immediately; you have time to read a chapter but don't overdo it. It stops you from wanting to get up in the middle of the night for a pee, so I frequetly sleep right through until morning/afternoon🤣
Wow that would be life changing for me as I have I pee at least eight times a night! Then I'm awake all night. Meh. I pee myself frequently but just a bit. It depends how much pain I'm in.
I don't have a drink after 5 pm. Unless we have chicken for tea as I can't swallow it.
I'm speaking to my Gp this week so I'll ask her yey.
Thank you 😊🤗Dawn
Ask her whether you could swap gabapentin for pregabalin. Usually only one of them suits individual people, but if you are not getting on with it, you could try the one I take. Some nights I have to get up but only once. It's a problem - this keeping hydrated, isn't it? You aren't drinking coffee after about 3 pm, are you?
Lol I'm allergic to coffee . I throw up.I have drinking chocolate x3 a day before 2 pm and no sugar. I do get thirsty for water but not after 5 pm.
What about you ?.
I go to bed around 7 pm and up about 4-7 a.m..
I can't come with long days being up. Never have unless manic.
I'm pooped.
Hope you sleep well and don't struggle to much tmoro.
Hugs sweetie Dawn 🤗
"Sweetie" hmmm. I'm having my daily cappuccino right now. Mostly I drink green tea which is next to being hot water. I don't drink chocolate very often; that would be a treat. We just don't buy it. I go to be after the News, so that's around 11.0. Often it's much later, but if I have to get up early the next day, I make sure it's 11 at the latest and then I would normally be up about 9 or 10 am. Today isn't a normal day. A normal day would see me up at 8 or 9, doing some work around the house and then rewarding myself with the cappuccino. I am head cook and bottle-washer here, so my days are often full with taking my partner to hospital appointments of one sort or another, and then, depending on the time of day, having a meal out, though that's not every time. Television is a big part of our day and evening, and at the moment we are arguing over the sugar-level sensor that he says he has no replacement for, when I can not order before a certain time in the month. It's draining. He is blind; we are both frail.
Aww sweetie you really have a rod for your back..It's a good job you love each other.
Jon broke his ankle and heel 👡lol couldn't resist.
And caused consider able nerve damage but he's got a degenerative disease of the nerves🙁.
However he's a n 👼angel.
I've never fancied green tea. I'm so fussy lol.
I do like my rhubarb and ginger tea. It's a treat.
God I'm stressed. Can barely catch my breath🙁
Tell me if you think I'm being rude it's just with only Jon for company I've forgotten the art of being polite.
It must hard living with a blind person. Does. He have a carer? Sorry I'm being to nosey.
Js just going through security eep.
I'm mind ucked today. Keep forgetting words.
I better get ready for Gemma. She comes when she comes.
Hugs sweetie 🙂Dawn
I'm mind ***ked every day now! After I lost my sense of taste/smell a lot of foods tasted disgusting, including ordinary tea. I'm not keen on fruit teas (hate camomile), and green tea was just the ticket. My John doesn't love me. He has a carer who comes three times a week to give him a bath because he can't get out of the bath. I can't either but I was given a blow-up cushion that works, but you have to plan ahead because the machine takes two days to blow up the cushion. I have a shower seat across the bath now; I don't have time for baths, anyway, unless I give up writing to people on HU.
Who is Gemma?
Sweetie
Oh sorry Gemma is my paid for carer who bed baths me twice a week.The council want me to pay £119 a week for care😑not amused. Can't afford it.
I've just got a washing machine and need a dryer.
Gemma costs £200 a month at least.
She's great.
Does sweetie offend you? I say it to everyone.
You should rest after walking so far.
Did you have Covid?
I go through phases of everything tasting wrong.
I've not had Covid.
It's crop that they aren't helping you the same.
Js just made soup in a mug for lunch.
