Hi, sorry to hear about your struggles. Along side medication, try Pilates exersises. Pilates street he’s out muscles and gives some relief, it maybe painful during exersises, but slowly slowly you’ll feel benefits.
Hello CBL2 , sorry to hear of your recent diagnosis. I was diagnosed in June 21. I'm also going through the menopause, my B12 has been slightly under and my thyroid was borderline underactive. All things I am now taking medication for. Both my GP and I were hoping that it would help with the aches and pains I have but unfortunately none of it has. HRT has helped to balance my emotional state which has been great. 4 weeks ago I also started on 50mg of Setraline which is an anti depressant and whilst it's still early days, I can honestly say I am starting to cope better with my fibromyalgia as a whole.In terms of pain relief, personally, I try and steer clear, unless it is a really bad day. On a bad day I take Naproxen with OTC co-codamol. I exercise daily with a brisk 60 minute walk. Some days this is easy and I'm as light as a feather, other days I feel like a dead weight wading through treacle. I also lift 5kg weights and do stretches and squats at home a couple of times each day. None of this is easy and I know that for some people it wouldn't be an option. But it helps take my mind off the muscle cramps, the spasms and pain in general as I'm outdoors and I'm distracted by my surroundings, by the weather, by nature.
I was prescribed 10mg of Amtriptyline but because I already suffer with dry mouth I didn't take it. I also can't afford to feel groggy as I work 3 days a week.
I haven't taken Gabapentin, however my dad was prescribed this when he had shingles. It is highly addictive and not the nicest of medicines to come off. That said a lot of people take it quite happily with no issues.
Have you tied magnesium supplements and magnesium baths. They're a great help to me.
You will get lots if useful advice and support from this lovely group of folk on here 😊
Thank you very much for all the advice I do yoga exercises on a morning I find walking helps with the anxiety .just returned back to work part time been off for 7 months I am struggling but determine to find a way of living with the pain .
Hi there, it’s not a pain killer but a muscle relaxer, pregablin is much stronger. I would see how you get on with them they should help but if not definitely get onto ur Gp. I know wat living in pain is, I had two brain surgeries last year, there was a mass found between my brain and spine, had my head cut open from top to bottom. They were pushed to put me on them, I persevered with them cause in my experience the GPS are useless they don’t listen to what we tell them. You might be different, X
Gabapentinoids are FDA-approved to treat a variety of conditions including partial seizures and nerve pain from spinal cord injury, shingles, and diabetes. Other approved uses include fibromyalgia and restless legs syndrome. Gabapentin was first approved in 1993 and pregabalin was first approved in 2004.
Hi I was diagnosed last march but suffered for years. I’ve not been on that but I’m on duloxatine . I’ve tried a few other which I can’t remember, fybro fog lol but this works a treat for me. I’m on 90mg, I had it upped cos of the pain when sleeping.
I’ve been lucky with no side effects. Don’t get me wrong I still have pain every day but it’s nowhere near as bad. I know when I’ve overdone it as I feel like I’ve been run over by a train!!
I began on gabapentin and slowly built up to maximum dose but sill needed additional meds. Amatriptaline. I’m over 10 years down the line now and still in pain but it’s pain I can just about live with. Like you say when stressed it’s worse.
Give the gabapentin time to work. You can take paracetamol and ibuprofen which I did.
Just to put my two penneth worth in. When I took gabapentin, I seemed okay on it, until they increased my dosage, and I found it caused my muscles to tighten up quite badly, and I had to stop taking it. I take amitriptyline, but to be honest, I’m literally stuck on it, and can’t get off it, so wouldn’t advise that either.
Your parents being poorly will make things a lot worse ☹I lost my mam and dad within a month of each other last year and definitely made things worse take care xx
Dear CBL2, I’ve also recently been put on Gabapentin and it works SLOWLY!I’m 3 weeks in……had to increase to 200mg after the first week…… also take 10mg Cyclobenzaprine with it, an hour before bed and the spasms have lessened significantly. I also take a very warm shower & enjoy a cup of cocoa before turning in!
I’ve noticed, if I’m not very active during the day, the spasms tend to be worse…… so daily activity is key! Best of luck to you!! ❤️ From PNW🇺🇸
Hello, sorry to hear of your pain and sorry to say I know how you feel. I was put on gabapentin when first diagnosed but sadly it did nothing for me. I got in touch with rheumatologist and he changed my prescription to pregabalin, I found this helped but eventually I needed morphine patches. If your pain isn't eased go back and tell them and keep pestering until you find some relief. Having said that I hope gabapentin works for you as it does for a friend of mine who swears by it. Hope you feel better soon.
So sorry you are suffering with such chronic pain. I have widespread pain with Osteo Arthritis and Fibromyalgia in 13 areas. I do take Gabapentin, morphine patches, paracetamol and Tramadol to try to alleviate some of the pain, but some days all this medication doesn’t touch it.Everyone is different, you need to give it time to start working. I even tried CBD oil free from THC but that didn’t work either so stopped that.
Really hope that your medication starts working for you and you will get some relief.
Good luck Ajax and will keep you in my prayers. Big hugs Norma 🤗🤗🤗🤔
Hi, I have sleep apnea and was placed on cpap therapy about 3 years ago. I did not adjust well (severe muscle pain and what was determined to be nerve pain) and still could not sleep. My sleep doctor placed me on Gabapentin and it has made a world of difference. It took a couple of months to help with nerve and muscle pain, but I've had no side effects and I have been helped by it. I'm in US and the formulation and dosages may differ from yours, I don't really know.I do hope you get relief soon 🌹
I take 300mg and can add 300mg more if needed. The higher dose makes me a little tired the next day, but I rarely need the allowed increase. I take it at before bedtime and it has almost eliminated painful muscles which were keeping me from sleep.So glad you're here. I'm not on often but this forum has really encouraged me so much! Fibromyalgia is very different in everyone.
I have some strategy about CPAP that may help if you are interested. It is all about the mask. I had tries three different kinds and finally found one that works wonders. Getting a good night sleep is so important and I hope your sleep improves.
Thank you, Lisa!I have had my current mask style for about a year and it's working well for me (after trying several different styles). My Nurse Practitioner was very patient with me along the way. And, yes, I would still like to know your strategy since I've obviously had some challenges. My NP has had her 3rd baby and is no longer in my sleep doctor's practice.
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