Worried

[Arlo31]

Hi all,Haven't posted for a long while! My fibromyalgia seems to be getting worse? I have pins and needles in feet and hands (not all the time) my balance isn't great, I'm tired with pain, lost weight and feel I'm wasting away. I'm so weak! Taking more and more time off work it's ridiculous.

I just don't know how I will survive financially as hubby works and won't be entitled to anything.

Using a stick hurts my shoulders. I feel like my arms will break anyways.

Sorry to be all gloom and doom. I do get Pip.

I've also got CFS + Osteoarthritis in my knees.

I've lost a stone in weight in about 7 months which I think is due to depression.

[Yassytina FMA UK Volunteer]

Hello, I feel for you struggling and work is getting too much too bear ☹️I have Cfs with my fibro so I can relate too you. Have you see your GP recently ? and any medication for the depression ? I do take meds too help me each day , we need too find ways too help for sure, again is your doctor aware of your weight loss? when I found I couldn’t eat with anxiety/deoression my husband use too get me the milkshakes from the chemist as I did not want too eat so well, it settled down once I was put on duloxtene as for years the Citalopram they gave me didn’t work for me, I am sending my best wishes too you and I hope you get the right help from your GP xx

[Arlo31 in reply to Yassytina]

Hi Yassytina, Thank you for replying.

I'm seeing an ANP on Thursday and I've been taking Citalopram for years! I'm going to ask if I can switch to duloxtene.

Thank you again. Hugs xx

[AngelMoon]

It’s awful isn’t it. Mine’s been so much worse and I can’t pinpoint why but I’m dragging myself around in a lead suit that buzzes is the only way I can describe it plus the fatigue is making the struggle so much worse. I have Ulcerative Colitis and that in itself is enough.

With regard to PIP if your condition has worsened have you thought about asking for a review on the basis that your needs have changed in the hope of getting a higher rate ( I don’t know if you’re already on that)? I used to be a benefit caseworker so I know it’s a bit of a double edged sword because the DWP can then decide against you and lower your award or take it away altogether, which of course you can appeal.

I was on the higher rates of PIP for a few years but on review they awarded me a lower amount. I could have appealed but I think when you’re ill it gets all consuming and I didn’t have the energy.

I’m self employed now as I couldn’t do a 9-5 any more but really I struggle to work at all.

I don’t know if you’re anything like me but I’m trying to stop being too hard on myself…I’m annoyed that I’m not the way I was before and yearn for my health back instead of being kind to myself and realising this is just a new set of circumstances and I will get through it and come out stronger. I trained in mental health but it’s a lot different when you’re applying that to yourself.

Sending hugs your way xxx