Bfn MaggieSylvie hugs🤗🤗🤗Dawn
I've never had covid. John caught it when he went into hospital after our holiday. It was incidental and not much more of a problem than his blood sugar. He had gone into a coma. They sorted him out but he had to stay in hospital for four weeks. The latest is that he has cysts on his pancreas that are not helping; however there was always the possibility that they were cancerous but a recent scan showed that they were not. They are, though, taking up space which means there isn't room in his stomach to eat what he needs and he has lost such a lot of weight. I worry when I see him lying down and his ribs are sticking up from an empty abdomen. We never really go anywhere to catch covid; we are both supposed to be immunosuppressed but despite my blood cancer, I seem to have a good immune system so far.
Oh no Sweetie you have blood cancer😮. Now I'm furious that they aren't helping you !!!
John sounds in a bad way but is so wrong about you controlling him. Ur helping him and he's making you miserable😢.
I have small lumps on my pancreatic lymph nodes. Dinky. Benign. But I'm fat and diabetic 1+2.
Hybrid the Dr said. It's on the internet but I've never heard of it.
I don't envy the responsibility on ur shoulders.
I'm sorry my mind is wandering. It's nap time lol.
No joke I need naps. Do you get chance to nap ?
Hugs sweetie Dawn 🤗
Sometimes, when I'm reading stuff on my laptop I just drop off. I have no control over it, but if I'm not on the computer I don't have naps. My blood cancer is complicated but fairly benign. When you get to 70 is when the blood starts going wrong. I don't know if it makes me tired, as I may already be tired from fibromyalgia! So you have to be checked for your pancreatic lymph nodes, but again, they sound ok. You've got both Type 1 and Type 2 diabetes? I've never heard of that. I've got MDS and MPN, and most people think I'm confused! It's too few good red blood cells and too many platelets. I will probably drop off today but I really need to ring CAB.
Hi sweetie Maggie Sylvie,I have a kindle fire. So I can read the writing and go online plus when I can concentrate read books yey. I get shaky arms hands etc already.
I hate going to bed in the day so I doze off I'm my recliner😌.
Like sickle cell anaemia?Or am I just stupid.
I'll leave you to cab hugs 🤗Dawn
By the time I got to have something to eat it was too late so I'll ring CAB tomorrow. I have two Kindles with a back light but can't go online. For online I've got my laptop or my phone. I'm in a recliner too, and sickle cell - yes but not as bad as sickle cell. And I love to read but it is always low down on my list of todos. Mostly, I read in bed.
Hi sweetie 😀.Shame about cab.
I can barely see the writing on my phone and I prefer my kindle. I've never owned a laptop.
Jon has 2 for work and a private personal one.
How are you feeling sweetie ?
Sickle cell is meant to be agonising. Is it similar for you on top of fibromyalgia ?
I can't wait to go to bed. My head is killing and body is making me wish it wasn't mine but I wouldn't wish it on anyone .
Hugs sweetie 🙂Dawn
Hi Dawn, I have always had a computer, firstly shared with my partner and then a laptop so that we would not be in each other's way. I trained as a shorthand typist when I was young, so typing is definitely easier than writing. It's getting harder to read but that's probably because my computer glasses need updating, and that's probably what makes me sleepy. The phone is fine, and I've got a back-up Kindle on it, but sending texts by picking at letters with one finger is really annoying, though I'm quite quick at it and it's predictive and I have to use it for one person I text with.
I'm feeling ok but John has just opened his mail and we have a great wad from the court, originating from the company suing us. There are some questions that I'd want answered, some from John and some from the other side. There is one email that is a response to something else that has never appeared. Depending on an answer I get from John, I may tell him to pay and get the hearing canceled as part of my reasoning was based on a premise that I am now unsure of. So a wee bit wobbly, but I expect John will be wobbly as he's just had his carer to help him bathe.
Regarding the MDS/MPN, I don't have symptoms that I am aware of. The pain I get is from the compression fractures in my back. I now have seven squashed vertebrae and that is so painful that it "shouts louder" than FM pain, as does OA in my knee. John's going to cook a comforting tea with chips, beans etc.. Until then, I'm looking forward to having a cup of tea to take pain killers with.
Oh sweetie ur really suffering😢. Do you use any aids?Too right John should pay. !
I've only just started out with spine pain. It's the fibromyalgia and Copd and OA in hips knees and hands meh then let's not forget the crazy😏lol.
