Fibromyalgia supplements - please help - Fibromyalgia Acti...

Fibromyalgia Action UK

59,419 members β€’ 66,475 posts

Fibromyalgia supplements - please help

Hope123456 profile image
Hope123456
β€’14 Replies

Hi all, hope your all doing well on this hot summers day πŸ˜³πŸ˜πŸ˜‡πŸ€ͺπŸ’ͺπŸ₯³

I have recently been diagnosed with fibromyalgia i was wondering if anyone could please reccomend me any suppliments that will help with fibromyalgia pain and fatigue, i feel so horrible ☹️☹️☹️

Also is there any other tips you can give me for all this pain and fatigue, i cant bear it

Thank you sooooo much in advance, blessings always to everyone πŸ™πŸ™πŸ™β€οΈβ€οΈβ€οΈπŸ™πŸ™πŸ™

Keep the faith

Written by
Hope123456 profile image
Hope123456
To view profiles and participate in discussions please or .
14 Replies
β€’
Zoria profile image
Zoria

Hello Hope 123456 I have tried may things as the tablet the doctor gives dont take the pain away and just make you like a zombie most of the time. I have brain fog and exhaustion at times and fall asleep in the afternoons or evenings just with fatigue . I can say try magnesium oil spray you can buy from Holland and Barrett, I spray on my hands , also a lotion or cream which has magnesium in for when you go to bed to sleep that helps . Again from Holland and Barrett says on bottle Sleep magnesium cream. Also i found acupuncture was a great help for my feet angles when became stiff and loosened the stiffness and eased pain and worked on my neck and and back but does not last and so have it when i can afford to. Also physiotherapy helps my pain when it becomes really bad on my back and neck and also my knee. the physio I go to puts a heat pad on the area and then puts me on a machine which i have pad suckers attached to my areras of pain and this vibrates and is for twenty minutes and then he manipulates my back and holds me with both hands and can hear my bones in my back crack you think your back is going to break but he knows what he is doing and that does the job and i feel so much better. He is very experienced and is soon retiring . I dont know who i will go to when he is gone. There is probable words for the these things but I can not remember them . Also eat plenty of vitamins you get in your fruit and veg. All B's help.What works for one does not always mean it will work for another but is worth trying so you can see if does help.

Hope123456 profile image
Hope123456 in reply to Zoria

Thank you so much zoria ❀️❀️❀️ i will try some if the things that have helped you, hopefully it will help me too πŸ˜ƒ god bless you

Lovecavatese profile image
Lovecavatese

Meds work for me, don't disregard them, antidepressants work as pain killers in low doses, also some help with energy levels. Paracetamol is useful especially if you take it regularly and space it out well. Your GP is the best person to talk to. Rest also resets pain .Take care and keep hydrated :)

Rita1404 profile image
Rita1404

Morning Hope there are plenty of support groups/info out there. Where are you from????In respect of meds/supplements i guess it will depend on what you mean???? CBD is said to help which you can get in most things/shops nowadays. Tuermic (Indian Spice) with warm milk at night is said to be anti-inflamentary as is ginger and garlic so again adding to your diet might help. Mediation can also help be calmer as stress doesn't help. Magniusim can help but don't take too much as it can expel from your body!!!!! I get mines from Home bargains and i have discovered a lavender face mask Β£1 from Poundland which helps with sleep. So have a look on line but don't overwhelm yourself as what might work for me wont work for you its all trial and error and perseverance as it can take time to get the right balance. Good luck

Hope123456 profile image
Hope123456 in reply to Rita1404

Thank you sooo much rita for all your advise, will give these things a go, i am from leicester, i bought cbd and medical marijuana few months back but not used, does it help? Suppliments/meds i meant what meds would help as i take none and what supplements theres soooo many

Rita1404 profile image
Rita1404 in reply to Hope123456

Yep there is that.Why not keeps diary over a month just bullet points of what you have ate, pain levels and sleep patterns etc. You will be surprised at what the results can show.as someone else has suggested get bloods taking so you can at least know if your deficient with anything. some people can manage FM without prescribed meds but if you feel you need CBD there is all different strengths and depending on body weight would determine how much you should take for it to be effective so than that might allow for you to work out how much you would need cash wise also. hope this helpa

Hope123456 profile image
Hope123456 in reply to Rita1404

Thank you rita, yes good idea i will do a diary, thank you for your help πŸ™β€οΈπŸ™

LisaSnow profile image
LisaSnowFMA UK Volunteer

Before you commit lots of money to supplements, ask your GP to test levels of the commonly deficient markers in your population. First get a clear picture of what you are deficient on so you can target-treat the vitamins or chemical element that your body needs. This baseline will also helpful as a comparison tool after you take supplements for some time.

Hope123456 profile image
Hope123456 in reply to LisaSnow

that make sense alot of sense, thank you lisa

JayCeon profile image
JayCeon

Somewhere down the line you might want to try amino acids. GABA is the one (neurotransmitter) that has worked best for me, so I seem to have low serotonin, but that's another story to LisaSnow's suggestion to get your bloods checked first.

Magnesium (check for the type most suitable for you) is something which many of us try, as is the case with vitamin B12 (4 different types too, the normal cheap one is shown in studies to be the best one) and vitamin D, both of which can be checked per blood. Quite a few of us take the B-vitamins too, however none of them helped me, not even B12 in extremely high dose. I'm taking magnesium malate, magnesium glycinate, passiflora in the evening and GABA and glutamine before bed and at night, testing tryptophan a second time didn't seem successful. If you're interested in the amino acids, check Trudy Scott's questionnaire on that. No bloods can be done there. There's also another 10 supps on my list, theanine will be next for sleep. Altho generally acupressure is my mainstay (along with various exercises and cryotherapy and cold showering) . (I don't tolerate the meds at all, not even low dose.)

Hope123456 profile image
Hope123456 in reply to JayCeon

πŸ™πŸ™πŸ™

Aoibheann profile image
Aoibheann in reply to JayCeon

Hello JayCeon, can I ask where did you buy your GABA from.? I have been advised by a very knowledgeable person to try it. Many thanks and take care.

JayCeon profile image
JayCeon in reply to Aoibheann

Hi Aoibheann - good to hear... :-) As I already said on the other thread, maybe you've got foggy-confused? ;-) (here healthunlocked.com/fibromya... From German Apotheken, first used the 750mg capsules by Warnke, then I opened them and took a few times 100 or 200mg per night in the sleep breaks, but that turned out not to be enough, so I bought GABA powder von Sinoplasan (wrote it wrong on the other thread). You should be able to get both.... OK?

Aoibheann profile image
Aoibheann in reply to JayCeon

Hello JayCeon, yes brain fog. Oh dear. Keep safe, stay well. 😊

You may also like...

Fibromyalgia help! Please

Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia,...

Please help me fibromyalgia

I do? What can I say to pain specialist to determine if I have fibromyalgia? I feel hopeless as I...

Help Please - New victim of Fibromyalgia

I was diagnosed with Fibromyalgia 2 weeks ago. My symptoms are constant extreme pain in my upper and

Thyroid, fibromyalgia connection please help

Hi all I hope that you can help, as you all did for me recently :) I've had a few thyroid...

Help with Fibromyalgia

Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg