hi everyone. I’m having a bit of a rant tonight . So fed up and feeling so low with this pain. The pain has got a lot worse since the weather has gone colder and raining. Does the weather affect anyone else with fibromyalgia? I’m also feeling low as I can no longer undress my self I have that much pain In my arms. I can’t take my jumper off as I cant lift my arms up the pain is awful. When my daughter is here she will help me dress and undress of a night. It’s so degrading and I feel so useless 😢 I love my hoodies but I can’t get out of them the day my daughter is not here. I now have to get clothes with zip or buttons at front. I feel like I’ve been battered my body is that painful esp my arms and legs. I have my work esa capability assessment tomorrow over the phone and I’m not sure what to expect . Is it like pip assessment does anybody know please ?
pain worse in cold weather - Fibromyalgia Acti...
pain worse in cold weather
Good morning Kazzza1976
Sorry you are so low at the moment, I’m feeling exactly the same, so I completely relate to your post.
Weather impacts me hugely, I have fibromyalgia and M.E and if my body temperature isn’t right, then my symptoms are worse.
I can also relate to the clothes situation, I too can nolonger wear clothes I used to love as everything has to be bought with fibromyalgia in mind, otherwise an item like a normal hoodie can feel like wearing a suit of armour & my limbs get heavy and painful.
I first noticed how bra straps and shoulder handbags would impact me, this was before I was diagnosed with fibro, as even though there is meant to be a crossover of fibromyalgia and M.E, there are also distinct differences, so I questioned why bra straps were suddenly hurting like hell on my shoulders making me feel very poorly.
I buy lightweight tops and layer, yest I had an extremely lightweight cardigan on, but even that had to come off eventually, as my muscles felt so sore and tired it felt it was pulling on them. It’s so very light too!
Sounds like your daughter is a wonderful help to you and understands.
My youngest son is like this with me, it’s his birthday this weekend and the red velvet cake I should be baking for our family get together will have to be a shop bought one now, as having a bad week of fibro.
Hope your assessment went well for you & you’re able to rest over the weekend.
Best wishes to you.
Thankyou hope you feeling better soon x
Just wanted to say what a brave lady you are trying to support so much . The cooler weather affects me and many others with fibromyalgia. Try using a heat pad to relax your muscles. The one I use was brought from Dumelm cost 15.99 you can buy them online and arrange delivery. Plus a Ten machine also helps with painful muscles. Perhaps speak to your doctor by getting better support like physio to help support your pain in your arms . Ask him to put you forward with the pain clinic team. Their course is very good, and many benefits can be gained . Research your illness and focus on what changes could be made to your lifestyle will help improve muscles strength and determination not to let pain control you and your symptoms.
Stretching your arm and legs with slow movements will also ease pain if possible focus on simple slow motion everyday.
Your work assessment should be there to help you be more comfortable in your job role and to make sure the company you work for supports your illness where possible. Don't be afraid to have a voice and share your needs to improve your workload and everyday requirements. So many illnesses can take away confidence from us all.
However, we all have to find that strength to get on with life and work hard at these achievements . Because we are all worth it.
I have Multiple illness and fibromyalgia
However manged to follow diets and vitamin supplements which do support me.
my mobility is very affected by this horrible diseases. But I keep moving everyday because I have to. We are all champions in so many ways. Take care and good luck with everything. Big hug. Keep moving . Xx
Hi I am waiting for physio and I have asked my doctor to please refere me to the pain clinic . Hope you are feeling better soon x
Hi Kazzza1976, I'm the opposite, heat totally wipes me out! But I know the feeling with the arms and legs. I had to cut my hair short as just couldn't manage it, even now I blow dry it in 3 goes my arms are so sore. I've added a couple of links you might find helpful.
youtu.be/iOTJAd8aZ7M?si=2RY...
Also, have you tried magnesium spray/oil on your arms & legs?
Or a freeze spray?
Movement can make such a difference just little stretching movements, a few at a time but regular throughout the day can be so helpful.
3,4,7,9+10 in any combination might be ok for you in this link of arm stretches. 5 is a really good one too, it's easier than it looks. I do it using my kitchen unit when I'm making a cuppa. Once you start, you'll find yourself doing them automatically without even thinking about them.
prevention.com/fitness/work...
Google planter faciities for leg stretches, there's loads freely available.
Hope some of this helps 😊
Thankyou. No I haven’t tryed freeze spray . Thanks for the links x
I feel the same as you and can relate to everything you said. Hope you feel a bit better soon.
Thankyou x
Really feel for you , I hate now the weather is going too be cold for the next 6 months, it differently does affect me with pain 😞I hope someone comes along and can give you some info about the assessment, good luck xx
Thankyou x
Hi kazzza just wondering if you did get a pip reward in the end. Did you receive your reward letter.
Hello yes I got pip in the end . I was awarded low rate for both. X
Oh brilliant news, I've got my assessment next week, really anxious about, and feel I wish I hadn't applied. But after everything you went through maybe there's hope for me😊
Of course there Is hope for you. I was really anxious as well. I have just had another assessment for esa over the phone and have to wait 3 weeks for a decision. I wish you lots of luck for your assessment 😊
Thank you, I'll have to try and put it out of my mind till then♥️
Hi kazzza did you get esa 😊 had my pip assessment on Monday, very intense, and waiting for outcome.
Hi I’m not sure about the esa i am still waiting for a decision they said it can take 3 or 4 weeks , yes pip assessment is very intense, I was awarded the low rate for pip
🤞🤞 I get something xx
Hi kazzza just an update, I got rewarded standard pip, which I'm happy about, better than nothing 😊how did you get on with your esa application.
That’s good. I’m on standard on pip as well. I have been put into the support group with esa just waiting for it to be sorted. Think have to wait 3 months. That is what I have read anyway. How are you feeling? I’m in so much more pain now the weather is cold in arms and legs.
That's good news, I don't think you have to look for work with the support group do you. Yes I've noticed the difference with the weather to, pain is definitely worse😔
I don’t have to look for work or have appointments until it gets reviewed again
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