I'm waiting for my doc to ring anytime this morning. J wrote me a list of things to remember🙄. I can't read his writing lol.
J is a PhD . He's very clever. Goes over my head lol
We have the same sense of humour tho lol. We were drinking buddies in 2002-2007. Then got a bungalow we lived separate in.
It was ok except I became allergic to mould and the house was riddled with it.
I scrubbed it clean and got dehumidifier s.
J s the only person I trust with my money so he's in control of it. My previous carer helped himself to it. He was great at first then that changed.
I'm 1999 I was in hospital with severe anaemia,
Septicaemia ??? Pneumonia kidney failure and MRSA. Was in icu for 9weeks in induced coma. I'm the mean time everyone except my daughter took my money.
My mother arranged for my burial even though she knew I wanted cremation. My daughter was who saved them turning off the machines.
I had to relearn how to do so much including walking. I've never recovered from that time then I was told I had Sarcoidosis. Put me on steroids and I put 8 stone on!!!!! The steroids were like speed to me. Sent me crazy manic. Their screw up. It was great lol.
Enough cheery from me.
I hope you gently if needed out ur foot down sweetie Dawn 🤗
Hi sweetie.I was introduced to computers in care and shorthand.
I was more interested in escaping than learning lol. I was pretty good at Art and English and human biology.
I was in care in a place of safety originally.
My family were very dangerous.
I'm stuck to one finger texting lol.
Well done you sweetie !
I hope you get the answers you need from John.
Fingers crossed sweetie.
I'm so glad you don't get pain from the blood cancer sweetie, you're in more than enough .
Hope you have a better day hugs dawn 🤗
Hi, Dawn, I hope you will have had a good nap. I have only just read these last two messages. You have been dealt a really bad hand and you need all the help you can get, so long as someone gets the drugs right for you. Well done, you, for getting so far. Reading your history is horrific. You are very strong to have dealt with it all, and you still have room in there to be a warm and caring person. Thank you Dawn, Sweetie
Aww thank you sweetie hugs 🤗back to you. Most people enjoy hugs. I had to be taught to accept them now I love them😏😃🤗. I've over exercises no meds are working on them or my headache.But it pleased Jon.
Having been in care I know I'm lucky. But it was a Crap one. It got better when I met Jon. He isn't into me in celebate. Spelled it wrong but who cares lol. Have been since 2007.. I hate sex lol always have.
Jon's making tea 😋.
Hugs sweetie Dawn 🤗🤗🤗🙃
I'm celebate too since about as long as you - maybe ten years longer -I can't remember. People don't hug these days; they drape. I don't know what kind of feeling a drape means but when I hug I squeeze, just like my family would have done, even though it wasn't really something they did. I think John would rather not be celebate but diabetes has removed his ability. Hugs, Dawn - it still won't do it!
Just to give you a hugs 🤗Dawn
John has gone gradually blind over the years, due to type 1 diabetes. He now has very little sight in one eye. He knows his way around the house, but 6.0 clock this morning he woke me up for the third time, and he couldn't find the bathroom, lights on or lights off. I don't think that's just down to being blind. Anyway, he's gone back to bed, having got up too early; it was dark, but he wouldn't notice how dark it was, just confused how to get to the bathroom (it's a very small house; you can't get lost in it). The worst part of being blind is probably losing things. If he could be organised in the first place, it would be much easier, and he resents me making things easier - he shouts at me "ONCE AGAIN, YOU'RE TRYING TO CONTROL ME!" Another thing is bringing food into the living room - he frequently spills his drinks on the floor. I got rid of the carpets long ago and have laminate, which is really easy to keep clean, even if you have a back injury. It's just that I don't know when to stop (I have fibromyalgia too, and that's one of the characteristics of people who suffer from it - not that I suffer from FM). I'm beginning to drag on a bit now. I'm surprised that company didn't call - Later Life -Viva Planning. can't see anything about a scam online, but I don't think we need to pay for services at this stage, even though we do need to update wills and set up LPAs. LPAs cost £80 online and that's the minimum everyone will have to pay but I don't think we're really so unintelligent that we need someone else to do it all for us!
