Facial numbness and headaches

[BlueBertie]

Hi everyone,

Im new here and looking to get some advise and tips on dealing with a numb face and tongue on the left side with headache and fatigue that's lasted 7 days, i feel so strange all the time and its wearing me down. Have any of you experienced with with Fibro and waht helped?

Thanks

[Hazel_Angelstar Administrator FMA UK Staff]

I would suggest contacting your gp or NHS 24, as there are multiple reasons you could have these symptoms

[BlueBertie in reply to Hazel_Angelstar]

thank you I’m going today.

[Cat00]

Do you have a history of migraine?

[BlueBertie in reply to Cat00]

yes I have in the past but this has lasted over a week. I’m going to the GP today so maybe get some investigation going on.

Thank you for replying

[Cat00 in reply to BlueBertie]

I have chronic migraines and face tingling and face paralysis in not uncommon but obviously it could be all sorts of things. Good luck with the doctor.

[Patdoyle]

I’ve had tingling in face and lips and headache. GP spoke to neurologist who didn’t seem concerned about it but get it checked out by your GP

[BlueBertie in reply to Patdoyle]

thank you I have an apt this afternoon so maybe will get somewhere with it x

[BlueBertie in reply to Patdoyle]

thank you it’s so strange but in a way good to know I’m not alone with this.

[fibrojackie]

i am having same symtoms but my whole face now , tongue, lips,cheeks can not chew or anything im having mri and nerve tests and mine started with a numb chin on left side im hoping they can sort it but consultant was not saying it going to come back so god knows but you are the first person i have heard mention the numbness in face

[BlueBertie in reply to fibrojackie]

I’m sorry to hear you are suffering with this too. I’m going to my GP today but not had an MRI before so maybe that might help. It’s just so frustrating all of it as I’m worried something else maybe happening but they just put it down to Fibro.

Thank you for replying x

[fibrojackie in reply to BlueBertie]

i know what you mean with drs every little thing is its proberly down to your fibro, i had mri on my head they didnt find anything on that so now he is doing my neck and spinal cord and nerve test on my arms so ive got all my fingers crossed something shows up and he can fix it !! its not til the end of month but will let you know thanks for replying hun

[BlueBertie in reply to fibrojackie]

I hope you get some answers👍

[Yassytina FMA UK Volunteer]

Hope you get some answers with the doctor this afternoon x

[Ninapod]

The symptoms you described are exactly the same as mine. Have you been diagnosed with fibromyalgia or had these symptoms investigated? I still have face / tongue tingling or numbness but headaches now under control with medication.

[BlueBertie in reply to Ninapod]

hi

Been diagnosed with Fibro last November.

Hopefully I might get something soon to help. Thank you

[Patdoyle in reply to BlueBertie]

let us know what your GP says

[Patdoyle in reply to Ninapod]

what did they put yours down to. I never really got any help from the neurologist

[BlueBertie in reply to Patdoyle]

hi

They put it down to cluster migraines but doing bloods to check nothing else going on🤷🏻‍♀️ Said it is part of the condition. Checking for B12 deficiency.

Will have to wait and see what bloods say.

Thank you for replying

[Patdoyle in reply to BlueBertie]

that’s exactly what my neurologist said a few weeks ago. Part of fibromyalgia but check B12 deficiency. At least we were told the same!

[Hidden in reply to Patdoyle]

might be and idea you both visit the pernicious anemia society website or forum.

My daughter in law had all the same symptoms

Told her to get bloods done and she was very low on b12.

[Ninapod]

I had an MRI after being referred to a neurologist but everything was fine. Other symptoms + the ones above confirmed as fibromyalgia by rheumatologist.

[PBMB]

Hi ,

I hope you get some answers .

I often feel like my face is swollen when I’m in a flare up and my tongue gets tingly .

It is all very strange but Mine comes and goes . Is yours there all the time ?