New to this - but : Hi there all. Looks... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

New to this - but

Skylover profile image
2 Replies

Hi there all.

Looks like my journey has many similarities with some of you. It’s a tale of chronic pains coupled with life stressors.

Had chronic low back pain after fusion surgery on my lower back. This worked well for about 12yrs - enabling me to work in my dream job as a staff nurse. 5yrs ago pain started up again and I had a second lower back fusion. Recovered well & went back to work - with some adaptations. My job as a rehabilitation nurse in elderly care wasn’t too physically demanding, and I learned to manage my pain & minimise my drugs with mindfulness. Then covid struck, my employers in their surge planning redeployed me (Easter 2020). Shortly after my Dad caught covid & died. Work wise I had to go where I was told & over the course of 18mths worked in lots of different teams and roles across two other hospitals in my Trust. At times I was walking 8-10kms a day & had to take some time off with plantar fasciitis. On reflection it’s seemed like I’ve spent the last year or so collecting symptoms, joints, muscles etc most of which have been crazily sporadic without any particular correlations. An (undiagnosed) possible shingles followed by a stomach bug, but joints painful on & off. Although when I finally got to my GP last May he said he wasn’t sure what I needed - possibly a gastroenterologist or a rheumatologist! I plumped for the rheumatologist. The pains and life stresses continued. To cut a long story short finally last week I was diagnosed with fibromyalgia. My diary was bulging with so many symptoms, often mixed & fleeting , that before my last consultation I’d sifted them into 5 main symptoms and how often I’d experienced them in the last 3-4 weeks. I’m pretty sure it was that synopsis put together with my newest symptom of skin sensitivity that helped her come to the diagnosis.

I’m also sure that if I hadn’t been for a daily mindfulness practice I wouldn’t have managed to survive the last 2 pandemic years & all the pain & stresses it’s given me & us all!

In a way it’s a relief to finally have a diagnosis & I’m very much hoping that my decision to retire in 3 months will help dampen down my symptoms. It’ll definitely massively reduce the stress in my life & I’m already counting down the weeks 😁

Will admit though the worst (& newest)to join the party is the skin on my shoulders, arms, wrists & hands feeling like they’ve been rubbed vigorously with sandpaper. Now that’s gone a bit crazy & driving me mad 🤪 Didn’t even realise that was a symptom! Maybe you’ll have some suggestions to help?

Thank you all for being there

Written by
Skylover profile image
Skylover
To view profiles and participate in discussions please or .
Read more about...
2 Replies

Well skylover that’s some statement wow I feel for you I have a lot of things wrong too Fibromyalgia by far the worse for pain

Skylover profile image
Skylover in reply to

Thank you for your empathy 😊 take good care of yourself

Not what you're looking for?

You may also like...

Weird FMS symptom

Hi all I have been diagnosed with post traumatic FMS this week following on from very bad birth of...
Tortoise84 profile image

New here. First gp visit after official diagnosis

Ok here I go..... First off thank you to anyone who responds to this, it will mean more than you...

Can anybody relate to these symptoms? Is this fibro, rheumatologist is undecided

Hello! I started with chronic fatigue back in June, no other symptoms other than headaches and pain...

Bruising appearing overnight, does anyone else experience this?

I’ve noticed recently that I am forming bruises without injury. They do form in places where I’ve...
Jan1964 profile image

New member

hello everyone I’m new here, I’m so happy to have found this group page. Really reassuring that...
Dash01 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.