Sweetie
Hi sweetie 😀,I'm sorry he doesn't appreciate you and your work.
hmm 😒 maybe he needs more help than he's getting or maybe it's time to talk about a home.
When I got out of hospital just before Christmas Jon said if he can't cope with me if need to go into a home. I was devastated. That's why I push myself and have to get stronger even though it can be agony .
Oh dear I've upset myself again.
But I know I need to rest at night and it's not happening.
How do you feel about things s?
If that's too nosey tell me to go to hull lol.
I hope you're ok sweetie hugs 🤗🤗Dawn
I really can't talk about my feelings at the moment. They have not floated to the top, if you know what I mean. The word "home" does bring about upset. I think he's considering some sort of care property but I can't face looking for a new home when I am so disabled and need to declutter. So does he. I think that may be the answer but I have little idea of what it might entail. I need to rest at night, too but although the Pregabalin helps me sleep, I am noise sensitive. He pees noisily into a plastic urinal which I bought him to save me having to clean the floor so often but he doesn't use it to get to the bathroom; he just pees into it standing by the bed and it's like a waterfall, so it often wakes me. I should probably rest during the day as well but that hasn't happened more than once! My chair is very comfortable but I don't think it is right for my back, and I'm not sure about the bed either.
How old are you, if you don't mind my asking?
Hi sweetie,I'm 56 57 in July.
I am sorry I delved too far and brought personal things up.
Forgive me.
I find it too easy to talk on here lol
A good bed chair and shoes are important but so is getting the right help
Hugs sweetie Dawn 🤗🤗🤗
No, it's ok. I find it too easy to talk on here too LOL. As for shoes, I have recently recycled all shoes with heels higher than the toes. I can't see myself ever wearing heels again, but the flats I've got recently are great.
I've never been in to heals I used to wear doc Martin's.Now I'm wearing very flat plimsoles like shoes.
When I remember what they're called I'll spring it on you lol.
We regularly recycle shoes and clothes. As I can only buy on Amazon online due to hating going out.
Phew it's cold. Hat and scarf time😏.
I need to take my blood sugars meh
Hugs sweetie Dawn 🤗🤗
I've had a spate of buying from TEMU. If you haven't visited that shop you are in for a treat. I buy online whenever I can because it saves walking round the shops.
I have bought several pairs of shoes and several sweaters from TEMU, with the result that I have nowhere to put them away. The thing is that they are more cosy than the clothes I already have and don't want to recycle them. One of the shoes I bought were barefoot and another were lipstick-red boots. I wear a lot of black and grey, so the boots give my outfits that over-used phrase - a pop of colour! I feel good when I wear them, but after a day of wearing any shoes at all, I feel the "socks" are all rucked up under my feet because I have peripheral neuropathy. There is some lack of feeling but it doesn't stop my feet being cold. It's not really too cold here where I live, though.
Hi sweetie😏,Yes!!! That's what I got. Barefoot shoes. So comfy but feet get cold.
I have peripheral neuropathy to. Diabetic. J has it bad. Bright red? Hehe. I've only ever worn black.
I do have a warm grey t shirt I use for bed.
Js putting his foot down as I'm terrible for buying clothes and shoes then bin them. Shame face on me.
Now J is in control of my dosh. Good job too.
I can only shop on line and have for years.
My physio did me in yesterday.
I'm in a lot of pain grrr I'm so tempted by morphine but I'm off now so I'll suffer.
I I cried I'm bed last night and when I got up at 5 am
I'm seeing her on Thursday next. Not looking forward to it!
Dentist and carer tomorrow.
I'm stressing with all the people I've to see. I'm agoraphobic.
I'm cold most of the time except summer which round here in Oxford UK is so blooming 🔥hot.
I'm hoping we don't get to 40 or 30 s this year.
