Just to say you’re not alone. I feel this way too. Be kind to yourself and if you need to sleep then sleep. Your body is telling you that you need to rest. You might feel a bit better tomorrow x
Ahh, it’s not ur doctors fault, their hands are tied, they are being forced to cut loads of meds, yesterday I had to beg for cocodamol, my nerve damage in my neck and spine was killing, all because of the codeine, I won though 😉.
I am sending some hugs , it’s pretty rotten not being able too sleep when you want too and pain threshold becomes worse, weather dosent help ☹️this constant wet damp rain affects me for sure. If you need too go back too bed go and try not too worry, I know not being in a routine is annoying , yesterday I lost most of my day ,the saying run over by a truck comes too mind 🤣It seems Winter type weather goes on and on and I’m wanting too be able too sit outside and not be stuck indoors . You may have already done this but get back too your doctors surgery and see someone, let them know you are struggling and say what can I do next too help me move forward . Fibro along with any other health conditions mixed together is hard so glad we can talk here and we understand each other xx
Hi sweetie 🙂.Thanks for your advice. I'm listening and following through when I can🤗
I can't trust my Doctor as she has reduced my morphine to 2 cubes and this is the last bottle she's giving me. I'm drained with it all but I'm sure tomorrow will be a better day. Without my carer I'd have given up.
Hi there Dawn i am hoping today is alittle better for you and yes I’ve got into bed and had a good cry (let it out) I’m glad your carer makes you nice meals, they really are a god send when you get some body nice as well. Sending hugs xx
Sending you a great big warm hug. I’m sorry you are feeling this.
Learning to live with our new selves is one of the hardest facts . Be kind to yourself, listen to your body, rest, rest and more rest are what we are told and you know what, they are right. It’s taking me a long time but I’m learning to adapt and not fight against it ( which is futile anyway!).
Have you thought of discussing your meds with GP or consultant, maybe they need a tweak.
I'm sorry to hear you're struggling right now. Some of your tiredness may be due to your drugs as I have taken these two drugs you are currently taking, and the side effects were creating me more problems. I took the choice to stop taking them it took me months to feel better.
I had taken these drugs over a long period of time, and they were not stopping my pain levels.
I was always told by my GP that if my body had no energy, my body was telling me I needed to rest or slow down. I added these fruits to my diet. blueberries and blackberries and strawberries and other food that would help my immune system, which did help.
If you do little bits towards your job list and stop when you feel tired and rest, go back after your rest . Little energy is better than none at all. You may need to take extra vitamins to help you recover if your diet is not great.
It has taken me years to listen to my body and look at my drugs and my diet and my lifestyle because we are not always aware they are very much linked.
Don't worry about your body wanting to rest, go with the messages it's giving you .
Write yourself a list of one job a day over a couple of days .
Take regular breaks while doing your task. It can take me a couple of days or more when doing simple housework.
Be positive that you are working with the pace of your body and its requirements at that time as things should improve by managing yourself in a different way.
Achievements will come as times goes on . Never worry that you are slow at doing these tasks they will get done in your window time which is supporting your health. the main focus is you supporting them in the right way . There are many brave members on this site who understand your feelings and concerns 😟 however going forward is the only way to deal with this illness 🤒 and to be more relaxed to understanding your needs . Good luck and big hugs 🫂 stay safe. Xx
Ahh sweetheart I know what your going through I go through everything you have said I wake up crying and the tiredness is terrific on top of all what I suffer with last week my carer got my Doctor out as I was in terrible pain with my left hip and he said I have Bursitis it is very painful I cannot walk and have to have complete bed rest also the fibro flared up so as you can imagine the pain I'm in I am on morphine, paracetamol, diazapam to which don't kill the pain but make sleepy when I sleep I'm not in pain but like you I want to do alot it's so frustrating I am going to be like this a long time Bursitis can last for 6 to 10 weeks it's just driving me mad anyway sorry to go on I wish they would find a cure for this nasty Fibro so I hope you feel a bit better soon sending you loads of Fibro hugs😴😴🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗💐💐Xx Tillytrots x
Aww sweetie that's awful. I know the evils of bursitis well. I had that and sciatica at once so I understand. I'm on lorazepam rather than diazepam.I hope you get to relax and now and then.
You poor thing big gentle hugs coming your way 🤗
You stay in bed till you're ready🤗🤗🤗🤗🤗🤒hugs Dawn 🤗
Hi SmilesalotI was on gabapentin for about 2 years. I took 600 three times a day. I suppose it did take the edge of the pain away but I was like a zombie and I didn't like it. It doesn't take long to get in your system. I did want to try Pregabalin but my GP would not put me on it saying it was exactly the same medication. Which is not exactly true as even different makes of the same medication can affect people differently.
I consider myself lucky as I was older and was able to give up work. I was also referred to rheumatology and was diagnosed within a few months.
I now just take Citalopram and Omeprazole and Naproxen.
I so hope you get some relief and can at least sleep now and then.
Hi sweetie 😀. I'm still sleepy but lying on my back means I struggle to breathe meh. Had to get out my oxygen cylinder briefly.I was told I had Fibro in 2002 but had the problems since I was 8 . No one knew I was suffering as I was told to shut up moaning. Typical of my childhood.
As you know it's relentless with big ups and downs.
I'm flaring and can't wait for it to relax.
Thank you so much for the hugs😀 they really do cheer me up. So big hugs to you love Dawn 🤗🤗🤗
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