Pains, stiffness, insomnia, IBS- Fibromyalgia?

[Roddysmum]

Hi,

I’m trying to get diagnosed. I don’t know what wrong but many symptoms fit fibromyalgia.

It’s been over 6 months. I have COPD and was having issues with sleep, breathing and pain. I’ve also got IBS symptoms and have failed to make it in time before.

The insomnia was initially thought to be sleep apnea- due to the COPD. Tests ruled that out.

I’ve had every blood test going. I had slight raised liver issues which have since normalised. I reacted to the AZ covid jab, it hospitalised me with low platelets, I was on street for 8 weeks at a high dose summer of 2021. I’ve not been right since really.

I have pain at night that wakes me, lower back, legs neck and shoulders. In the morning I’m stiff as a board, I have plantar fasciitis in my left foot. I also seize up if I sit a long time.

I have migraines.

I have reactions to every medication I have been prescribed recently for my COPD.

I regularly have nausea. I wake all night and then am tired all day.

I’ve had sweating, days and nights- GP said menopause but I’m 3 years plus over that. I was prescribed hrt, that made it all worse.

I have arthritis in my hands.

I’ve tried vitamins, various types of food changes etc. I avoid processed stuff and cook from scratch.

I’m getting more and more down.

can anyone suggest questions I need to ask?

Thanks for reading

[Cat00]

Has fibromyalgia been discussed at all with your GP?

[Roddysmum in reply to Cat00]

not as yet

[Cat00 in reply to Roddysmum]

They'll need to rule out various autoimmune/ inflammatory conditions. Rule out MS etc all can be done with bloods. Then if they can't find any indicators in the blood fibromyalgia is what's left essentially. I'd book an appointment with your GP and ask them to start the process. Each fibro person can have very wide ranging symptoms and levels of pain and fatigue so it would be your individual experience of your body that matters.

[Roddysmum in reply to Cat00]

thank you. My bloods picked up a couple of minor things but inflammation was negligible- my GP said it was likely just my age. Not very helpful.

I think I’ll try and see another GP.

[Cat00 in reply to Roddysmum]

I've been told "it's just my age" and I wasn't even 30 yet at the time so I know how you feel. I understand doctors are reluctant to over medicalize ageing but fibromyalgia is distinctly different from general wear and tear.The pain, while favouring certain areas, tends to move around whereas a worn out joint or something would be a stable kind of pain. For me I can hardly walk one day and then be completely fine the next day.

The parts of my body that are hypermobile hurt in the night as I lie down, sleep can be a very painful affair for fibro patients, I think this is also different from ageing.

I have chronic migraines and IBS and BPS, these are fairly typical for fibro but not ageing.

I think maybe if you could discuss these differences, if you experience them, with a doctor you might get a bit further?

[Yassytina FMA UK Volunteer]

Hello , I think if you can sit down with your doctor having had many blood tests that have come back clear , write some notes of what symptoms you have been experiencing and roughly how long it will differently give the GP a clearer picture, let us know how you get on .x