Hope things are going well for you 😊🤗Dawn
I buy fleecy insoles for all my shoes. Then my feet don't get so cold. They are certainly not cold when i put them on. The GP I had at the time had never heard of the description of my feet: I feel as if I'm wearing socks all the time when I'm not. The next time I saw her, a few days later, she called across to me that she had seen another patient with the same thing! She's not good at diagnosing and so I ditched her. A GP who puts you on medicine due to a faulty diagnosis is a danger! I only shop online for clothes and during covid, I did my grocery shopping online too. I should go back to it really but there is not point for a small shop. But a small shop often turns out much bigger as you get tempted or see things you've forgotten to put on the list. It's partly that my partner seems to make the decision to shop every five days.
I had to get up at 7 today to take J to his appointment at 9.0 but he didn't get up in time despite my deafening myself with the TV. He came down and asked if he was supposed to be somewhere! This is after he kept me from sleeping until 1.30 last night, even after i reminded him that he'd have to be up early.
You can't go wrong with black shoes, but black clothes - meh. As a musician that was my "uniform". So I have loads of it but wear mostly grey. How can you wear anything in bed? I can't turn over in bed if I wear anything. I have a good duvet that keeps us well warm, though he has an electric blanket on his side. He tends to fall asleep with it on and that's a problem.
What did your physio do to you? How is it supposed to help?
Hi sweetie 😀,I also use fleece insoles in my chunky boots. Don't wear them in my barefoot shoes.
That Gp was useless. I've had a couple. One we called Dr twatree lol. She shouted loud that I abused my synalar cream. It lasted me a year.b
J asked to change Drs and after she was so nice to me. I had one Dr nearly kill me with negligence.
They made her do extra weekends in A and E.
Ur a musician!? Wow. What sort? I've worn black since I was 12 . I did a year with normal clothes and hair. I hated it and I became suicidal. So back to mixed until 9 years ago when I shaved off all off.
Saved so much money lol..
Jon sounds annoying lol😉
I have difficulty getting undressed until Gemma comes Mon to Fri. I sleep in my clothes. I know I'm nasty but I'm screwed physically and mentally.
Oh I have duvet that is warm and a posh extra thick fleece but I still feel cold.
The physio I could barely understand and I felt stupid. She made do a full days movement
walking and going to bed and going to the loo. But all at once where as it's take me all day to do it normally. Then she started with the exercises😵😢💩. Stupidly I tried my best which really hurt but by tea time I was in agony any nearly falling plus no sleep but lots of crying meh
I'm worried about Jon. He's so down he's so worried about me and concerned I'm off the morphine.
I have to prove to him I won't eat carpet falling down lol he's nuts.
Work is driving him mad. He wants to move and change job. Hopefully Scotland👾🤗🤗 Dawn 🤗
John x
Hi Dawn, You can tell what kind of musician by looking at my ikon. But I cannot play full concerts anymore, and there are few of my age who can, especially with compression fractures. You've no idea how much strain it puts on the back - not so bad for some men as they have extra height. So anyway, I am retired. I haven't done this to myself; it seems now that I have osteoporosis; I should probably have done a lot more walking etc. I think I overdid my exercise just before my last fracture but I've never been warned about that! My physio doesn't give me much to do.
I have the extra plush blanket, too but my partner uses it just for his side of the bed as I don't need it. I used to always be cold but I feel I am normal these days. That's something, innit?
I've just emailed a cleaner to ask if she is still available. So I've made a start for my own wellbeing; John's asleep. He overslept his appointment this morning as well. I've been asleep too as he wouldn't stop making a noise until 1.30 last night, still expecting me to drive him to the clinic at 8.30. He has no concept of my struggles at all. Now I have to go to the shops. He's run out of potatoes and I've run out of green tea.
My GP - that was - shouts as well. The one I have now is male and doesn't shout at all.
Hi sweetie 🙂,My Jon is very concerned about me.
Hope you've got your spuds and ☕.
I'm seriously struggling today and hope I can get up to bed.
The physio screwed me over. I didn't expect that.
When I went to the loo using my Zimmer frame I nearly fell. And I was so slow moving and could barely see. I hope you're ok sweetie I can't concentrate so I have to go.
