Should I push for a diagnosis?

[Lizardelle]

I've been diagnosed with fibro for about 2 years but reading more and more into other chronic illnesses recently. I feel like I may have CFS/ME and/or PoTS based on what I've read/been told by others but a lot of symptoms are so similar to fibro. When I last brought it up with my doctor he said I could well have them but there wouldn't be any point exploring a diagnosis of either because there wouldn't be any treatments for them anyway (other than what we try for fibro). Just wondering if anyone here has either condition and if you would agree with my doctor that getting a diagnosis would be pointless?

[CheetieCat]

Hi Lizardelle,Although I don't agree with your GP I do understand their reasoning. They send people to see consultants for a diagnosis, most people wait at least 18 months for their appointment (even longer now) to be turned right back around to their GP for them to continue the treatment they were already providing in the first place 🤔 Frustrating for Gp's of course but on the other hand there is a patient with a need to know exactly what they're up against.

My GP is now saying I have CFS too but I honestly feel like I've just been patted on the head & given a lollipop just to go away 😕 (so to speak)

[Lizardelle in reply to CheetieCat]

I suppose I get that, it's frustrating for everyone. Would be so nice for once for a doctor to be like "hey look, we found this very fixable problem with you, here's one pill and you'll be better in a few days!" 😅

[CheetieCat in reply to Lizardelle]

Ah wouldn't it just 😊

[Onedaymore1]

🙏 I still believe this day will come 🤞

[Sleepyhead22]

I'm not an expert but I was tested for PoTS and in my research I think there are medicines they try to relieve the symptoms. If it was me, I'd probably look up what they used for treatments and if it's different than what they try to fibro push to be checked for it. I was in a similar situation where I have the symptoms of both fibro and CFS and my Dr just picked the referral program she thought was better in the area. When I inquired about it to a CFS specialist she told me both Fibro and CFS are broad terms right now since they don't know exactly what causes them and to be referred to the ME/CFS clinic usually fatigue is a more dominant symptom than pain and for fibro it's the other way around. Because I was getting really bad pain, I asked about seeing the pain clinic and she said I could be referred but because I was in the CFS program its unlikely I'd be seen because they are very similar programs.

[jackiesj]

Keep at it.I do know that there are many underlying diseases and defiencies that can be cause and helped. I was misdiagnosed fibro to actually be MS., I had a quad bypass and come to find out id already had heart attack and stroke and didnt know it until that surgery.Docotr said,,, medicine is not exact science.I dont agree with GP no even looking and there are new things to do for disease and illness everyday.That should be your choice not his.I have a genetic vit d defiency and an Alpha 1 gene...family history is important.

why would i need a quad bypass at 120lbs active? i wish id asked more questions earlier.Best wishes.