Haven’t posted on here in a while, but I hope you are all doing ok!
Incredibly fed up of this cold weather. It really does make my fibro pain worse than it usually is. This week really has been a struggle in terms of energy levels, migraines, pain, nausea & sleep. Had several flare ups and its just making me feel really down, which is coinciding with this annoying weather. Does anyone else feel like this at the moment?
I went to the theatre yesterday and honestly had the worst possible flare up mid-show. Its like I can’t even enjoy the small things in life without being in pain
I definitely feel like I need a holiday right now, somewhere hot for sure. Not looking forward to tomorrow, I heard it is meant to snow
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KT95
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I think many of us find our symptoms are worse in winter, I find that I just need to make sure that I wear plenty of layers so I can wrap up when outside, but not get too hot when indoors. Xxx
Winter is definitely the worst! My friends from Canada always complain that although its colder in canada, the cold there is dry whereas in in the UK you can feel it more in your bones
Not sure if it's the fibromyalgia or my osteoarthritis but I must agree it does make the situation worse. Wet weather definitely kicks off my osteoarthritis but cold weather seems to affect my fibromyalgia more. Basically I warp up in as many layers as possible and use a body warmer. My family brought brought me a rechargeable electric one for Christmas and it gives off a gentle heat for about 4 hours. Not that I go out that long.
Do you hate the feeling of being bundled up in loads of clothes? I feel that I'm missing out on so much because I just can't bring myself to go through the battle with getting wrapped up warm and getting out! xx
Lol. At times I feel like I am wearing a sumo suit but going to the hospital or doctors is a must. Normally unless it's sometime special I stay near my wood burner and soak in the heat.
I always wrap up and have the biggest winter coat on. Despite that the cold just still gets to me probs cus my face is technically not covered. Plus my body doesn’t regulate temperature properly so I am in this constant state of feeling hot/cold, so wearing too many layers is often a struggle especially when commuting
I can’t imagine having osteoarthritis on top! Do you take anything for that? Oh wowow! That is actually the best present!! I would love some electric gloves
Lol. According to my rheumatologist I have Complex regional pain syndrome, Widespread chronic pain syndrome and fibromyalgia. The osteoarthritis is described as generalised as it affects my spine and most of my joints. Over the last five or six years I have taken all the normal medications for the pain syndromes. Sadly nothing as worked or caused more problems than I had originally. For the osteoarthritis I take opiate based medications as and when needed. Basically my doctor's tell me I have no options left medication wise and so have been on a pain management programme to try and manage the pain better. Which as helped. It sounds a black picture but I am better off the medications and if I pace and plan things I can still enjoy life. You just have to take the good days with the bad.
Completely agree we just have to take the good days with the bad. I am a pharmacist myself and I have refused and would much rather not take any opioids as it is. They come with a lot of side effects which make you feel drowsy and tired which I don’t feel is worth it
Yeah I’m with you totally! Cold damp weather is the worst. I’ve got spinal issues too and it makes it all so much worse. I keep getting what I call Fibro flu. It’s like you’re coming down with something like a cold or sore throat but I just get the feeling poorly rather than the main symptoms x
Sorry I’ve not been doing good mentally for a couple of weeks. Just no light at the end of the tunnel and the months are flying by. I just don’t know what to do anymore I almost feel like a fraud sat in bed between bits of housework is all I can manage, I do try my best but if I overdo it I’ll end up bedbound again and I just can’t do it. I had 8 months of that after my accident with carers in every day etc. Sorry to moan on someone else’s post 🙈xx
Sorry you're feeling that way I'm the same, pain tiredness dreadful feelings of fear and on top of that since I ran out of my job late last year I've now got this sense of inadequacy that eats at me don't feel that I have a place in the world anymore! Still it's good to see you back let's hope the brighter days will drag us out of it a bit? What are we all like eh? xx
Yeah I know. I haven’t worked since 1998 as my sons have aspergers so I’ve been their carer for 21 years. Now it’s meant to be my time to live and go on holiday etc and I can’t. It’s horrible! No pub, no friends anymore either. I’ve been stuck in the house so long I just don’t think I’d go anywhere now even if I could? Just had a call too, my PIP home re assessment is on Monday morning 🙈 I’m so hoping they’ve changed the rules and they’ll just do the lifetime award now. Every 3 years it’s so stressful, can’t get a new car if it’s less than 12 months left. Yet Motorbility cars change every 3 years 🤦🏻♀️driving isn’t possible for me right now but it would be nice to have the option to x
Bless you my children are all grown up now but I've got several young grandchildren and I can't do the things I'd have liked to with them, i don't want to be the Nan always complaining of pain and never able to lift them off a swing it's living a nothing life at times! On a lighter note though my daughters do jokingly compare me wit the Nan from Catherine Tate and some days I can see where they're coming from😱
I have always tried describing this to people and they think I am crazy. That feeling when you feel like you have the flu but you don’t. I hope you feel better soon! Its not a nice feeling when you feel drained and poorly
I know that so well! I may have a water infection or I may not 🤷🏻♀️ most the time they test it and it’s fine. They can’t explain it. The doc once said there are lots of women who,mid cycle, get water infection type symptoms. That’s one explanation but the rest of the time it’s simply Fibro being mean x
I have not felt as bad for a while and was wondering if the weather had its part in it. I am aching all over with restless legs and little sleep. A hot climate sounds great. Is a hot tub any good for our pains?
I got a hot tub the inflatable kind and my word it was a nightmare. Currently gathering dirt in the garden. Slightest thing and it’s punctured! I used it twice and it did help but sadly I can’t get into one atm. If you’re going to get one, get a solid style. They’re expensive but worth it I think
The uk’s weather really doesn’t do well for us. When its cold and windy, that in itsself is a lot of pressure on the body as your body tries to resist or you naturally curl up to keep warm. Lack of vitamin d doesn’t help as we pretty much have no sun at the moment. The rain, that dampness can get inside the body
I get terrible flare ups in winter. Been snowing on and off this week here in Durham area and it's really having an affect on my pain. I have the added problem of major sweats. So when I go out I'm freezing but sweating at same time
Hi your post is very interesting as i find my symptoms increase 100 fold when it’s cold and wet. I always thought it’s just me but on reading this it seems to be the norm for fibromyalgia. Since November last year I have been taking vitamin D supplements in the hope it may help a wee bit, slowly they are making a small difference but there is something definitely about the cold and wet that really brings my pain to the extreme
The cold and wetness really gets into our bodies here! Id much prefer a dry cold weather. Glad to hear the vit d supplements have made even a small difference to the pain
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