Hugs sweetie Dawn 🤗🤗🤗🙃
Night 🌙 x
r
I got two types of spuds, cauliflower, Kenyan beans that I don't like, cabbage, mushrooms, strawberries, tomatoes (hope they've got some flavour this time) and frozen peas, green tea, cake, tinned tomatoes, tinned beans, oil, Clover, and I've put all of it away. He had one of his low blood sugar rants at me. It doesn't make any sense but I still argue. I wish I could just ignore him but I don't. I've made an appointment to see my GP on Wednesday and I've said he's got to come with me because he said I need to see a psychiatrist. I;m going to sit him down and tell him to spiel. He should see his own GP (loud lady) because I'm sure it's dementia peeping her head around the door every now and again. I haven't cleaned the house properly for quite a few days, so of course, he's saying I don't do anything.
Zimmer frame doesn't work when going to the loo. Do you have a frame already round the loo? I use to walking sticks as I find they're easier to manage - more flexible.
You will get up to bed - use a bannister rail and a stick or two (in one hand). It sounds as if you need to rest; then you will be better.
I wish he would move all these boxes and other stuff off the floor then it would be worth cleaning.
Hi sweetie 😀.Ur John is very rude and lazy and inconsiderate towards you.
Oops I spoke e again
My ex husband divorced me cos I didn't have sex for a year🤔😄😃😂. I was deeply depressed suicidal and had no help.
Yes it was mainly my fault he sure didn't help.
Because I blamed myself I didn't want his money. Or our house. He was most ☺.. I was still very ill
I got ripped off.
The first thing he did was go on holiday with my daughter and his long time girlfriend🙄
I'm really stupid lol.
She's really nice. Haven't seen either for years.
Hazel Hates her dad and I don't know why.
He is an add tho. I miss mild swearing lol.
I must admit I was thinking John may have dementia. It's a cruel disease for all concerned.
I hope his Dr sees that. I feel for you sweetie hugs.
I use my stick to the door Zimmer to loo door and stick to toilet 🚽.
I'm afraid to say my legs are killing. It's both my and physio fault. Obviously I need to do it but not like that.
We haven't been able to say her name so Jon calls her Azequiel.
I hate not being able to day someone's name.
Good luck at Drs.
Hugs sweetie Dawn 🤗🤗🤗🙃
Thanks for your hugs, Dawn. I really need them. I have just agreed for a friend to visit this weekend. It called alter the dynamics within these walls if nothing else. Also I haven't seen anyone to speak to really for a long time. I do all my talking here.
You are right. Dementia. Both of us. The difference is that I don't have Type 1 diabetes, so I don't wake in the middle of the night blaming him for just emptyng printer ink all over the floor! Then this morning, he actually said that I had woken him up to test his blood sugar! I did. Alexa reminded him to do it, and that's better than me nagging him all the time but he doesn't always hear her. It was about 17, which is not too high but high enough to need insulin. But what is it with him injecting with insulin and then eating Dextrose? I'm trying to explain things to a deaf man who can't work out what I'm saying and I can't find the words I need. My words are running out of my brain like mad! I have my GP visit next Wednesday so I'm gonna have to mention it as it's really distressing. (In case you didn't read it right, I didn't empty any ink; John was hallucinating. He had just leapt up in the bed because he said something was coming off the wall. Well there's nothing to come off the wall - just a wall light). I'm trying to get him to remember what was said at a meeting two years ago. HELP.
It doesn't alter the fact that he is very rude and inconsiderate to me, while at the same time, expecting me to help him. This morning I told him I wanted to speak to CAB about our problem but I wanted him to give his reactions to the new evidence that has shown up this week. I'm wondering whether the sales person recorded the meeting we had. They always insist that both people are there. But then, he says "I'm blind (he wasn't that blind 2 years ago) so I can't see the print, so you go ahead and do it for us". (Did he actually say that? He might have). Nobody turned to me and said "You're not blind, couldn't you do it? Perhaps you're not capable". So in that case, he signed away £6000 for someone in Yorkshire to get our timeshare membership relinquished. A simple email would have done it, and it did. Although it had his name on, it wasn't an email from him. I could have done that! They are now saying that we agreed to it. Not only that, but there's a copy letter in their file that suggests they wrote to the lender to request refund for the mis-sold timeshare, but every owner got their money back from the lender because the government requested it, but I think this company are after their 40% of what he got, except they don't know how much that is. I am supposed to be defending this on 18th April based on fraud.
