Struggling : Hi all, I'm having such a... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Struggling

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Hi all, I'm having such a bad time at the moment, had fibro for 3yrs now and every day is becoming more of a struggle, everywhere hurts can barely use my hands, thumbs especially! I really don't know how to cope anymore along with pain is the mental health issue, no motivation no appetite just veggitate not even watching tv because of the pain in my ears. Woke up this afternoon feeling lost and not even sure what I should be doing! My kitchen is such a mess in fact the whole house is a mess. Feeling lost and feeling very low. I know tomorrow i might feel better, just very up and down at the moment. I really try to be upbeat and give myself goals like doing the dishes and possibly a bit of dusting but few days later and it all needs to be done again and I've ran out of energy and I really don't know how to manage it.

Thanks for reading, xx

10 Replies

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5 years ago

I'm so sorry you are feeling so rotten. Have you got any family or friends who could help you? Love and hugs Lynne xxxx

• in reply to5 years ago

Hi lynne I'm actually embarrassed to say that I don't actually have any friends. My family help and do what they can, my son lives with me and he helps me get around and in and out of my wheelchair but it's very difficult.

Thanks so much for your reply xxx

• in reply to5 years ago

Well you've certainly got friends now, we are your friends bon this forum. I'm so glad your family help out. Pm me if you need to, always here for you. Love and hugs Lynne

MichelleButterfly5 years ago

I'm really sorry it hear you are struggling at the moment. Please think about going to see your doctor. Is there any organisations in your area that could help. Some councils and housing associations have adult services that could possibly help you at home or they maybe able to point you in the right direction.

Sailingtrio5 years ago

Hello

That sounds so hard. I am so sorry you have to go through all of this.

I would try and find a bit of support if possible. Do you have a good relationship with your GP? Perhaps he or she could be a starting point?

We are all standing (or sitting ;-)) with you.

Gentle hugs

Sarah x

Tootiepie5 years ago

Dear Hidden, I am so sorry that you are feeling this low. Speaking for myself I know that I can be in your shoes at certain times. I think anyone who has Fibro will go through times when you can't see the positive in anything. We are all hear to listen and just share in your sense of feeling lost. Pain is so debilitating both physically and mentally and sometimes even when you are stoic day in day out with the ongoing pain, its the mental lows that can be worse. Take care of yourself. x

5 years ago

I just wanted to send you a hug and loving thoughts to help you through the day.

We are all here for you.

Be good to yourself, the dusting can wait.

Sue x

Simba_15 years ago

Hi Hidden. Unfortunately I can't give you any advice because this is exactly, word for word, how I'm feeling at the moment. I hope you feel better soon and I hope you don't mind but I'll be keeping my eye on any replies you receive as it may help me too. Cyber hugs, cos if you feel like me a human hug hurts (physically) at the moment x

snowyday20205 years ago

I need naps at 10 am. 2pm and 6pm. I do tasks at 5 to 8min then rest for 1hour. Only a suggestion to maybe get a routine going to hell with housework etc. Listen to best music you can when doing s task