FIBROMYALGIA

[Honeyolive]

Hello everyone,

I am suffering from fibromyalgia from last 13 years. I have chronic severe widespread pain all over my body. Extreme Fatigue feeling very tired all the time. My symptoms getting worse day by day. It’s the first time I am talking to others here with a hope might someone will understand what I am going through. Fibromyalgia seriously impacted my family ,social and work life.

[Kimmie88]

i understand how you feel I lost my jobs due to my fibromyalgia my pain makes me isolate myself because I don’t want my family to see me in pain. I stopped socialising because of my fibromyalgia it can get really bad and alcohol is one of my many triggers, so I get how you feel. It’s just finding the right things that works for your pain, but you all so have to not let fibromyalgia define you as a person there is many people on the group that can help you and they all so give you great advice

[Honeyolive in reply to Kimmie88]

Thank you so much for your reply. This is exactly I am going through every day. Very difficult to manage my pains to be honest. Unfortunately in my MRI scan (11 days ago ) I have found that I have a cystic adenoma in my pituitary gland in my Brain. Left my family home a week ago. Living in a hotel. Waiting for my further treatment as others waiting like me for NHS.

[Kimmie88 in reply to Honeyolive]

I am so sorry to hear that an I hope you get your treatment soon an that you find away to manage you pain .

[Honeyolive in reply to Kimmie88]

Hopefully thank you.

[Stephieb1988]

hi honey olive

I know how you feel. I struggle with chronic pain and fatigue. My pain like yours has been getting worse. I've had it about same amount of time as you. If you need to talk to someone just reply and will chat with you

[Iamthemedicalmystery]

I think that everyone in this group understands where you're coming from hun, it's horrendous at times. The lucky ones that don't have it can only try to understand unfortunately. I wouldn't wish it on my worst enemy x

[Bentleyhl]

I know what you mean .I don't have a social life anymore. I am so glad I have a brilliant family ( well some) I try and stay positive .I listen to music that I like .Read. it is such a horrible disease to have and unless you have it you don't know how bad it is .

[Astonvilla68]

Google LDN for fibromyalgia, it’s been a game changer for me , good luck

[Greyt]

Hi Honeyolive

Sorry to hear of your battle with Fibromyalgia. I understand your pain as I have been living with it since 2016.

It really helps to have this site to be able to chat to fellow sufferers.

It’s hard for those who don’t suffer to realise what we are going through but this is understandable when we think of how complex Fibromyalgia is .It’s difficult enough for us to get our heads around it .

At least the wider population is a bit more aware of it now.

I have always been an active person so find it incredibly difficult to have to slow down so it’s takes a big effort to pace myself but I’m getting better at it .

You are not alone everyone on this site is here for you.🙂

[Smilesalot]

Welcome Honeyolive,We hear you and understand. I no longer work and haven't for years. I hate that but I just can't manage it. I'm having a bad day today😢 the pain is overwhelming me n I keep crying.

I got too cold when carer washed me which has worsened the pain.

I have one trusted friend. I moved house and area to get away from them. Then shut myself away.

My friend moved with me🤗😍😇,

I'm so sorry you are going through this. I will pray for you sweetie

Sorry I have to go I'm sure you get it

Dawn hugs 🤗🤗🤗🤗🤗

[Honeyolive]

Thank you everyone for your support it’s difficult very me to reply to all messages. I apologise for that it’s because of my fibro fog. I am not getting any support at the moment from the government. Not a single penny. Homeless at the moment. Left my Family, Home. Missing my 1 year daughter and 11 years verbless autistic son. Thinking for the roof…..

sorry everyone that’s what I am going through….

[Hel52]

Hi Honeyolive

So sorry too hear your going through so much your situation is clearly impacting so much on your fibromyalgia stress levels make the chronic pain worse I hope you get everything sorted it’s such a devastating process too get help bless you.

I had fibromyalgia for 8 years it has been there all my life it’s headed for a marriage break down my husband just doesn’t won’t to know it’s a battle to get my point across I have many other health implications I am scared to leave the house due too my IBS-d I had to get home quick due too accidents where I have too through my clothes away.

Big hugs we are all here for you

Hel52

[Honeyolive in reply to Hel52]

Thank you so much for your support. God Bless you.

I have stage 3 fibromyalgia more then 20 fibro symptoms only.

Then I have problems with my cervical therosic lumbar discs and some nerves compressions too,

Fatty liver

Right pelvis pain

Cystic adoenoma in my Bain.

But it’s ok it’s the test from God.

And I am gonna fight…..

[Hel52 in reply to Honeyolive]

oh bless you you have so much going on sending hugs and positive energy ❤️

[Cotswolds25121 in reply to Hel52]

🤗🤗🤗

[BlackDogIndy]

I know exactly how you feel. Unless you live through it, it's almost impossible to understand it. The isolation, the constant tiredness, the pain, like many other hidden disabilities, people look at you and think you are fine.

I find myself constantly having to remind people and almost apologise for my condition when they ask or expect me to do simple things I can't. I doze off constantly because I'm exhausted, I can be short tempered because I'm always in some degree of pain, I'd rather be left alone as I don't have the energy for social interaction. I feel like a ghost in my own life, watching it pass by as I'm too utterly tired to take part in anything.

I spend most days pretending to be okay, when people ask how I am I smile and say, I'm fine when actually I'm anything but fine. I've become a master at hiding how I feel out of fear I'll lose my job. Every day is hard to get through, with only another day of tiredness and pain to look forward to. I feel robbed of my normality, my future and my wellbeing.

I wish I had a cure to pass on to you or words of wisdom to help you. Sadly for me at least it's just a case of carrying on and making the most out of a bad thing.

I wish you well and a peaceful, pain free future 🙂

[Honeyolive in reply to BlackDogIndy]

I really appreciate thank you so much.

God Bless You.

[Tuscany in reply to BlackDogIndy]

Hi there,

I saw your post and most of it resonated with me. I understand the dozing off, the complete exhaustion, feeling like life is passing me by. That has been a very strong feeling for me recently. I haven't been on an evening out in so long, apart from family gatherings. I just don't want to be out and come over feeling ill. I understand the short tempered part as well. I am not proud of it, but the pain can be overwhelming at times. When i was diagnosed, I had no idea what impact this horrible illness would have on my life. Was probably just as well I suppose. Take care of yourself x

[missvenus]

yesterday i had the most horrendous migraine and vomiting lay in bed all day alone, still forced to work as receive no help NHS not that interested just keep giving out pills and say i am managing it. I have to be strong as i don't think anyone who does not have fibro can not begin to understand it god bless you and all of us sufferers.

[Oscarlola]

Hi Honeyolive I no exactly what you mean iam the same it's getting me down . I am no good past 2oclock if i get that far , I was a School travel assistant but had to give it up as I couldn't function in the afternoon , love to no what everyone dies for the tiredness please help

[Zolis]

Tottaly understand you, your feelings and fears cause I have fibro fo more than 13 years...