As for you - you have gone through a nasty divorce by the sounds of it and you should have had a caring solicitor who made sure you were not fleeced. Didn't you have a good friend who could have supported you? You were ill; didn't the judge even see that? It's so cruel. But it seems that all this is well in the p.ast and you have your Jon now, and you have Hazel; does she live with you? It's terrible; there are so many reasons why a woman may feel she doesn't want sex; perhaps it was so long ago that no-one knew about it in those days. I think fibromyalgia is one of those reasons. Another reason is that if a woman realises that her partner considers sex to be the all-important part of a relationship, it's a great turn off because it's only part of a marriage.
I have to stop now, invite my friend for tomorrow, and have my cappuccino.
Hi sweetie 😀.I'm so glad you have your friend over🤗🤗🤗🤗🤗🤗🤗🤗🤗😃😉enjoy ur ☕ yum.Oh wow your finances are complicated because of major Greed by the other side. I'm my youth id have sat on their bonnet bouncing up and down too I punch them. I'm a manic phase I did just that😉😉😉😆😂.
Extra hugs sweetie🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗😘😄😃🙃🤓.
I couldn't go to dentist now due to extreme pain.
I also have a borderline personality disorder. No way is it as bad as it was but my Gp rang to apologise for the mental health team who sent me somewhere I can't go. Mental health team have gone to poop..
They want me to stop all meds which will destabilise
Me big time that includes my Fibro meds grrr. If be a mess.
I did the therapy years ago. For 6years.! It broke me.
So I left and went to drug team knowing they'd stabilise me quick. Crops I'm a mess lol. Totally different mess and with friends help so much better
All I wanted was a meds review🙄.
More hugs 🤗🤗🤗🙃.
I coughed all night. It's very sunny but screaming a breeze. But scary.
Good luck sweetie for tomorrow enjoy yourself😏
My life started at 6 weeks old when n my mother put me in hospital with broken arm ribs and fractured skull 💀. I was destined to be useless.then bad health took over.. I think I'm going to have a swirl😂😁😀😊😄😍😋🤗🤗🤗🤗🤗hugs sweetie
Nap time to .
Have a relaxing fantastic time tomorrow hugs🤗🤗🤗🤗🤗😍
I'm exhausted Dawn
Azequiel? she who must not be named. Do you mean Ezekiel? He was a good guy.
Lol yes he was so is Ezekiel. She has a strong accent.I had a nap but it is not enough. Such dry eyes and mouth.
How you doing sweetie? .
Jon's having a go a me😠 cos I'm in all over pain and not exercising. Better get to it the dith
I forgot my hugs 🤗🤗🤗🙃sweetie
I managed to reply to myself hehehehehe I do band exercises and more band exercises later.Hugs sweetie hugs 🤗🤗🤗🙃sweetie lots of love Dawn 🤗
I couldn't add any hugs. Tried and tried. I get the same from John. I need to go walking. Intead I exercise our fingers. So who is Ezekiel? your ex or his lover?
Hahaha hi sweetie 🙂 Ezekiel is my lady physiotherapist but I couldn't pronounce her name so Jon said Ezekiel lol. Unfortunately we do that. Our foot last is crazy cat lady 😂😂😂. Her name is Janice and she's lovely but I I
Jon's oops I'm having v brain difficulty s yesterday and today.
Janice is due out in a few weeks.
Omg poor Gemma my paid carer had a patient die in her so I gave her my time off paid. I've had it happen to me and it's devastating. Probably see her tomorrow if she's ok.
How are you sweetie?
Hope you're well.
J was worried I was gonna have a stroke yest poor guy. Bloody mega brain fog..I don't remember much of yesterday just exhausted.
Jon's Dad died of a stroke and it brought back bad memories.😫.
I 're explained it was the fibromyalgia he hasn't accepted I have it.
It's a beautiful day hugs 🤗🤗Dawn
I think we both need to rest. I had a visit from a friend yesterday and it did me so much good, but now I'm exhausted. Lots of little messages coming through. Have a restful day, Dawn. Sweetie
I'm so chuffed you're friend visited yey😃😄😊😁😀🤗🤗🤗. Sweetie.I don't have any friends . Except for Jon.
Jon gave me this health powder to drink. I've now got a headache feel sick and poorly🙄🙄🙄🙄🙄😂🤑😬.
You rest up sweetie hugs 🤗🤗🤗🙃Dawn
Yes, it was a very nice day, and prevented any sudden roaring displays from John, who went down the garden. Today, i speak to him - just remarking on TV - and e just appears not to have heard me, yet he had no trouble hearing me yesterday when the conversation was, at times, three ways.
Don't take medicines you haven't been prescribed because what's in them might not go well with what you're already taking, despite it being quite innocent for most people. Your Jon meant well, and who knows, your headache might be caused by the coldness of the drink. Resting up, in reality, putting some files in order🙃🤣🤗
😂😂😂😃hi sweetie,That's more like it lol.
Jon's mum sent it him . It's a health drink powder. There's a couple of things in it I should not have. I just felt guilty as Js mum only buys expensive things for Jon. It tastes like wood lol.
I'm trying hard not to comment on ur John😠.
My ex husband could be like that with the the odd friend. Id tell him to eff off then sulk.
Don't let the wazzock get you down!!!
And as he has hugs to you 😍🤗Dawn🤗🤗🤗🤗🤗
I'm not. I was looking at the best mascara for the over seventies! LOL
Being a punk I wore tons of make up but depression kicked in now I don't wear anything. But I occasionally slap some lippy.Jon is playing classical guitar at the moment very loud lol.
I kinda thought mascara was mascara? No ?
🤗
When you get older your lashes get weaker. I've still got very long top lashes but you can't see them and i've never had many lower lashes. Waterproof macara can wreck your lashes when you clean it off.
I always used to wear lash thickener.Being a red head I understand the thin lashes.
Now I get thick whiskers on me chin lol😂😂😂🤗🤗🤗
Tea time then bed. Goodnight sweetie hugs🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗😋🤗🤗🤗🤗Dawn
They're now telling women to shave. Personally, I don't have much hair anywhere.
Live n let live really.If it were fine which I do have and I don't care about but they're dark and think or pure white😂😂😂😂😂.. Jon thinks it is hilarious. 🙃
How are you today sweetie?.
I'm still coming too. Yawn🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗many. Hugs for a shippy morning🤗😶dawn
Hi sweetie 😀🤗when can your friend visit again?Soon I hope.
How have things been with John?
Still being a twit?.
How are you sweetie?
Have you flared due to the pressure?
I hope not but with the good comes the bad😑😑😑😒🙄.
I've been having boiled eggs for breakfast.
.I don't usually bother with anything most of the time just have tea until J introduced a mug of soup for lunch. He's sly lol. He made a wonderful do pyaza for tea last night 🌙.
We both love Jon's home made curry. Recipe from you tube.
I hope you're resting typing away hugs sweetie Dawn 🤗🤗🤗🙃🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗😎😎
Hi sweetie 😀🤗.I stopped shaving anything but my head. You're so lucky not have so lucky not having to shave. Apart from my face and head I don't care.
Our Egyptian geese chased the swan it must have been such a shock to them. Birds are so rude to each other lol.
I'm pooped.
I need a nap at half 9 am. I'm shamed.
Catch you later sweetie hugs Dawn 🤗🤗🤗🙃
Hugs MaggieSylvie🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗😊😇🙊😻.Hope you're ok sweetie Dawn 🤗
Bye the way I can't stand punk music just the clothes all black bright colours of hair and make-up. I love all sorts of music from Loreena mackennit...spelled wrong, Wardruna, and disturbed, five finger death 👊hahaha.But I only listen occasionally
🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗
Hi sweetie 😀🤗.When can you
Gabapentin.
Gabapentin
gabapentin
Gabapentin
